TOBI vs IV Tobramycin

[kitomd21]

For those of you who have been treated with TOBI as well as IV Tobramycin at some point - have you noticed fewer hospital stays since the advent of the inhaled form?

 

[kitomd21]

For those of you who have been treated with TOBI as well as IV Tobramycin at some point - have you noticed fewer hospital stays since the advent of the inhaled form?

 

[kitomd21]

For those of you who have been treated with TOBI as well as IV Tobramycin at some point - have you noticed fewer hospital stays since the advent of the inhaled form?

 

[kitomd21]

For those of you who have been treated with TOBI as well as IV Tobramycin at some point - have you noticed fewer hospital stays since the advent of the inhaled form?

 

[kitomd21]

For those of you who have been treated with TOBI as well as IV Tobramycin at some point - have you noticed fewer hospital stays since the advent of the inhaled form?

 

[LouLou]

Your post title makes it sound like you are trying to understand which is better but then your question doesn't correlate. Not sure what you are asking but here's my thoughts. I've had IV Tobra around 12 times in my life. I inhaled Tobra (out of glass vials) as a kid and then switched to Tobi when it was invented. I used it when I had a cough or every other month depending on the doctor I was working with's philosophy at the time. Around the age of 22 I became resistant to it (through sputum cultures) but it worked for another few years through inhalation. Now I take it around 2-3 times a year to increase synergistic effects of other abx I am on. Such as right now I am on Merrem which works better if paired with Tobra. I am also on Vanco.

While cf is progressive and most of us will have more IVs as time goes on, I would reckon that most feel that Tobi has helped stave off progression at one time or another.

I now take Colistin to do the same thing as Tobi used to offer me. The ability to stave off PA infections. Once I'm hit though inhaled abx alone will no longer do the trick.

 

[LouLou]

Your post title makes it sound like you are trying to understand which is better but then your question doesn't correlate. Not sure what you are asking but here's my thoughts. I've had IV Tobra around 12 times in my life. I inhaled Tobra (out of glass vials) as a kid and then switched to Tobi when it was invented. I used it when I had a cough or every other month depending on the doctor I was working with's philosophy at the time. Around the age of 22 I became resistant to it (through sputum cultures) but it worked for another few years through inhalation. Now I take it around 2-3 times a year to increase synergistic effects of other abx I am on. Such as right now I am on Merrem which works better if paired with Tobra. I am also on Vanco.

While cf is progressive and most of us will have more IVs as time goes on, I would reckon that most feel that Tobi has helped stave off progression at one time or another.

I now take Colistin to do the same thing as Tobi used to offer me. The ability to stave off PA infections. Once I'm hit though inhaled abx alone will no longer do the trick.

 

[LouLou]

Your post title makes it sound like you are trying to understand which is better but then your question doesn't correlate. Not sure what you are asking but here's my thoughts. I've had IV Tobra around 12 times in my life. I inhaled Tobra (out of glass vials) as a kid and then switched to Tobi when it was invented. I used it when I had a cough or every other month depending on the doctor I was working with's philosophy at the time. Around the age of 22 I became resistant to it (through sputum cultures) but it worked for another few years through inhalation. Now I take it around 2-3 times a year to increase synergistic effects of other abx I am on. Such as right now I am on Merrem which works better if paired with Tobra. I am also on Vanco.

While cf is progressive and most of us will have more IVs as time goes on, I would reckon that most feel that Tobi has helped stave off progression at one time or another.

I now take Colistin to do the same thing as Tobi used to offer me. The ability to stave off PA infections. Once I'm hit though inhaled abx alone will no longer do the trick.

 

[LouLou]

Your post title makes it sound like you are trying to understand which is better but then your question doesn't correlate. Not sure what you are asking but here's my thoughts. I've had IV Tobra around 12 times in my life. I inhaled Tobra (out of glass vials) as a kid and then switched to Tobi when it was invented. I used it when I had a cough or every other month depending on the doctor I was working with's philosophy at the time. Around the age of 22 I became resistant to it (through sputum cultures) but it worked for another few years through inhalation. Now I take it around 2-3 times a year to increase synergistic effects of other abx I am on. Such as right now I am on Merrem which works better if paired with Tobra. I am also on Vanco.

While cf is progressive and most of us will have more IVs as time goes on, I would reckon that most feel that Tobi has helped stave off progression at one time or another.

I now take Colistin to do the same thing as Tobi used to offer me. The ability to stave off PA infections. Once I'm hit though inhaled abx alone will no longer do the trick.

 

[LouLou]

Your post title makes it sound like you are trying to understand which is better but then your question doesn't correlate. Not sure what you are asking but here's my thoughts. I've had IV Tobra around 12 times in my life. I inhaled Tobra (out of glass vials) as a kid and then switched to Tobi when it was invented. I used it when I had a cough or every other month depending on the doctor I was working with's philosophy at the time. Around the age of 22 I became resistant to it (through sputum cultures) but it worked for another few years through inhalation. Now I take it around 2-3 times a year to increase synergistic effects of other abx I am on. Such as right now I am on Merrem which works better if paired with Tobra. I am also on Vanco.
<br />
<br />While cf is progressive and most of us will have more IVs as time goes on, I would reckon that most feel that Tobi has helped stave off progression at one time or another.
<br />
<br />I now take Colistin to do the same thing as Tobi used to offer me. The ability to stave off PA infections. Once I'm hit though inhaled abx alone will no longer do the trick.

 

[kitomd21]

Thanks for your response. I understand both are forms of Tobramycin, in addition, I'm gathering that the IV form may be in line when hospitalized (i.e., inhaled isn't effective enough). However, I was wondering if the inhaled form has decreased the need for hospital admissions because it truly keeps PA at bay. Perhaps I made my post even more confusing now! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[kitomd21]

Thanks for your response. I understand both are forms of Tobramycin, in addition, I'm gathering that the IV form may be in line when hospitalized (i.e., inhaled isn't effective enough). However, I was wondering if the inhaled form has decreased the need for hospital admissions because it truly keeps PA at bay. Perhaps I made my post even more confusing now! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[kitomd21]

Thanks for your response. I understand both are forms of Tobramycin, in addition, I'm gathering that the IV form may be in line when hospitalized (i.e., inhaled isn't effective enough). However, I was wondering if the inhaled form has decreased the need for hospital admissions because it truly keeps PA at bay. Perhaps I made my post even more confusing now! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[kitomd21]

Thanks for your response. I understand both are forms of Tobramycin, in addition, I'm gathering that the IV form may be in line when hospitalized (i.e., inhaled isn't effective enough). However, I was wondering if the inhaled form has decreased the need for hospital admissions because it truly keeps PA at bay. Perhaps I made my post even more confusing now! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[kitomd21]

Thanks for your response. I understand both are forms of Tobramycin, in addition, I'm gathering that the IV form may be in line when hospitalized (i.e., inhaled isn't effective enough). However, I was wondering if the inhaled form has decreased the need for hospital admissions because it truly keeps PA at bay. Perhaps I made my post even more confusing now! <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[LouLou]

Ah yes! I think I am living proof. I wasn't hospitalized until I was 18 other than through my diagnosis as a young child. Without Tobi (and Pulmozyme) I do think I would have been hospitalized earlier. Hence, the increasing life expectancy.

I understand what you are looking for and I hope someone can say it... "I used to be hospitalized more often before Tobi was created." But the fact is they were probably doing what I was doing (inhaling Tobra off label) or there disease has progressed in these 20 years aside from whether they had Tobi or not.

There are so many variables in cf that it is very difficult to say that one method of care works wonders. All we know is that what we are doing is increasing life expectancy...little by little. Hopefully one day the big life changing drug will come. Until then we must preserve our lung function because it won't fix the damage that has been done.

 

[LouLou]

Ah yes! I think I am living proof. I wasn't hospitalized until I was 18 other than through my diagnosis as a young child. Without Tobi (and Pulmozyme) I do think I would have been hospitalized earlier. Hence, the increasing life expectancy.

I understand what you are looking for and I hope someone can say it... "I used to be hospitalized more often before Tobi was created." But the fact is they were probably doing what I was doing (inhaling Tobra off label) or there disease has progressed in these 20 years aside from whether they had Tobi or not.

There are so many variables in cf that it is very difficult to say that one method of care works wonders. All we know is that what we are doing is increasing life expectancy...little by little. Hopefully one day the big life changing drug will come. Until then we must preserve our lung function because it won't fix the damage that has been done.

 

[LouLou]

Ah yes! I think I am living proof. I wasn't hospitalized until I was 18 other than through my diagnosis as a young child. Without Tobi (and Pulmozyme) I do think I would have been hospitalized earlier. Hence, the increasing life expectancy.

I understand what you are looking for and I hope someone can say it... "I used to be hospitalized more often before Tobi was created." But the fact is they were probably doing what I was doing (inhaling Tobra off label) or there disease has progressed in these 20 years aside from whether they had Tobi or not.

There are so many variables in cf that it is very difficult to say that one method of care works wonders. All we know is that what we are doing is increasing life expectancy...little by little. Hopefully one day the big life changing drug will come. Until then we must preserve our lung function because it won't fix the damage that has been done.

 

[LouLou]

Ah yes! I think I am living proof. I wasn't hospitalized until I was 18 other than through my diagnosis as a young child. Without Tobi (and Pulmozyme) I do think I would have been hospitalized earlier. Hence, the increasing life expectancy.

I understand what you are looking for and I hope someone can say it... "I used to be hospitalized more often before Tobi was created." But the fact is they were probably doing what I was doing (inhaling Tobra off label) or there disease has progressed in these 20 years aside from whether they had Tobi or not.

There are so many variables in cf that it is very difficult to say that one method of care works wonders. All we know is that what we are doing is increasing life expectancy...little by little. Hopefully one day the big life changing drug will come. Until then we must preserve our lung function because it won't fix the damage that has been done.

 

[LouLou]

Ah yes! I think I am living proof. I wasn't hospitalized until I was 18 other than through my diagnosis as a young child. Without Tobi (and Pulmozyme) I do think I would have been hospitalized earlier. Hence, the increasing life expectancy.
<br />
<br />I understand what you are looking for and I hope someone can say it... "I used to be hospitalized more often before Tobi was created." But the fact is they were probably doing what I was doing (inhaling Tobra off label) or there disease has progressed in these 20 years aside from whether they had Tobi or not.
<br />
<br />There are so many variables in cf that it is very difficult to say that one method of care works wonders. All we know is that what we are doing is increasing life expectancy...little by little. Hopefully one day the big life changing drug will come. Until then we must preserve our lung function because it won't fix the damage that has been done.