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Tobi

A

alegris

Guest
I rarely do inhaled Tobi but have been battling more frequent lung infections so thought it was time to start a round. The first few days of Tobi are fine, it feels like things are breaking up and my cough is more productive. Then about 2 weeks into it, I start getting incredibly wheezy and my chest gets so tight it feels like I'm breathing through a straw. Today I found it difficult to walk around the office without gasping for breath. Then walking to my car in the cold caused a coughing fit and my mucous was tinged with blood. What gives? I also have asthma but frig, this really sucks! I really want to get through the full 28 days but it honestly keeps getting worse and worse until I either have to stop or just deal with gasping for breath every second. I really just want to vent about how annoying this is, but is there anyone else out there who has this problem? What do you do for it? Is Cayston any better?
Thanks!
 
A

alegris

Guest
I rarely do inhaled Tobi but have been battling more frequent lung infections so thought it was time to start a round. The first few days of Tobi are fine, it feels like things are breaking up and my cough is more productive. Then about 2 weeks into it, I start getting incredibly wheezy and my chest gets so tight it feels like I'm breathing through a straw. Today I found it difficult to walk around the office without gasping for breath. Then walking to my car in the cold caused a coughing fit and my mucous was tinged with blood. What gives? I also have asthma but frig, this really sucks! I really want to get through the full 28 days but it honestly keeps getting worse and worse until I either have to stop or just deal with gasping for breath every second. I really just want to vent about how annoying this is, but is there anyone else out there who has this problem? What do you do for it? Is Cayston any better?
Thanks!
 
A

alegris

Guest
I rarely do inhaled Tobi but have been battling more frequent lung infections so thought it was time to start a round. The first few days of Tobi are fine, it feels like things are breaking up and my cough is more productive. Then about 2 weeks into it, I start getting incredibly wheezy and my chest gets so tight it feels like I'm breathing through a straw. Today I found it difficult to walk around the office without gasping for breath. Then walking to my car in the cold caused a coughing fit and my mucous was tinged with blood. What gives? I also have asthma but frig, this really sucks! I really want to get through the full 28 days but it honestly keeps getting worse and worse until I either have to stop or just deal with gasping for breath every second. I really just want to vent about how annoying this is, but is there anyone else out there who has this problem? What do you do for it? Is Cayston any better?
<br />Thanks!
 
T

traxster

New member
My son just started Tobi and he also has asthma. The doctor told us that we needed to give him albuterol 15 minutes before the Tobi because it can cause bronchiospasms. So far, we haven't seen any issues. I'm sorry you are having a rough time.
 
T

traxster

New member
My son just started Tobi and he also has asthma. The doctor told us that we needed to give him albuterol 15 minutes before the Tobi because it can cause bronchiospasms. So far, we haven't seen any issues. I'm sorry you are having a rough time.
 
T

traxster

New member
My son just started Tobi and he also has asthma. The doctor told us that we needed to give him albuterol 15 minutes before the Tobi because it can cause bronchiospasms. So far, we haven't seen any issues. I'm sorry you are having a rough time.
 
J

Jeana

New member
I had a really difficult time tolerating TOBI as well. Cayston, however, has caused me no difficulties. I would talk to your doctor about trying it. It's so great to have another option.
 
J

Jeana

New member
I had a really difficult time tolerating TOBI as well. Cayston, however, has caused me no difficulties. I would talk to your doctor about trying it. It's so great to have another option.
 
J

Jeana

New member
I had a really difficult time tolerating TOBI as well. Cayston, however, has caused me no difficulties. I would talk to your doctor about trying it. It's so great to have another option.
 
M

missT

Member
No Tobi for me either. I cannot tolerate it....never been able to.I have had the same exact reaction to the drug. I tried Cayston for two months and did not see a difference. I def would rec you get off of it.
 
M

missT

Member
No Tobi for me either. I cannot tolerate it....never been able to.I have had the same exact reaction to the drug. I tried Cayston for two months and did not see a difference. I def would rec you get off of it.
 
M

missT

Member
No Tobi for me either. I cannot tolerate it....never been able to.I have had the same exact reaction to the drug. I tried Cayston for two months and did not see a difference. I def would rec you get off of it.
 
A

AnnieT

New member
This is so funny you posted this! I jst started mine again tonight because im feeling under the weather and I agree...this doesn't work well for me.
 
A

AnnieT

New member
This is so funny you posted this! I jst started mine again tonight because im feeling under the weather and I agree...this doesn't work well for me.
 
A

AnnieT

New member
This is so funny you posted this! I jst started mine again tonight because im feeling under the weather and I agree...this doesn't work well for me.
 
S

sarabeth87

New member
EVERYTIME I start Tobi, I get sick. I'll feel like I'm getting an infection and usually have to stop it to start IVs. I tell my doctor this ALL the time, but I guess she thinks I'm just making it up. In fact I started it Sunday and I had just finished my first monyh of cayston and was feeling great. Well, within 2 days on Tobi, I started running fevers and just feeling horrible, so I've stopped taking it. My doctor wants me to continue, but I just don't want to.
 
S

sarabeth87

New member
EVERYTIME I start Tobi, I get sick. I'll feel like I'm getting an infection and usually have to stop it to start IVs. I tell my doctor this ALL the time, but I guess she thinks I'm just making it up. In fact I started it Sunday and I had just finished my first monyh of cayston and was feeling great. Well, within 2 days on Tobi, I started running fevers and just feeling horrible, so I've stopped taking it. My doctor wants me to continue, but I just don't want to.
 
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