Touchy subject

[ladybug]

Sometimes, I think people with CF live BETTER lives cause they think that way. They want to experience everything while they can. "Normal" people often get bogged down with irrelevant things and don't take time to travel, play, etc. cause they're so concerned with being successful so they can retire comfortably. In a way, I think this is a blessing... this outlook we have.


<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Faust]

Don't mind me. I've had classes in crime scene investigation. I'm just dusting for prints. You guys were right. This one was a doozy. If verbal jabs morphed into common psychological references in their size, this good sir, would be a ladybug!

 

[Faust]

BTW my post had nothing to do with the poster above me. I didn't notice their name with that reference...Quite odd.


/twilight zone music

 

[anonymous]

Well as a parent of a CFer, I can totally relate to wanting to shelter my daughter from every harmful thing, i am always worried... the water...the dirt ...EVERYTHING!!!! Do i think that is what is best for my daughter? NO! As a parent, knowing that one day your child may die from CF is the hardest thing that i have ever known and felt... would i have not had my child? Not in a million years!! We are all going to die and we have no control over it....but as a parent knowing that my daughter may die i want to do everything in my control to not let that happen. Kinda weird because i feel like i have a little control over this matter when actually i am still not in control...it is not up to me!

My daughter loves to go swimming, she loves indoor/outdoor waterparks and our local swimming pool. She loves to go hiking and play in our woods, she loves frogs and she will find them and play with them and even try to keep them. Kait was also a thumb sucker for 9 years of her life...now that was a big concern to me because everything that she touched went in her mouth... no matter how much preaching i did on handwashing.. she just quit the thumb sucking thing and she does do a better job of washing her hands but she still bites her nails....REALLY BAD. we are working on that now.

As much as i would love to put my daughter in a bubble and keep her healthy and alive forever... i know that this is not what she wants nor will she ever be happy and i want her to be the happiest little girl in the world. She deserves to be happy just like every other person with CF. At the present time my daughter is very healthy and is doing great...if she were really sick, would i still feel this way? i do not know! I can only hope so because i want her to enjoy everything that life has to offer.

I am not taking sides... because i cant...i totally understand both!

Kaitsmom<img src="i/expressions/rose.gif" border="0">

 

[Scarlett81]

Well I'm not a parent yet, so maybe I'd feel differently if I was. But, as a kid, I went to every water park in creation. Swam in ponds, hotel pools, made mud pies in the garden. Maybe even ate them too. I'm alive. And I had alot of fun.

Maybe there's more organisms to worry about today, I don't know. I'm kinda on the fence here, but I generally I don't think you should shelter your kids from all the normal kid stuff.

 

[dyza]

as parents to a CFboy, we find this forum invaluble as to how to
best treat or how not to treat our son.You take from it what you
want ,if one person has experience one way, then you can always
find another with exp' the other way, such is life nobodies the
same that is why this site is so good.Even when an
argument  develops, and yes i joined in,all it shows is
that there are a lot of people who either care about themselves, or
care about someone else.<br>
<br>
Craig and Liz

 

[ladybug]

Funny you should mention thumb-sucking... I <b>still</b> bite my nails nearly to the cuticles, even though it is probably one of the worst things I can do to "taunt" my immune system. And, I don't wash my hands before I stick them in my mouth.... Ew!

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[anonymous]

My kids have always gone fishing in ponds, played in the sandbox, jumped in mud puddles and gone to waterparks....and had a great time.

That being said, three years ago they were diagnosed with a RARE mycobacterium, in fact it had not been identified yet. SCARY STUFF!!!!!

It is environmental, so it could have come from the pond, the sandbox, the mud puddles, the waterparks OR

our home drinking water, the veggies from supermarket or any other place. Who knows? Do we feel guilty for exposing them to all of the things that could have gotten them sick, YES! Would we change anything we did? NO!

Bugs are everywhere, some of us are luckier than others.

Jane

 

[Ratatosk]

I'm still standing my ground on hot tubs -- nasty article a few weeks ago in the paper about the amount of bacteria compared to what was in swimming pools made my stomach churn.

Heck, I don't even know if I'LL ever go into another hot tub. We used to have one before DS was diagnosed and I know what a bugger those things are to clean and how it can get nasty they can get if the water stagnates.

Liza

 

[anonymous]

I remember a study where they found more "nasty bugs" in refrigerators than on toilets...

Uli,43,Germany

 

[anonymous]

i didnt think young kids were allowed in public (hotel) hot tubs anyway. personal hot tubs could be kept clean if mantained properly.

 

[Ratatosk]

I believe the University of Arizona did a study about bathrooms and kitchens and most bathrooms were much cleaner than kitchens. They showed a family cutting up chicken in the kitchen and wiping up liquid with the dish rag -- basically smearing the chicken goo all over the counters, sinks...

Most hotels have signs indicating children shouldn't be allowed in hot tubs. Our personal hot tub was kept fairly clean -- but we didn't use it a lot in the summer, plus the heater didn't kick in as much, so the water didn't aerate as much, so it tended to stagnate in the warmer temps, things would grow underneath the cover and the filter. The article I read in the paper talked about stuff (bacteria) getting built up in the jets and pipes.

Liza

 

[Brad]

I am taking my ball and going home, so there !!!!!!


Really ,,,,can't we all just get along !!!!!!


Cf is differen't for every one who has, even in my
family, 4 of us with Cf, all defferent, I was a sports nut from the time I was 11. I think that is why I am still here.

 

[Faust]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Brad</b></i>

I am taking my ball and going home, so there !!!!!!





Really ,,,,can't we all just get along !!!!!!




</end quote></div>


No. Because apparently, not only do people get CF, they get mental infirmities as well. It seems to be quite related.