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TPN

J

JennifersHope

New member
Hi,

A quick update.. My intestines have improved in some areas and not well in others.. Since they don't want to do surgery on me right now.. they are putting me on TPN.. I am getting a PICC line put in today and then since I have not eaten in 9 days they decided to do some TPN.

They are hoping that I am able to start clearing my intestines soon because if they were to do surgery today. They would have to do a colostomy for that would be reversible in a few weeks but still a COLOSTOMY FOR PETES SAKE... I can't deal with this...

I am so overwhelmed.. In the past one month, I have had heck break out at work, been to two funerals of ppl I loved very much, or the son of someone I love very much.. and Now I have ANOTHER< STinken disease that is going to be something I have to deal with for the rest of my life... and while I am on the subject of whining.. At the hospital I am at, every time a baby is born they play a baby song... Every time I here this song, it makes me burst in to tears.. I don't want to face the fact that I can't have any children Naturally.. All I wanted my whole life is to be a mommy, to be pregnant and nurse my kids.. I am having such a hard time dealing with all this stuff.

I am very lucky that I have had so many visitors come and see me, or call me.. It picks my spirits up but I have been here so long already people can't just keep coming to see me.

Today I am getting loaded up on DVDs to watch, and new PJS which should help....
I am the most private person I know when it comes to bathroom issues and every hour it seems like a doctor is coming in to talk to me about my bathroom stuff..

I have to do enemas which they told me may cause severe pain but they have to try to see if they can clear me out a little or else, IF they have to do surgery I am going to end up with a colostomy because they won't be able to reattach me..


UGGGG

OH right, MY TPN question.. Have any of you been on it before? DId it mess with your blood sugar? I am not in the mood to get a PICC line in..

Can someone come break me out of jail..PLease


Jennifer
 
C

coltsfan715

New member
Oh Jenn,
My heart is breaking for you that you are still experiencing this with your health on top of everything else. I do not have experience with TPN, so I can not give advice on that persay. I will say though if it contains dextrose or any sugar substance it will probably effect your blood sugar some, but to what degree I am not sure. When I have been hooked to ANY IV fluid/med. with sugar in it my blood sugar increases.

I hope that things start to get better and wanted you to know I will be thinking of and praying for you. Try not to worry to much about the PICC, hopefully the stuff that they give you, through the PICC, will help you to get over this hurdle.

Take Care,
Lindsey
 
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thelizardqueen

New member
Jen I'm so sorry to hear that you're going through all of this. It breaks my heart. But what doesn't kill us, makes us stronger, and you are one tough chicky! You're in my thoughts all the time. I hope that you get better very soon!
 
L

lightNlife

New member
My goodness! I can't even come up with the right words to let you
know how much I wish this wasn't happening to you. I'm so sorry for
the hurt you're experiencing both physically and emotionally. It's
understandable that you feel like you can't deal with all that's
going on. Even though we've never met I wish I could be there to
cry with you, me angry with you, and give you a hug when the words
stop.<br>
<br>
As to the TPN question, yes, it will mess with your blood sugar. On
the positive side, it really does help put things back on track in
the nutrition department. When I was on it I was only about 80
pounds, and I managed to put on about 30 in a period of 6
weeks and keep them on for years without a whole lot of
effort. One of the other things I noticed with the TPN was that I
could taste it. That's probably because I have a portacath, so all
my meds I'm able to taste to some degree. Anywho, with the TPN, I
found that if I snacked on animal crackers or graham crackers it
kept me from feeling gross. Sucking on a peppermint helped too.
<br>
<br>
I also have experience with the colostomy stuff. It's a challenge,
that's for sure; especially for someone who is very private about
bathroom stuff (as you are).<br>
<br>
I hope the new PJs help you feel a bit more comfortable. I highly
recommend finding a pair that's got a drawstring waistband and a
button-down top. That will be the most comfortable for moving
around with a PICC line and possibly the other junk too.<br>
<br>
You will be in my thoughts. This stuff totally sucks, I know.
 
J

Jane

Digital opinion leader
Oh yuck for you Jen. Why can't good things happen for a change? I want to be in charge of handing out good things for a while.

I have no personal experience with TPN although my neighbor w/ Crones had a success. At what point do they recommend it? Is it a constant IV? Just curious.

I hope things turn around soon.

What's up with the baby song? While that's a cute idea for the parents, the rest of the place, including people who have lost babies or can't have babies have to suffer. That's kinda weird.
 
R

Ratatosk

Administrator
Staff member
DS was on TPN when he had surgery when he was a day old. Can't remember off the top of my head if they tested his blood sugar. I DO recall concerns with liver function --- sorry, just another thing for you to worry about <img src="i/expressions/face-icon-small-sad.gif" border="0">

Hope you're feeling better and will be on the road to recovery. L
 
J

JazzysMom

New member
I dont have any words of wisdome about any of your current troubles, but I have lots of love & strength to forward to you. Ready.....CATCH....xoxoxoxoxoxoxoxoxoxoxoxxxxxxxxxxxxxxxxxoooooooooxxxxxxxxxxxxxxxxxxxxoooooooooooooooooooooxxxxxxxxxxxxxxxxxxooooooooooooooxxxxxxxxxxxxxxxxxxxxxxxooooooooooooooooooooooooooooooooooxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxoooooooooooooooooooooooooooo
 
A

anonymous

New member
My daughter was in TPN when she was a newborn due to surgery, They definately need to check your blood sugar 4 times a day. My daughter did fine with it, she was so little at the time. She did not have any high blood sugars that i know of. Sometimes they will give you insulin if your sugar is high while on TPN.

Hope you feel better.

Rebecca Mom to SAmmy 8 no CF and MAggie 3 1/2 with CF
 
M

marcijo

Guest
I was on TPN for 2 months (12 hours at night) and noticed no difference in how I felt. I know they took my blood every week to test my sugars, etc....but it didn't affect me at all. I was on it because I was pregnant with my son and not gaining weight. It definitely worked and I gained 20lbs in those 2 months.

The thing I hated most was the picc line (my first one!), the TPN was easy!

Good luck-if you have to get TPN I'm sure it will be fine. At first they have you on it for 24 hours to see how your body does on it, and then the back it off so they can give it to you in one 12 hour dose.
 
S

Scarlett81

New member
I'm so sorry you are in. I wish I could say something to help you. I'm just very sorry-this is overwhelming. All I can say don't think about things like babies, or songs being sung. If it happens again, turn your TV up loud and focus on what you have to do to get out of there.
 
D

Diane

New member
OH Jennifer, you poor girl. Gosh you have been thru a lot lately. Stay strong, this will pass and better days are ahead. We all have to get thru the bad to get to the good. I'll keep you in my prayers <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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anonymous

New member
Wikipedia has some basic information. TPN stands for total parenteral nutrition.

<a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Total_parenteral_nutrition">Wikipedia Basic ARticle</a>
 
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