transplant question

[Lizzie04]

Hi everyone. I was on the phone this afternoon talking to my transplant coordinator up at the Cleveland clinic. I'm kind of jumpy about this whole idea, and even though I've talked to my docs, parents, etc. about it I still have a lot of questions and what ifs. I would love any comments, suggestions, etc. about how to deal with the transplant, what it's actually like (that would be helpful!), etc. If you've been to the Cleveland clinic, that would be even better!!! My email is emdeardo@yahoo.com if you'd like to get in touch with me personally. Thanks so much...I'm really kind of nervous about this. Emily

 

[Lois]

i can't help you with that, cos i haven't had a transplant myself... but i have a question: how did the doctors decide that you need a transplant? i mean, what were the criteria [if any]?

 

[Lizzie04]

I'm a bit different from the general critieria. My doc wants me to get a transplant b/c I have a way of contracting weird bugs that really knock out my system, and I tend to recontract them pretty frequently. My FEV1s and o2 levels probably aren't enough to qualify me (I don't use oxygen...my stats are about 95-96, and my FEV is now about 32, 35), but the fact that I get weird things probably is.

 

[Lois]

i see. good luck with it, girl <img src="i/expressions/face-icon-small-smile.gif" border="0"> i was asking because i could never track down a pattern in the criteria, and it's sort of a "how low can you go" question. i've heard about having FEV1 of 30%, but nothing else. o2 levels of 95-96 are awesome <img src="i/expressions/face-icon-small-smile.gif" border="0"> i have the same levels, it seems to be the only area i don't have problems with <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[anonymous]

hi emily,I dunno if I can be much help, I am still new at the transplant deal myself, so I havent had a long time or much experince yet...If you have some specific questions that I might be able to help with then I am more than willing to keep in touch....One piece of advise is to have heaps and heaps of support, you'll need it....a couple of great sites are as followed http://groups.msn.com/HeartLungTransplantSupportGroup/_messageboard.msnwwww.transplantbuddies.comthey have a vast amount of information that I found beneficial...just wish I had found it before my tx..good luck with everything. and if I can help in anyway, feel free to ask...my email addy isfa11in_ange1@yahoo.com

 

[anonymous]

Can a patient with CF receive on good lung for transplant from their mother who is the same O neg blood type?

 

[RadChevy]

Hi, Living Lung Lobar is what you are referring to.For living lobar, you need 2 living people to each donate a lobe. You have 3 lobes on your right side and 2 on the left. The donors do not donate an entire lung. The donors have to be in good health, stand physical and mental testing and also be the right age, height and the same blood type as the recipient.Hope that helps.Joanne Schumluckylungsforjo@aol.com