What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

tune-up

Skye

New member
I am just curious how long you guys usually do a "proactive tune-up". I have had some sinus issues and had a minor lung bleed a few weeks ago.....a few points loss on my FEV1; but, I just felt I needed a tune-up. I felt I was just having a hard time staying well.

I have never done a tune-up for less than 3 or 4 weeks; but, I am usually pretty sick when I do them or having more symptoms. I think my NEW doctor who I am not totally comfortable with is going to have me stop on Wed. That puts me at a little over 2 weeks.....2 weeks and 2 days. Should I feel comfortable with that. This was kind of new territory for me with it being more proactive. FYI...my FEV1 doesn't usually show a significant increase until I am done with abx and off for about a week. I had a couple of point gain last week on them and this week I am doubting there will be much of a difference. So FEV1 is not always the best indicator for me.

thanks guys!
 

Skye

New member
I am just curious how long you guys usually do a "proactive tune-up". I have had some sinus issues and had a minor lung bleed a few weeks ago.....a few points loss on my FEV1; but, I just felt I needed a tune-up. I felt I was just having a hard time staying well.

I have never done a tune-up for less than 3 or 4 weeks; but, I am usually pretty sick when I do them or having more symptoms. I think my NEW doctor who I am not totally comfortable with is going to have me stop on Wed. That puts me at a little over 2 weeks.....2 weeks and 2 days. Should I feel comfortable with that. This was kind of new territory for me with it being more proactive. FYI...my FEV1 doesn't usually show a significant increase until I am done with abx and off for about a week. I had a couple of point gain last week on them and this week I am doubting there will be much of a difference. So FEV1 is not always the best indicator for me.

thanks guys!
 

Skye

New member
I am just curious how long you guys usually do a "proactive tune-up". I have had some sinus issues and had a minor lung bleed a few weeks ago.....a few points loss on my FEV1; but, I just felt I needed a tune-up. I felt I was just having a hard time staying well.

I have never done a tune-up for less than 3 or 4 weeks; but, I am usually pretty sick when I do them or having more symptoms. I think my NEW doctor who I am not totally comfortable with is going to have me stop on Wed. That puts me at a little over 2 weeks.....2 weeks and 2 days. Should I feel comfortable with that. This was kind of new territory for me with it being more proactive. FYI...my FEV1 doesn't usually show a significant increase until I am done with abx and off for about a week. I had a couple of point gain last week on them and this week I am doubting there will be much of a difference. So FEV1 is not always the best indicator for me.

thanks guys!
 

Skye

New member
I am just curious how long you guys usually do a "proactive tune-up". I have had some sinus issues and had a minor lung bleed a few weeks ago.....a few points loss on my FEV1; but, I just felt I needed a tune-up. I felt I was just having a hard time staying well.

I have never done a tune-up for less than 3 or 4 weeks; but, I am usually pretty sick when I do them or having more symptoms. I think my NEW doctor who I am not totally comfortable with is going to have me stop on Wed. That puts me at a little over 2 weeks.....2 weeks and 2 days. Should I feel comfortable with that. This was kind of new territory for me with it being more proactive. FYI...my FEV1 doesn't usually show a significant increase until I am done with abx and off for about a week. I had a couple of point gain last week on them and this week I am doubting there will be much of a difference. So FEV1 is not always the best indicator for me.

thanks guys!
 

Skye

New member
I am just curious how long you guys usually do a "proactive tune-up". I have had some sinus issues and had a minor lung bleed a few weeks ago.....a few points loss on my FEV1; but, I just felt I needed a tune-up. I felt I was just having a hard time staying well.
<br />
<br />I have never done a tune-up for less than 3 or 4 weeks; but, I am usually pretty sick when I do them or having more symptoms. I think my NEW doctor who I am not totally comfortable with is going to have me stop on Wed. That puts me at a little over 2 weeks.....2 weeks and 2 days. Should I feel comfortable with that. This was kind of new territory for me with it being more proactive. FYI...my FEV1 doesn't usually show a significant increase until I am done with abx and off for about a week. I had a couple of point gain last week on them and this week I am doubting there will be much of a difference. So FEV1 is not always the best indicator for me.
<br />
<br />thanks guys!
 

Tumbleweed

New member
i have never really done a proactive tuneup. i have done tune-ups and sometimes i feel much better than others, but they almost always last four weeks. and even then i don't feel better when it's done. i realize that most people are probably not like this, and they used to be a little more effective on me back in the day, but that is my experience. so even while feeling decent my guess for me would be 3-4 weeks.

don't let the new doc stop you too soon if your lungs still feel the same. i have stopped at two weeks way to may times only to end up back at the hosp. a week later. then i have to start all over again from scratch.... i would go with how your lungs feel ( i know it can be hard to tell)

urgh... so frustrating....
 

Tumbleweed

New member
i have never really done a proactive tuneup. i have done tune-ups and sometimes i feel much better than others, but they almost always last four weeks. and even then i don't feel better when it's done. i realize that most people are probably not like this, and they used to be a little more effective on me back in the day, but that is my experience. so even while feeling decent my guess for me would be 3-4 weeks.

don't let the new doc stop you too soon if your lungs still feel the same. i have stopped at two weeks way to may times only to end up back at the hosp. a week later. then i have to start all over again from scratch.... i would go with how your lungs feel ( i know it can be hard to tell)

urgh... so frustrating....
 

Tumbleweed

New member
i have never really done a proactive tuneup. i have done tune-ups and sometimes i feel much better than others, but they almost always last four weeks. and even then i don't feel better when it's done. i realize that most people are probably not like this, and they used to be a little more effective on me back in the day, but that is my experience. so even while feeling decent my guess for me would be 3-4 weeks.

don't let the new doc stop you too soon if your lungs still feel the same. i have stopped at two weeks way to may times only to end up back at the hosp. a week later. then i have to start all over again from scratch.... i would go with how your lungs feel ( i know it can be hard to tell)

urgh... so frustrating....
 

Tumbleweed

New member
i have never really done a proactive tuneup. i have done tune-ups and sometimes i feel much better than others, but they almost always last four weeks. and even then i don't feel better when it's done. i realize that most people are probably not like this, and they used to be a little more effective on me back in the day, but that is my experience. so even while feeling decent my guess for me would be 3-4 weeks.

don't let the new doc stop you too soon if your lungs still feel the same. i have stopped at two weeks way to may times only to end up back at the hosp. a week later. then i have to start all over again from scratch.... i would go with how your lungs feel ( i know it can be hard to tell)

urgh... so frustrating....
 

Tumbleweed

New member
i have never really done a proactive tuneup. i have done tune-ups and sometimes i feel much better than others, but they almost always last four weeks. and even then i don't feel better when it's done. i realize that most people are probably not like this, and they used to be a little more effective on me back in the day, but that is my experience. so even while feeling decent my guess for me would be 3-4 weeks.
<br />
<br />don't let the new doc stop you too soon if your lungs still feel the same. i have stopped at two weeks way to may times only to end up back at the hosp. a week later. then i have to start all over again from scratch.... i would go with how your lungs feel ( i know it can be hard to tell)
<br />
<br />urgh... so frustrating....
 
S

semperfiohana

Guest
my tune ups are normally two weeks. there's only been i think once that i can think of that it went on for 3 weeks.
 
S

semperfiohana

Guest
my tune ups are normally two weeks. there's only been i think once that i can think of that it went on for 3 weeks.
 
S

semperfiohana

Guest
my tune ups are normally two weeks. there's only been i think once that i can think of that it went on for 3 weeks.
 
S

semperfiohana

Guest
my tune ups are normally two weeks. there's only been i think once that i can think of that it went on for 3 weeks.
 
S

semperfiohana

Guest
my tune ups are normally two weeks. there's only been i think once that i can think of that it went on for 3 weeks.
 

pnhuffman

New member
Austins tuneups usually last 2 weeks. The most was 16 days and that was because he cultured pseudo and the doc switched abx and the 2 weeks started from then.
 

pnhuffman

New member
Austins tuneups usually last 2 weeks. The most was 16 days and that was because he cultured pseudo and the doc switched abx and the 2 weeks started from then.
 

pnhuffman

New member
Austins tuneups usually last 2 weeks. The most was 16 days and that was because he cultured pseudo and the doc switched abx and the 2 weeks started from then.
 

pnhuffman

New member
Austins tuneups usually last 2 weeks. The most was 16 days and that was because he cultured pseudo and the doc switched abx and the 2 weeks started from then.
 

pnhuffman

New member
Austins tuneups usually last 2 weeks. The most was 16 days and that was because he cultured pseudo and the doc switched abx and the 2 weeks started from then.
 
Top