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Tune ups

AnD

New member
For me, I know I need a tune up when I have an increased cough, especially at night, the color is worse, have more spells of SOB, and Tobi or Colistin doesn't make a big improvement (if any). I don't usually lose weight (mostly pancreatic sufficent), but if I have both lung and weight symptoms, I am pretty bad.

I usually go in for a few days (24 hours if I can get a picc line pronto <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and then go home, as I am one who always seems to catch something else when I am there, and I have mild scoliosis, so the hospital beds are horrid for me (at home, I have 2 layers of regular foam, and 3 memory foam layers on my bed, to keep my joints from aching and my arms from "going to sleep" ).

I have learned since I have had my daughter that if I am going to get the most out of home IVs, I have to let other people do for me, so about all I do is cook dinner when I am doing IVs- my mom or MIL does my laundry and my housework, and they usually come over and do that during my middle of the day meds, and watch my daughter so I am not distracted while I do them. If I need a nap afterwards, they either watch her or take them home with them. And if needed, my husband hires a cleaning lady when I am sick.

My insurance pays better if I go home, too, so that is another reason I like home IVs. My doctor also knows that I am very compliant with my therapies, so it's not a problem there. It's a slightly big deal to get IVs (then again, so is a broken leg or something similar, and that lasts longer <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), but not as much of one as my daughter gets older, it seems.
 

AnD

New member
For me, I know I need a tune up when I have an increased cough, especially at night, the color is worse, have more spells of SOB, and Tobi or Colistin doesn't make a big improvement (if any). I don't usually lose weight (mostly pancreatic sufficent), but if I have both lung and weight symptoms, I am pretty bad.

I usually go in for a few days (24 hours if I can get a picc line pronto <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and then go home, as I am one who always seems to catch something else when I am there, and I have mild scoliosis, so the hospital beds are horrid for me (at home, I have 2 layers of regular foam, and 3 memory foam layers on my bed, to keep my joints from aching and my arms from "going to sleep" ).

I have learned since I have had my daughter that if I am going to get the most out of home IVs, I have to let other people do for me, so about all I do is cook dinner when I am doing IVs- my mom or MIL does my laundry and my housework, and they usually come over and do that during my middle of the day meds, and watch my daughter so I am not distracted while I do them. If I need a nap afterwards, they either watch her or take them home with them. And if needed, my husband hires a cleaning lady when I am sick.

My insurance pays better if I go home, too, so that is another reason I like home IVs. My doctor also knows that I am very compliant with my therapies, so it's not a problem there. It's a slightly big deal to get IVs (then again, so is a broken leg or something similar, and that lasts longer <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), but not as much of one as my daughter gets older, it seems.
 

AnD

New member
For me, I know I need a tune up when I have an increased cough, especially at night, the color is worse, have more spells of SOB, and Tobi or Colistin doesn't make a big improvement (if any). I don't usually lose weight (mostly pancreatic sufficent), but if I have both lung and weight symptoms, I am pretty bad.

I usually go in for a few days (24 hours if I can get a picc line pronto <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and then go home, as I am one who always seems to catch something else when I am there, and I have mild scoliosis, so the hospital beds are horrid for me (at home, I have 2 layers of regular foam, and 3 memory foam layers on my bed, to keep my joints from aching and my arms from "going to sleep" ).

I have learned since I have had my daughter that if I am going to get the most out of home IVs, I have to let other people do for me, so about all I do is cook dinner when I am doing IVs- my mom or MIL does my laundry and my housework, and they usually come over and do that during my middle of the day meds, and watch my daughter so I am not distracted while I do them. If I need a nap afterwards, they either watch her or take them home with them. And if needed, my husband hires a cleaning lady when I am sick.

My insurance pays better if I go home, too, so that is another reason I like home IVs. My doctor also knows that I am very compliant with my therapies, so it's not a problem there. It's a slightly big deal to get IVs (then again, so is a broken leg or something similar, and that lasts longer <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), but not as much of one as my daughter gets older, it seems.
 

AnD

New member
For me, I know I need a tune up when I have an increased cough, especially at night, the color is worse, have more spells of SOB, and Tobi or Colistin doesn't make a big improvement (if any). I don't usually lose weight (mostly pancreatic sufficent), but if I have both lung and weight symptoms, I am pretty bad.

I usually go in for a few days (24 hours if I can get a picc line pronto <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and then go home, as I am one who always seems to catch something else when I am there, and I have mild scoliosis, so the hospital beds are horrid for me (at home, I have 2 layers of regular foam, and 3 memory foam layers on my bed, to keep my joints from aching and my arms from "going to sleep" ).

I have learned since I have had my daughter that if I am going to get the most out of home IVs, I have to let other people do for me, so about all I do is cook dinner when I am doing IVs- my mom or MIL does my laundry and my housework, and they usually come over and do that during my middle of the day meds, and watch my daughter so I am not distracted while I do them. If I need a nap afterwards, they either watch her or take them home with them. And if needed, my husband hires a cleaning lady when I am sick.

My insurance pays better if I go home, too, so that is another reason I like home IVs. My doctor also knows that I am very compliant with my therapies, so it's not a problem there. It's a slightly big deal to get IVs (then again, so is a broken leg or something similar, and that lasts longer <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), but not as much of one as my daughter gets older, it seems.
 

AnD

New member
For me, I know I need a tune up when I have an increased cough, especially at night, the color is worse, have more spells of SOB, and Tobi or Colistin doesn't make a big improvement (if any). I don't usually lose weight (mostly pancreatic sufficent), but if I have both lung and weight symptoms, I am pretty bad.

I usually go in for a few days (24 hours if I can get a picc line pronto <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and then go home, as I am one who always seems to catch something else when I am there, and I have mild scoliosis, so the hospital beds are horrid for me (at home, I have 2 layers of regular foam, and 3 memory foam layers on my bed, to keep my joints from aching and my arms from "going to sleep" ).

I have learned since I have had my daughter that if I am going to get the most out of home IVs, I have to let other people do for me, so about all I do is cook dinner when I am doing IVs- my mom or MIL does my laundry and my housework, and they usually come over and do that during my middle of the day meds, and watch my daughter so I am not distracted while I do them. If I need a nap afterwards, they either watch her or take them home with them. And if needed, my husband hires a cleaning lady when I am sick.

My insurance pays better if I go home, too, so that is another reason I like home IVs. My doctor also knows that I am very compliant with my therapies, so it's not a problem there. It's a slightly big deal to get IVs (then again, so is a broken leg or something similar, and that lasts longer <img src="i/expressions/face-icon-small-wink.gif" border="0"> ), but not as much of one as my daughter gets older, it seems.
 

thelizardqueen

New member
The only time I ever go in for IVs is when I know I'm sick and can't take care of myself. Meaning, I have no energy, my cough is super productive, and I'm having a hard time breathing. I've only ever been on IVs three times now. Once when I was 16, a year and a half ago, and actually I just got out of hospital a week ago after being in for two.
 

thelizardqueen

New member
The only time I ever go in for IVs is when I know I'm sick and can't take care of myself. Meaning, I have no energy, my cough is super productive, and I'm having a hard time breathing. I've only ever been on IVs three times now. Once when I was 16, a year and a half ago, and actually I just got out of hospital a week ago after being in for two.
 

thelizardqueen

New member
The only time I ever go in for IVs is when I know I'm sick and can't take care of myself. Meaning, I have no energy, my cough is super productive, and I'm having a hard time breathing. I've only ever been on IVs three times now. Once when I was 16, a year and a half ago, and actually I just got out of hospital a week ago after being in for two.
 

thelizardqueen

New member
The only time I ever go in for IVs is when I know I'm sick and can't take care of myself. Meaning, I have no energy, my cough is super productive, and I'm having a hard time breathing. I've only ever been on IVs three times now. Once when I was 16, a year and a half ago, and actually I just got out of hospital a week ago after being in for two.
 

thelizardqueen

New member
The only time I ever go in for IVs is when I know I'm sick and can't take care of myself. Meaning, I have no energy, my cough is super productive, and I'm having a hard time breathing. I've only ever been on IVs three times now. Once when I was 16, a year and a half ago, and actually I just got out of hospital a week ago after being in for two.
 
M

MCGrad2006

Guest
Pretty much the same as what others have said. I ALWAYS go in house for the first few days to get the PICC placed and make sure that everything works well. They are able to draw blood for the Tobra levels and make sure that it is at a safe level...and then I can go home. I think they have only had to change my dose once...and I have been on those meds by IV about 15 times, so that means 15 times in the hosp.

Its really not a big deal to me anymore. The last time I was in was in December, right after I was done with student teaching and right after a friend has passed away, so I had a lot of things on my mind that were preventing my body from fightting the infection...plus while student teaching, I was NOT very compliant with my meds...<img src="i/expressions/face-icon-small-blush.gif" border="0">. When I come home, usually I can do anything I want to do, if I want to work, I can. BUT obv I am better off if I dont work, depends on my situation at the time though.
 
M

MCGrad2006

Guest
Pretty much the same as what others have said. I ALWAYS go in house for the first few days to get the PICC placed and make sure that everything works well. They are able to draw blood for the Tobra levels and make sure that it is at a safe level...and then I can go home. I think they have only had to change my dose once...and I have been on those meds by IV about 15 times, so that means 15 times in the hosp.

Its really not a big deal to me anymore. The last time I was in was in December, right after I was done with student teaching and right after a friend has passed away, so I had a lot of things on my mind that were preventing my body from fightting the infection...plus while student teaching, I was NOT very compliant with my meds...<img src="i/expressions/face-icon-small-blush.gif" border="0">. When I come home, usually I can do anything I want to do, if I want to work, I can. BUT obv I am better off if I dont work, depends on my situation at the time though.
 
M

MCGrad2006

Guest
Pretty much the same as what others have said. I ALWAYS go in house for the first few days to get the PICC placed and make sure that everything works well. They are able to draw blood for the Tobra levels and make sure that it is at a safe level...and then I can go home. I think they have only had to change my dose once...and I have been on those meds by IV about 15 times, so that means 15 times in the hosp.

Its really not a big deal to me anymore. The last time I was in was in December, right after I was done with student teaching and right after a friend has passed away, so I had a lot of things on my mind that were preventing my body from fightting the infection...plus while student teaching, I was NOT very compliant with my meds...<img src="i/expressions/face-icon-small-blush.gif" border="0">. When I come home, usually I can do anything I want to do, if I want to work, I can. BUT obv I am better off if I dont work, depends on my situation at the time though.
 
M

MCGrad2006

Guest
Pretty much the same as what others have said. I ALWAYS go in house for the first few days to get the PICC placed and make sure that everything works well. They are able to draw blood for the Tobra levels and make sure that it is at a safe level...and then I can go home. I think they have only had to change my dose once...and I have been on those meds by IV about 15 times, so that means 15 times in the hosp.

Its really not a big deal to me anymore. The last time I was in was in December, right after I was done with student teaching and right after a friend has passed away, so I had a lot of things on my mind that were preventing my body from fightting the infection...plus while student teaching, I was NOT very compliant with my meds...<img src="i/expressions/face-icon-small-blush.gif" border="0">. When I come home, usually I can do anything I want to do, if I want to work, I can. BUT obv I am better off if I dont work, depends on my situation at the time though.
 
M

MCGrad2006

Guest
Pretty much the same as what others have said. I ALWAYS go in house for the first few days to get the PICC placed and make sure that everything works well. They are able to draw blood for the Tobra levels and make sure that it is at a safe level...and then I can go home. I think they have only had to change my dose once...and I have been on those meds by IV about 15 times, so that means 15 times in the hosp.

Its really not a big deal to me anymore. The last time I was in was in December, right after I was done with student teaching and right after a friend has passed away, so I had a lot of things on my mind that were preventing my body from fightting the infection...plus while student teaching, I was NOT very compliant with my meds...<img src="i/expressions/face-icon-small-blush.gif" border="0">. When I come home, usually I can do anything I want to do, if I want to work, I can. BUT obv I am better off if I dont work, depends on my situation at the time though.
 

bittyhorse23

New member
I just got home from a tune up and basically it is what everyone just said. This is my first time doing home ivs and I am just glad I don't have to stay in my 12x12 room anymore LOL!!!

I knew I needed one because I was having a very hard time breathing. Everything else was great, I felt perfectly fine, it was just I couldn't walk a few steps without stopping. My Dr yelled at me and told me I waited too long (hehe I do that alot!). Basically if you don't feel yourself you should call and check with your Dr and they will decide what you need to do to get back to normal.

I asked my NP today about being a hypocondriac and she said with CF you can never be. We know our bodies better than anyone and if we feel off we probably are!

Hope that helps and glad to hear you haven't needed one yet!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

bittyhorse23

New member
I just got home from a tune up and basically it is what everyone just said. This is my first time doing home ivs and I am just glad I don't have to stay in my 12x12 room anymore LOL!!!

I knew I needed one because I was having a very hard time breathing. Everything else was great, I felt perfectly fine, it was just I couldn't walk a few steps without stopping. My Dr yelled at me and told me I waited too long (hehe I do that alot!). Basically if you don't feel yourself you should call and check with your Dr and they will decide what you need to do to get back to normal.

I asked my NP today about being a hypocondriac and she said with CF you can never be. We know our bodies better than anyone and if we feel off we probably are!

Hope that helps and glad to hear you haven't needed one yet!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

bittyhorse23

New member
I just got home from a tune up and basically it is what everyone just said. This is my first time doing home ivs and I am just glad I don't have to stay in my 12x12 room anymore LOL!!!

I knew I needed one because I was having a very hard time breathing. Everything else was great, I felt perfectly fine, it was just I couldn't walk a few steps without stopping. My Dr yelled at me and told me I waited too long (hehe I do that alot!). Basically if you don't feel yourself you should call and check with your Dr and they will decide what you need to do to get back to normal.

I asked my NP today about being a hypocondriac and she said with CF you can never be. We know our bodies better than anyone and if we feel off we probably are!

Hope that helps and glad to hear you haven't needed one yet!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

bittyhorse23

New member
I just got home from a tune up and basically it is what everyone just said. This is my first time doing home ivs and I am just glad I don't have to stay in my 12x12 room anymore LOL!!!

I knew I needed one because I was having a very hard time breathing. Everything else was great, I felt perfectly fine, it was just I couldn't walk a few steps without stopping. My Dr yelled at me and told me I waited too long (hehe I do that alot!). Basically if you don't feel yourself you should call and check with your Dr and they will decide what you need to do to get back to normal.

I asked my NP today about being a hypocondriac and she said with CF you can never be. We know our bodies better than anyone and if we feel off we probably are!

Hope that helps and glad to hear you haven't needed one yet!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

bittyhorse23

New member
I just got home from a tune up and basically it is what everyone just said. This is my first time doing home ivs and I am just glad I don't have to stay in my 12x12 room anymore LOL!!!

I knew I needed one because I was having a very hard time breathing. Everything else was great, I felt perfectly fine, it was just I couldn't walk a few steps without stopping. My Dr yelled at me and told me I waited too long (hehe I do that alot!). Basically if you don't feel yourself you should call and check with your Dr and they will decide what you need to do to get back to normal.

I asked my NP today about being a hypocondriac and she said with CF you can never be. We know our bodies better than anyone and if we feel off we probably are!

Hope that helps and glad to hear you haven't needed one yet!! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 
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