What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

type of portable compressor to use with TOBI

john81john

New member
I use Eflow rapid (eu version) for all -TOBI, HS and Pulmozyme, the european version is approved to all those meds... on batteries I can do about 120 minutes of inhalation...
 

john81john

New member
I use Eflow rapid (eu version) for all -TOBI, HS and Pulmozyme, the european version is approved to all those meds... on batteries I can do about 120 minutes of inhalation...
 

john81john

New member
I use Eflow rapid (eu version) for all -TOBI, HS and Pulmozyme, the european version is approved to all those meds... on batteries I can do about 120 minutes of inhalation...
 

john81john

New member
I use Eflow rapid (eu version) for all -TOBI, HS and Pulmozyme, the european version is approved to all those meds... on batteries I can do about 120 minutes of inhalation...
 

john81john

New member
I use Eflow rapid (eu version) for all -TOBI, HS and Pulmozyme, the european version is approved to all those meds... on batteries I can do about 120 minutes of inhalation...
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>seasalt</b></i>

Well, fwiw, bronchoconstriction doesn't appear to have to be a HUGE issue if you believe the article below which referenced actual.</end quote></div>


I meant it was a very severe/impactful issue for those it happens to.

<div class="FTQUOTE"><begin quote> In my case, I don't have the option of having insurance pay for TOBI since I have no insurance. And so I am looking for other options. </end quote></div>

Have you ever contacted Novartis? I know they often pay for TOBI for those who don't have insurance. I would suggest doing that....
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>seasalt</b></i>

Well, fwiw, bronchoconstriction doesn't appear to have to be a HUGE issue if you believe the article below which referenced actual.</end quote></div>


I meant it was a very severe/impactful issue for those it happens to.

<div class="FTQUOTE"><begin quote> In my case, I don't have the option of having insurance pay for TOBI since I have no insurance. And so I am looking for other options. </end quote></div>

Have you ever contacted Novartis? I know they often pay for TOBI for those who don't have insurance. I would suggest doing that....
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>seasalt</b></i>

Well, fwiw, bronchoconstriction doesn't appear to have to be a HUGE issue if you believe the article below which referenced actual.</end quote></div>


I meant it was a very severe/impactful issue for those it happens to.

<div class="FTQUOTE"><begin quote> In my case, I don't have the option of having insurance pay for TOBI since I have no insurance. And so I am looking for other options. </end quote></div>

Have you ever contacted Novartis? I know they often pay for TOBI for those who don't have insurance. I would suggest doing that....
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>seasalt</b></i>

Well, fwiw, bronchoconstriction doesn't appear to have to be a HUGE issue if you believe the article below which referenced actual.</end quote>


I meant it was a very severe/impactful issue for those it happens to.

<div class="FTQUOTE"><begin quote> In my case, I don't have the option of having insurance pay for TOBI since I have no insurance. And so I am looking for other options. </end quote>

Have you ever contacted Novartis? I know they often pay for TOBI for those who don't have insurance. I would suggest doing that....
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>seasalt</b></i>

Well, fwiw, bronchoconstriction doesn't appear to have to be a HUGE issue if you believe the article below which referenced actual.</end quote>


I meant it was a very severe/impactful issue for those it happens to.

<div class="FTQUOTE"><begin quote> In my case, I don't have the option of having insurance pay for TOBI since I have no insurance. And so I am looking for other options. </end quote>

Have you ever contacted Novartis? I know they often pay for TOBI for those who don't have insurance. I would suggest doing that....
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote>
And since the compressor won't work unless it has the right amount of electricity I think I am just fine.</end quote></div>


No that's not necessarily true, Am. The compressor can work at 1/2 speed with 1/2 the juice. I had one I was using about 3 years ago tested.

The juice it was getting from my car was not the same as from a wall socket and it affected the PSI.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote>
And since the compressor won't work unless it has the right amount of electricity I think I am just fine.</end quote></div>


No that's not necessarily true, Am. The compressor can work at 1/2 speed with 1/2 the juice. I had one I was using about 3 years ago tested.

The juice it was getting from my car was not the same as from a wall socket and it affected the PSI.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote>
And since the compressor won't work unless it has the right amount of electricity I think I am just fine.</end quote></div>


No that's not necessarily true, Am. The compressor can work at 1/2 speed with 1/2 the juice. I had one I was using about 3 years ago tested.

The juice it was getting from my car was not the same as from a wall socket and it affected the PSI.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote>
And since the compressor won't work unless it has the right amount of electricity I think I am just fine.</end quote>


No that's not necessarily true, Am. The compressor can work at 1/2 speed with 1/2 the juice. I had one I was using about 3 years ago tested.

The juice it was getting from my car was not the same as from a wall socket and it affected the PSI.
 

NoExcuses

New member
<div class="FTQUOTE"><begin quote>
And since the compressor won't work unless it has the right amount of electricity I think I am just fine.</end quote>


No that's not necessarily true, Am. The compressor can work at 1/2 speed with 1/2 the juice. I had one I was using about 3 years ago tested.

The juice it was getting from my car was not the same as from a wall socket and it affected the PSI.
 

bittyhorse23

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i>

<div class="FTQUOTE"><begin quote>

And since the compressor won't work unless it has the right amount of electricity I think I am just fine.</end quote></div>





No that's not necessarily true, Am. The compressor can work at 1/2 speed with 1/2 the juice. I had one I was using about 3 years ago tested.



The juice it was getting from my car was not the same as from a wall socket and it affected the PSI.</end quote></div>


To be honest I am really not worried. I don't really car if it only works half way. If my PA is no longer sensitive to TOBI after a few years than oh well. That's life. Take this as I don't care about my health if you will, but anyone that knows me knows that isn't true.

I'm glad you mentioned about the PSI's for someone else though. I may not care but perhaps others do. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

bittyhorse23

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i>

<div class="FTQUOTE"><begin quote>

And since the compressor won't work unless it has the right amount of electricity I think I am just fine.</end quote></div>





No that's not necessarily true, Am. The compressor can work at 1/2 speed with 1/2 the juice. I had one I was using about 3 years ago tested.



The juice it was getting from my car was not the same as from a wall socket and it affected the PSI.</end quote></div>


To be honest I am really not worried. I don't really car if it only works half way. If my PA is no longer sensitive to TOBI after a few years than oh well. That's life. Take this as I don't care about my health if you will, but anyone that knows me knows that isn't true.

I'm glad you mentioned about the PSI's for someone else though. I may not care but perhaps others do. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

bittyhorse23

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i>

<div class="FTQUOTE"><begin quote>

And since the compressor won't work unless it has the right amount of electricity I think I am just fine.</end quote></div>





No that's not necessarily true, Am. The compressor can work at 1/2 speed with 1/2 the juice. I had one I was using about 3 years ago tested.



The juice it was getting from my car was not the same as from a wall socket and it affected the PSI.</end quote></div>


To be honest I am really not worried. I don't really car if it only works half way. If my PA is no longer sensitive to TOBI after a few years than oh well. That's life. Take this as I don't care about my health if you will, but anyone that knows me knows that isn't true.

I'm glad you mentioned about the PSI's for someone else though. I may not care but perhaps others do. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

bittyhorse23

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i>

<div class="FTQUOTE"><begin quote>

And since the compressor won't work unless it has the right amount of electricity I think I am just fine.</end quote>





No that's not necessarily true, Am. The compressor can work at 1/2 speed with 1/2 the juice. I had one I was using about 3 years ago tested.



The juice it was getting from my car was not the same as from a wall socket and it affected the PSI.</end quote>


To be honest I am really not worried. I don't really car if it only works half way. If my PA is no longer sensitive to TOBI after a few years than oh well. That's life. Take this as I don't care about my health if you will, but anyone that knows me knows that isn't true.

I'm glad you mentioned about the PSI's for someone else though. I may not care but perhaps others do. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 

bittyhorse23

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>NoExcuses</b></i>

<div class="FTQUOTE"><begin quote>

And since the compressor won't work unless it has the right amount of electricity I think I am just fine.</end quote>





No that's not necessarily true, Am. The compressor can work at 1/2 speed with 1/2 the juice. I had one I was using about 3 years ago tested.



The juice it was getting from my car was not the same as from a wall socket and it affected the PSI.</end quote>


To be honest I am really not worried. I don't really car if it only works half way. If my PA is no longer sensitive to TOBI after a few years than oh well. That's life. Take this as I don't care about my health if you will, but anyone that knows me knows that isn't true.

I'm glad you mentioned about the PSI's for someone else though. I may not care but perhaps others do. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
Top