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U. of Minnesota November CF day???

A

anonymous

New member
I went last year for the first time, and really enjoyed it. I think they tend to shift the focus from year to year on family focus (parents/families with cf kids) to adult issues. If I remember correctly, it seemed to be pretty split between parents and adult cfers. I really liked the exhibitors, so I could see what the new compressors were like and compare the new vest. It was very helpful to be able to talk to some of these people instead of staring at a web site or calling around.

We were not required to wear masks, although if you wanted to, I don't think anyone would care. It's important to be careful when going as a cfer, but there were no rouge cfers running around coughing on everyone <img src="i/expressions/face-icon-small-smile.gif" border="0">

You can't go if you have cep, but since we all know how long it takes for cultures to show stuff sometimes, its always wise to be careful. I was a little uncomfortable with the dinner, as I felt I should have been eating behind a plastic tent least I pass a germ on, but that's me.

I plan on going again this year. I can't remember exactly what all the sessions are, but I remember that there were a few that I wanted to attend that I was bummed about because they overlapped.

I would recommend it to anyone who can go - plus its cheap to attend

--Wallflower, Barb, 34 w/cf
 
S

skh

Guest
I received a "save the date" notice not too long ago and do plan on attending. I have been meaning to attend for the past few years but something else has always come up.
 
S

skh

Guest
I received a "save the date" notice not too long ago and do plan on attending. I have been meaning to attend for the past few years but something else has always come up.
 
S

skh

Guest
I received a "save the date" notice not too long ago and do plan on attending. I have been meaning to attend for the past few years but something else has always come up.
 
R

Ratatosk

Administrator
Staff member
A friend of mine whose granddaughter has cf went last year with her daughter, son in law. They divided up, so they could go to any of the topics that occured at the same time. They brought back a copy of the handouts for me -- the one on travelling was very informative, as the one from Dr. Warick that touched on several different topics -- vest, inhaled nebs, coughing... L
 
R

Ratatosk

Administrator
Staff member
A friend of mine whose granddaughter has cf went last year with her daughter, son in law. They divided up, so they could go to any of the topics that occured at the same time. They brought back a copy of the handouts for me -- the one on travelling was very informative, as the one from Dr. Warick that touched on several different topics -- vest, inhaled nebs, coughing... L
 
R

Ratatosk

Administrator
Staff member
A friend of mine whose granddaughter has cf went last year with her daughter, son in law. They divided up, so they could go to any of the topics that occured at the same time. They brought back a copy of the handouts for me -- the one on travelling was very informative, as the one from Dr. Warick that touched on several different topics -- vest, inhaled nebs, coughing... L
 
R

Ratatosk

Administrator
Staff member
It was a presentation by someone from NW Airlines. Traveling with your vest, carryons, medical equipment... Interesting though, that this same airline gave my friend's daughter a HECK of a time when she went to Mexico a few months later and they were trying to prevent them from taking the vest (new smaller hill-rom one) on as a carry on.
 
R

Ratatosk

Administrator
Staff member
It was a presentation by someone from NW Airlines. Traveling with your vest, carryons, medical equipment... Interesting though, that this same airline gave my friend's daughter a HECK of a time when she went to Mexico a few months later and they were trying to prevent them from taking the vest (new smaller hill-rom one) on as a carry on.
 
R

Ratatosk

Administrator
Staff member
It was a presentation by someone from NW Airlines. Traveling with your vest, carryons, medical equipment... Interesting though, that this same airline gave my friend's daughter a HECK of a time when she went to Mexico a few months later and they were trying to prevent them from taking the vest (new smaller hill-rom one) on as a carry on.
 
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