What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Undiagnosed, but worried.

BaylorCrew07

New member
agreed - even if the sweat test is negative, it cannot rule out CF. If he is still having problems, I would really push for the Ambry Amplified genetic test -- it tests for the largest # of mutations and is MUCH more accurate.

As for tasting salt, some you can, and others you can't. People on here have had negative sweat tests, but still have CF. Mine sweat tests were negative and borderline, but genetic tests revealed I DO have CF. As stated above, it really presents differently in each individual.

Best of luck, and hope you get some difinitive answers soon <img src="i/expressions/heart.gif" border="0">
 

BaylorCrew07

New member
agreed - even if the sweat test is negative, it cannot rule out CF. If he is still having problems, I would really push for the Ambry Amplified genetic test -- it tests for the largest # of mutations and is MUCH more accurate.
<br />
<br />As for tasting salt, some you can, and others you can't. People on here have had negative sweat tests, but still have CF. Mine sweat tests were negative and borderline, but genetic tests revealed I DO have CF. As stated above, it really presents differently in each individual.
<br />
<br />Best of luck, and hope you get some difinitive answers soon <img src="i/expressions/heart.gif" border="0">
 
Top