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Update- after 1 month of being "compliant"

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DarceyMaysey

Guest
Ok, I went back for a follow-up yesterday. It has been one month and I have been doing the Pulmozyme and Tobi daily, airway clearance and I finished a round of Cipro. My PFT's were the same (59 last time and 60 yesterday) which was kind of disappointing but maybe when I go back in 3 months they will be better. Lab work was all good and I even lost 6 pounds (which, of course, didn't make them very happy but I am thrilled). Anyway, I am feeling better and plan to keep it up. I have one more week with the Tobi and then I will take one month off.
DR 36 f w/CF dx at 30
 
D

DarceyMaysey

Guest
Ok, I went back for a follow-up yesterday. It has been one month and I have been doing the Pulmozyme and Tobi daily, airway clearance and I finished a round of Cipro. My PFT's were the same (59 last time and 60 yesterday) which was kind of disappointing but maybe when I go back in 3 months they will be better. Lab work was all good and I even lost 6 pounds (which, of course, didn't make them very happy but I am thrilled). Anyway, I am feeling better and plan to keep it up. I have one more week with the Tobi and then I will take one month off.
DR 36 f w/CF dx at 30
 
D

DarceyMaysey

Guest
Ok, I went back for a follow-up yesterday. It has been one month and I have been doing the Pulmozyme and Tobi daily, airway clearance and I finished a round of Cipro. My PFT's were the same (59 last time and 60 yesterday) which was kind of disappointing but maybe when I go back in 3 months they will be better. Lab work was all good and I even lost 6 pounds (which, of course, didn't make them very happy but I am thrilled). Anyway, I am feeling better and plan to keep it up. I have one more week with the Tobi and then I will take one month off.
DR 36 f w/CF dx at 30
 
T

Tess

New member
Update- after 1 month of being "compliant

Congratulations, it's good to hear that your doing alright. And your next visit will probably be an even bigger improvement.... like they say rome wasn't built in a day...

Good luck and take care....
 
T

Tess

New member
Update- after 1 month of being "compliant

Congratulations, it's good to hear that your doing alright. And your next visit will probably be an even bigger improvement.... like they say rome wasn't built in a day...

Good luck and take care....
 
T

Tess

New member
Update- after 1 month of being "compliant

Congratulations, it's good to hear that your doing alright. And your next visit will probably be an even bigger improvement.... like they say rome wasn't built in a day...

Good luck and take care....
 
J

JazzysMom

New member
Update- after 1 month of being "compliant

I think if will take more then a month. Your body has to get use to it all, get the most out of it and then you will start to see results. I never see a real difference right away!
 
J

JazzysMom

New member
Update- after 1 month of being "compliant

I think if will take more then a month. Your body has to get use to it all, get the most out of it and then you will start to see results. I never see a real difference right away!
 
J

JazzysMom

New member
Update- after 1 month of being "compliant

I think if will take more then a month. Your body has to get use to it all, get the most out of it and then you will start to see results. I never see a real difference right away!
 
D

DarbSkull

New member
Update- after 1 month of being "compliant

Keep up the good work, Darc! Oh, and you might try a round of IVs, that always makes me feel better when I'm down.
 
D

DarbSkull

New member
Update- after 1 month of being "compliant

Keep up the good work, Darc! Oh, and you might try a round of IVs, that always makes me feel better when I'm down.
 
D

DarbSkull

New member
Update- after 1 month of being "compliant

Keep up the good work, Darc! Oh, and you might try a round of IVs, that always makes me feel better when I'm down.
 
J

Jem

New member
Update- after 1 month of being "compliant

Congrats on being compliant for a month! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Don't be too disappointed with your results. Give yourself some more time for the meds to do their job and let us know how things go at your next appointment. I am pulling for you!<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
J

Jem

New member
Update- after 1 month of being "compliant

Congrats on being compliant for a month! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Don't be too disappointed with your results. Give yourself some more time for the meds to do their job and let us know how things go at your next appointment. I am pulling for you!<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
J

Jem

New member
Update- after 1 month of being "compliant

Congrats on being compliant for a month! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Don't be too disappointed with your results. Give yourself some more time for the meds to do their job and let us know how things go at your next appointment. I am pulling for you!<img src="i/expressions/face-icon-small-wink.gif" border="0">
 
D

Diane

New member
Update- after 1 month of being

It isnt easy being compliant, but the fact that your #'s didnt go down ( and went up even by one tiny point) should be of some small incentive to keep at it. Keep up the good work !!<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
D

Diane

New member
Update- after 1 month of being

It isnt easy being compliant, but the fact that your #'s didnt go down ( and went up even by one tiny point) should be of some small incentive to keep at it. Keep up the good work !!<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
D

Diane

New member
Update- after 1 month of being

It isnt easy being compliant, but the fact that your #'s didnt go down ( and went up even by one tiny point) should be of some small incentive to keep at it. Keep up the good work !!<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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