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Update on Me

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JennifersHope

New member
I figured I would post an update on me... since I am still in the hospital and I am going stir crazy..

My intestines are being called stubborn.. HA me stubborn? Not me?.. IN the two weeks I have been in the hospital I have only slightly begun to heal... As you know I came in on August 13th because I was having severe abdominal pain.. They found out I have fibroids and a severe case of diviticultis and now my CF doctor thinks I have DIOS in my intestines which is complicating the healing process....

If I was to have surgery now they would have to do a colostomy . .Which is a hole punched in your stomache and that is where you go to the bathroom out of.. They are trying to avoid this at all costs because I can't even heal from the infection I already have..

I am maxed out on the highest dose of antibiotics they can give me and even still, it is barely touching my infection... I was told today I made so slow progress.. Meanwhile I have had nothing to eat or drink in 14 days... Just sips of fluid... I am getting TPN though a central line that is in my jugular vein..

I am a bit overwhelmed and nervous about missing so much work.. since it is a new job that I started....I don't qualify for a medical leave of absence.. I have to take a personal leave.. which means they don't have to hold my job.. They said of course they would..but they don't have to.

I am still not taking to much in by mouth just sips of fluid... My doctor told me today that if it is taking me this long to clear up an infection.. that if I had any complications with surgery infection wise..I could be out of work for a long time....

I hope maybe I can catch up with you guys in chat soon.


Jennifer
 
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rose4cale

New member
Jennifer, I haven't been on the boards much recently, but I remember being impressed with your stubborness and strong will in the past. My hopes and prayers will be with you for a speedier (is that a word?) recovery.
 
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Diane

New member
Oh Jennifer, i feel for you. I hope this all passes soon. Its good to know they will hold your job for you at least. ( one less thing to have to worry about) stay strong !! <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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julie

New member
Jen, thanks so much for the update. Mark and I have been thinking of and praying for you. I'm so frustrated for you, I wish I could just make it all better.

I'm glad to hear about your job, seems like the KNOW they have a good nurse in you and who would want to loose that??? Do you have the option of short term disability through work? Just a consideration to look into to keep your finances afloat (not sure if this is an issue, really none of my business either).

I'll continue to pray and I know you are a strong stubborn woman and this will all work out.
 
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Scarlett81

New member
In this case being stubborn and bull headed is a good thing I guess.

I'm thinking about you alot, hope your situation improves soon. I really feel for you too. It sucks being stuck there, I know. I hope you aren't totally going stir crazy.

Stay strong and keep going. <img src="i/expressions/heart.gif" border="0">
 
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anonymous

New member
Thaks so much for the update Jenn!!! Thinking of you<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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catboogie

New member
hey jenn,

sorry it has been so slow-going for you to get better! it sounds awful.

sending good thoughts your way...

laura
 
J

JennifersHope

New member
Hey Thanks for asking about me.. It means a lot to be thought about.. I am okay.. Still in the hospital.. Week number 3.. ugggg...

I go for a repeat catscan tomorrow to see how I am progressing.. Right now they are trying to get my intestines and infection to clear.. so that I don't need immediate surgery. Each catscan that I had has shown a slight improvement.. nothing great but nothing horrible. It is a very large portion of my colon and intestine that is effected so ugggg.....I am confident it is going to get better each day though

I am getting TPN nutrition though a central line that is in my jugular vein.... and I am also on antibiotics to clear the infection... I am literally drinking a gallon of Golytely a day or something equally awful.. my poor intestines have had it with me

They are not sure but they are thinking that when this heals from the infection, they are going to go in and do surgery and do a colon/bowel resection to get rid of the gunk... otherwise the risk of it coming back is to much. They keep saying I am to young to have this much damage....

They recommend a hysterectomy for me as far as my fibroids go.. they are pushing up on my bladder, I refuse and want just the fibroids taken out... RIght now, My bladder is not working at all, it just retains urine so I have had a foley catherter in me for two and half weeks..

I am surrounded with love and support but today is a sad day for me, I was supposed to start my new classes for my masters program today and I wasn't able to.. and I feel like there is no end to the amount of medical care that I need... It is so frustrating.. my insurance will not cover IVS at home.. well they will cover some of it, but not enough for me to be able to afford it.....My dad is so tired and worn out from taking care of me.. and I am draining them finacially.... Yet my dad is so faithful to me, he comes brings me drinks, flowers and presents every day....

So as things stand I am taken a personal leave from work... which is good for no longer then 3 months.. so I have to get my stuff straightend out by then or else... I can go back sooner though if I am up for it..I don't know what is going to happen though.. I will have to see.

So I guess the test tomorrow will tell how I am doing.. I am just drinking fluid at this point and it really still hurts my tummy.. We are sure though things are getting better...

I am on Morphine for pain still and I take it pretty regular.... I am taking a much lower dose though..

Thanks again for asking.. I have been a bit overwhelmed lately so I haven't posted a lot..

Love,

Jennifer
 
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julie

New member
Thanks for the update, I was just going to post and ask. all I can say is that I'm praying for you and wish I lived close, I'd come visit. You could cry on my shoulder for sure!!!!

Many prayers for you Jen!
 
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kayleesgrandma

New member
Jennifer, I just wish there was something I could do to make you feel better! It just breaks my heart that you are having to go through all this! You are strong though, and even though it's gradual, you are showing improvement. That counts for something. Does that morphine give you a headache? I know it does for a lot of my patients. I'm glad you are keeping us posted--we've gone through your experiences of graduating and getting the new job, we are here for you as you go through this. Keep your chin up babe, we're all thinking of you and holding you close to our hearts. <img src="i/expressions/heart.gif" border="0">
 
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anonymous

New member
Keep your head up! I have you in my thoughts and prayers. Being pig headed is a wonderful part of being a cfer! My husband will actually oink at me when I am being particularly stubborn on some issue. <img src="i/expressions/face-icon-small-smile.gif" border="0"> You are strong, and I have no doubt that you will be back to work soon enough.
 
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anonymous

New member
the last message was from me--I hit enter before I was done... <img src="i/expressions/face-icon-small-smile.gif" border="0">

{hugs}

--irishgirl 28 w/cf
 
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Scarlett81

New member
I have nothing intelligent to say, except I am thinking of you every day. Hoping you remain strong. You are in my thoughts. I am here whenever you are stir crazy, PM me any time to chat.
Hang in there.<img src="i/expressions/heart.gif" border="0">
 
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DietRootBeer

New member
Stay strong woman!! If anyone can over come this it is you my friend...Always thinking of you<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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JohnnaMarie

New member
Jennifer:

Hang in there!! Spend lots of time on the net to make time go faster! I know how bad gallons and gallons of golytely taste. I feel for you!! <img src="i/expressions/heart.gif" border="0">
I will be thinking of you and sending healthy vibes your way. <img src="i/expressions/present.gif" border="0">
 
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