JennifersHope
New member
HI Guys,
I just thought I would take a few minutes to give you an update on me... I got the results of my catscan today....I didn't make any progress what so ever since the last catscan.... Progess has been made since I got here, but none in the past week.. I am now on day 20 of being here and I have to tell you, I can really think of many other places to take a vacation......The infection and my intestines seem to be in a standoff with each other... and it feels like they got each other in a head lock and neither will budge.. I am not getting better and I am not getting worse...but I can't eat or drink anything without a great deal of pain...
Every possible specialist has been in on my case.. The doctors seem to be okay with this taken a long time to heal.. Tomorrow I am going to be trying a few other things that my cystic fibrosis team recommends.. I will spare you the details but I will tell you it isn't fun.....
They have allowed me to try to eat some soft foods because in spite of the nutrition that I am getting via the feeding tube and IVS.. My body is in a state of malnutrition (according to the tests) and I need to have food to allow my body to heal.
I am very blessed and very spoiled being here.. Not only have I been blessed with so many of my close family and friends being with me every step of the way... I even have a doctor that is teaching me how to knit.. She spends so much time with me.. and as we sit and chat I am getting to share some of my life story with her
I won't try to kid you though.. as much as I love the love and support I am getting... I am overwhelmed... knowing that even when I heal from this I have to face one and maybe two surgeries.....
I miss John so much it is hard for me to even process that he isn't here anymore.. I keep thinking of things I want to say to him and it takes a few minutes for me to realize that he isn't here.. I keep forgetting...
Please keep my dad in your thoughts/prayers, he is really anxious and very stressed out over me being sick for so long.. They are scheduled to go to Bermuda next week and I really want them to go and have a good time.. My mother is actually flying in tomorrow, she had planned to come a long time ago.. so she will be there to help me when I get home.
My infectious disease doctor told me tonight that I have to be on IV antibiotics until the entire infection is gone and no longer showing up on catscan... My insurance policy has changed and I can't afford the co pays to come home on IV antibiotcs which means I am staying here till then.
Who knows how long it will be. but they were hoping maybe by early next week... because it isn't that the infection is all that bad now, it just stopped getting better so at any time it can get better and then I am OUT OF HERE>>>>>>
Love,
Jennifer
I just thought I would take a few minutes to give you an update on me... I got the results of my catscan today....I didn't make any progress what so ever since the last catscan.... Progess has been made since I got here, but none in the past week.. I am now on day 20 of being here and I have to tell you, I can really think of many other places to take a vacation......The infection and my intestines seem to be in a standoff with each other... and it feels like they got each other in a head lock and neither will budge.. I am not getting better and I am not getting worse...but I can't eat or drink anything without a great deal of pain...
Every possible specialist has been in on my case.. The doctors seem to be okay with this taken a long time to heal.. Tomorrow I am going to be trying a few other things that my cystic fibrosis team recommends.. I will spare you the details but I will tell you it isn't fun.....
They have allowed me to try to eat some soft foods because in spite of the nutrition that I am getting via the feeding tube and IVS.. My body is in a state of malnutrition (according to the tests) and I need to have food to allow my body to heal.
I am very blessed and very spoiled being here.. Not only have I been blessed with so many of my close family and friends being with me every step of the way... I even have a doctor that is teaching me how to knit.. She spends so much time with me.. and as we sit and chat I am getting to share some of my life story with her
I won't try to kid you though.. as much as I love the love and support I am getting... I am overwhelmed... knowing that even when I heal from this I have to face one and maybe two surgeries.....
I miss John so much it is hard for me to even process that he isn't here anymore.. I keep thinking of things I want to say to him and it takes a few minutes for me to realize that he isn't here.. I keep forgetting...
Please keep my dad in your thoughts/prayers, he is really anxious and very stressed out over me being sick for so long.. They are scheduled to go to Bermuda next week and I really want them to go and have a good time.. My mother is actually flying in tomorrow, she had planned to come a long time ago.. so she will be there to help me when I get home.
My infectious disease doctor told me tonight that I have to be on IV antibiotics until the entire infection is gone and no longer showing up on catscan... My insurance policy has changed and I can't afford the co pays to come home on IV antibiotcs which means I am staying here till then.
Who knows how long it will be. but they were hoping maybe by early next week... because it isn't that the infection is all that bad now, it just stopped getting better so at any time it can get better and then I am OUT OF HERE>>>>>>
Love,
Jennifer