What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Vitamin E supplementation levels

fkewatson

New member
Hi - I know that people with CF need to supplement with fat-soluble vitamins. What is the recommended dosage of Vitamin E? I'm sure this is sometimes done on a case by case basis, but I've read that a child my son's size (18kg or 40 lbs) would need around 100-200IUs per day to correct Vit E deficiency. Is that consistent with what the children here get?

I'm not asking to get a guideline on how much to give me son. I give him many more times than that daily to keep his Vit E deficiency symptoms at bay. I'm just thinking there is way more going on with him re: his Vit E status than his malabsorption and CF carrier status.
 

fkewatson

New member
Hi - I know that people with CF need to supplement with fat-soluble vitamins. What is the recommended dosage of Vitamin E? I'm sure this is sometimes done on a case by case basis, but I've read that a child my son's size (18kg or 40 lbs) would need around 100-200IUs per day to correct Vit E deficiency. Is that consistent with what the children here get?

I'm not asking to get a guideline on how much to give me son. I give him many more times than that daily to keep his Vit E deficiency symptoms at bay. I'm just thinking there is way more going on with him re: his Vit E status than his malabsorption and CF carrier status.
 

fkewatson

New member
Hi - I know that people with CF need to supplement with fat-soluble vitamins. What is the recommended dosage of Vitamin E? I'm sure this is sometimes done on a case by case basis, but I've read that a child my son's size (18kg or 40 lbs) would need around 100-200IUs per day to correct Vit E deficiency. Is that consistent with what the children here get?

I'm not asking to get a guideline on how much to give me son. I give him many more times than that daily to keep his Vit E deficiency symptoms at bay. I'm just thinking there is way more going on with him re: his Vit E status than his malabsorption and CF carrier status.
 

fkewatson

New member
Hi - I know that people with CF need to supplement with fat-soluble vitamins. What is the recommended dosage of Vitamin E? I'm sure this is sometimes done on a case by case basis, but I've read that a child my son's size (18kg or 40 lbs) would need around 100-200IUs per day to correct Vit E deficiency. Is that consistent with what the children here get?

I'm not asking to get a guideline on how much to give me son. I give him many more times than that daily to keep his Vit E deficiency symptoms at bay. I'm just thinking there is way more going on with him re: his Vit E status than his malabsorption and CF carrier status.
 

fkewatson

New member
Hi - I know that people with CF need to supplement with fat-soluble vitamins. What is the recommended dosage of Vitamin E? I'm sure this is sometimes done on a case by case basis, but I've read that a child my son's size (18kg or 40 lbs) would need around 100-200IUs per day to correct Vit E deficiency. Is that consistent with what the children here get?

I'm not asking to get a guideline on how much to give me son. I give him many more times than that daily to keep his Vit E deficiency symptoms at bay. I'm just thinking there is way more going on with him re: his Vit E status than his malabsorption and CF carrier status.
 

fkewatson

New member
Hi - I know that people with CF need to supplement with fat-soluble vitamins. What is the recommended dosage of Vitamin E? I'm sure this is sometimes done on a case by case basis, but I've read that a child my son's size (18kg or 40 lbs) would need around 100-200IUs per day to correct Vit E deficiency. Is that consistent with what the children here get?

I'm not asking to get a guideline on how much to give me son. I give him many more times than that daily to keep his Vit E deficiency symptoms at bay. I'm just thinking there is way more going on with him re: his Vit E status than his malabsorption and CF carrier status.
 

JazzysMom

New member
Prior to my taking ABDEK I used a multi vitamin and a seperate Vitamin E. The vitamin E was 400 IUs per day.

I no longer take that. The ABDEK seems to be enough.
 

JazzysMom

New member
Prior to my taking ABDEK I used a multi vitamin and a seperate Vitamin E. The vitamin E was 400 IUs per day.

I no longer take that. The ABDEK seems to be enough.
 

JazzysMom

New member
Prior to my taking ABDEK I used a multi vitamin and a seperate Vitamin E. The vitamin E was 400 IUs per day.

I no longer take that. The ABDEK seems to be enough.
 

JazzysMom

New member
Prior to my taking ABDEK I used a multi vitamin and a seperate Vitamin E. The vitamin E was 400 IUs per day.

I no longer take that. The ABDEK seems to be enough.
 

JazzysMom

New member
Prior to my taking ABDEK I used a multi vitamin and a seperate Vitamin E. The vitamin E was 400 IUs per day.

I no longer take that. The ABDEK seems to be enough.
 

JazzysMom

New member
Prior to my taking ABDEK I used a multi vitamin and a seperate Vitamin E. The vitamin E was 400 IUs per day.

I no longer take that. The ABDEK seems to be enough.
 

izemmom

New member
Emily (age 20 months, 22 lbs) takes one ABDEK + zinc tablet a day. The doseage of Vitamin E in that tablet is 200 IU. 667% the RDA, accirding to the label on the bottle.
 

izemmom

New member
Emily (age 20 months, 22 lbs) takes one ABDEK + zinc tablet a day. The doseage of Vitamin E in that tablet is 200 IU. 667% the RDA, accirding to the label on the bottle.
 

izemmom

New member
Emily (age 20 months, 22 lbs) takes one ABDEK + zinc tablet a day. The doseage of Vitamin E in that tablet is 200 IU. 667% the RDA, accirding to the label on the bottle.
 

izemmom

New member
Emily (age 20 months, 22 lbs) takes one ABDEK + zinc tablet a day. The doseage of Vitamin E in that tablet is 200 IU. 667% the RDA, accirding to the label on the bottle.
 

izemmom

New member
Emily (age 20 months, 22 lbs) takes one ABDEK + zinc tablet a day. The doseage of Vitamin E in that tablet is 200 IU. 667% the RDA, accirding to the label on the bottle.
 

izemmom

New member
Emily (age 20 months, 22 lbs) takes one ABDEK + zinc tablet a day. The doseage of Vitamin E in that tablet is 200 IU. 667% the RDA, accirding to the label on the bottle.
 

fkewatson

New member
Thank you. These are the levels I was expecting to hear about. You see, in order to keep my son's Vit E-related sensory issues under control, I have to give him 2400IUs d-alpha tocopherol and 1200mg d-gamma tocopherol daily (yes, you read that correctly). I spread it out in 3 doses through the day. These are HUGE amounts for a small fellow and yet he will begin to regress within the hour if a dose is not given on time (5 hours between doses). We are at those levels now after slow increases given over the past 9 months (beginning with 200 IUs).

I keep reading that 100-200IUs is recommeded for CF malabsorption issues. I posted on another thread that I think he has another gene mutation going on beside his one delta F508 - only this time it is hetero or homozygous with the alpha tocopherol transfer protein gene (aTTP). The amount of Vit E I have to give him is within the range that the literature indicates is needed for people who have a defective aTTP gene. I'm having his blood drawn on Monday to find out.
 

fkewatson

New member
Thank you. These are the levels I was expecting to hear about. You see, in order to keep my son's Vit E-related sensory issues under control, I have to give him 2400IUs d-alpha tocopherol and 1200mg d-gamma tocopherol daily (yes, you read that correctly). I spread it out in 3 doses through the day. These are HUGE amounts for a small fellow and yet he will begin to regress within the hour if a dose is not given on time (5 hours between doses). We are at those levels now after slow increases given over the past 9 months (beginning with 200 IUs).

I keep reading that 100-200IUs is recommeded for CF malabsorption issues. I posted on another thread that I think he has another gene mutation going on beside his one delta F508 - only this time it is hetero or homozygous with the alpha tocopherol transfer protein gene (aTTP). The amount of Vit E I have to give him is within the range that the literature indicates is needed for people who have a defective aTTP gene. I'm having his blood drawn on Monday to find out.
 
Top