What's new
By:
Filters
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

wat are ur pfts?

A

anonymous

New member
Do you get told or given a printout of pft's? Our clinic only gives litres, not %. Its hard to remember all the figures with liters, much easier to remember a % for both Fev n FVC. Anyone know the difference or best way to convert. Is there any upside to either?

Many Thanks
 
A

anonymous

New member
My daughter is only 4 but her FEV1 is at 153%. We take the printout to the Dr. and then they keep it for her file after the appointment. It was her first time doing PFT's
 
S

serendipity730

New member
The last time I went to the Dr's by FEVI was 81% <img src="i/expressions/face-icon-small-smile.gif" border="0"> That was an 11% pt. increase from the last time I had done then. Prior to going on Hypertonic Saline, my PFT's were usually in the low 70's. My FVC is around 90%, I believe.
 
A

anonymous

New member
My PFT's are all over the place....

FEV1 94%, FVC 94% in 3/05
Then 84% & 80% 2 weeks ago.
Just had them done yesterday and they were 91% & 90%.

Melanie 25 TODAY(my birthday!) f w/cf
 
A

anonymous

New member
Melanie,

Anyone pointed out that this is your "quarter-century" birthday? To a non CFer that may be an insult but I thought it was a compliment . . . Happy Birthday!

Jason 30 w/cf

(FEV1 30% +/- 5% for the last 3 years)
 
A

anonymous

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>blindhearted</b></i><br>what is Hypertonic Saline? I've never heard of it. Does it require a Rx? <hr></blockquote>

Hypertonic saline does require a Rx. There has been a lot of useful discussion on it lately. Try typing "hypertonic saline" in the "search category" box of this site. And ask you doctor about it!

It's worked great for me!

Jason 30 w/cf
 
B

blindhearted

New member
Thanks Jason. I will talk to my doctor about it when I go in July. But I have a few quick questions:

Is there a FEV1 % that is a cut off point for being too low to use it?

Can Hypertonic Saline be mixed with Tobi like Albuterol can (or mixed with Albuterol alone) or does it have to be a totally different treatment?

Right now I am on Tobi (28 on/off), Albuterol, and DNase...I was wondering if I it will be another treatment added to the list. But either way, I will speak to my doctor about it. I'll take anything that will help.
 
A

anonymous

New member
<blockquote>Quote<br><hr><i>Originally posted by: <b>blindhearted</b></i><br>Thanks Jason. I will talk to my doctor about it when I go in July. But I have a few quick questions:

Is there a FEV1 % that is a cut off point for being too low to use it?

Can Hypertonic Saline be mixed with Tobi like Albuterol can (or mixed with Albuterol alone) or does it have to be a totally different treatment?

Right now I am on Tobi (28 on/off), Albuterol, and DNase...I was wondering if I it will be another treatment added to the list. But either way, I will speak to my doctor about it. I'll take anything that will help.<hr></blockquote>

I'm not aware of an FEV1 cut off point. I vary from 23-38%.

I think mixing HS with any other med might defeat the other med's purpose. It's used to help bring up mucous. Other meds are better off staying in there I believe. I use it instead of DNase b/c DNase didn't bring anything up for me. HS DOES!

I'm curious what your doc says. Please email me JasonTutors@yahoo.com.

Jason 30 w/cf
 
A

anonymous

New member
Do you do pfts after an exerstion test? I have never done that before but my dr wants to try it. I am a bit worried because my numbers aren't good anyway.
 
A

anonymous

New member
Hey guys, I just wanted to put my two cents in... I am 20 almost 1/2 (haha, counting down the days cant you tell!) Anyways, My FEV1 is usually around 30% So i am looking into transplant right now... My hubby is in the military and he gets out in a year and hes not sure what branch he wants to go into next so I am not sure where to get on the transplant list at yet!? I am looking into california, we live in Hawaii right now but I am not sure.... Okay talk to yah later...

Cariann 20 w/cf cfrd mrsa
 
A

anonymous

New member
A year can be a long time. People's health can change drastically in a year. I'd say, see about meeting a transplant team wherever you are that has one or where you'd like to be. I've personally not made moves based on that alone.

In the last three years I've been on three lists (and luckily I haven't had drastic changes in health). Denver, Colorado - USC, California - and now Columbia Presbyterian in NY. I think it's important to meet the docs and go where I'm comfortable. For me lung transplant is an insurance policy - nice to have it as an option but not need to cash in on it.

Jason 30 w/cf
 
T

teknogeek1300

New member
Was happy to finnaly get my PFT's, so I dug this up <img src="i/expressions/face-icon-small-smile.gif" border="0">

1: 114
2: 118
3: 113
 
H

HairGirl

New member
My FEV1 is 42% use to be around 65-75% before all this major
hemoptysis started. Anyways, about the question if you get a print
out, I ask them for an extra copy and take it home with me!
 
6

65rosessamurai

Guest
My doc over here just tested my fev1 today!! ( I had to comprehend the Japanese instructions to get the job done, but as I was doing it, it was getting familiar)
I saw the results, and the fev1 was 84%, he said was considered normal. I even saw the fvc as 112%, but can't recall what he said that meant.
I haven't had that checked in a long time, and after having x-rays and mri on my lungs last Sept., it seemed the fev1 might be low. But, the doc wants to try and increase the fev1 with medications that he's giving me, along with antibiotics for a month.
 
L

lovingBenandCambree

New member
My last visit which was Monday my FEV1 was 44 which in NOvember after hospitilization was 55% which was at a high for along time. My FVC was 71% Yeah, up from 67% my small airways are practically non exisistant, 12%. Craziness. I am going in the hospital in May and hopefully we can hit a new high.

Emilee
 
You must log in or register to reply here.
Top