What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Web site for folks newly dx'd with chronic illness

LisaV

New member
Interesting site I just was told about <a target=_blank class=ftalternatingbarlinklarge href="http://www.survivorshipatoz.org/">http://www.survivorshipatoz.org/</a> "Survivorship A-Z" "Our Unique Mission: To provide the practical information you need to thrive in the "new normal" that exists after a life-changing diagnosis."
It was created by a caregiver after his partner was dx'd with HIV, but it has lots of information for any adult living with a chronic illness.
Probably of most interest to newly dx'd adult CFers.
 

LisaV

New member
Interesting site I just was told about <a target=_blank class=ftalternatingbarlinklarge href="http://www.survivorshipatoz.org/">http://www.survivorshipatoz.org/</a> "Survivorship A-Z" "Our Unique Mission: To provide the practical information you need to thrive in the "new normal" that exists after a life-changing diagnosis."
It was created by a caregiver after his partner was dx'd with HIV, but it has lots of information for any adult living with a chronic illness.
Probably of most interest to newly dx'd adult CFers.
 

LisaV

New member
Interesting site I just was told about <a target=_blank class=ftalternatingbarlinklarge href="http://www.survivorshipatoz.org/">http://www.survivorshipatoz.org/</a> "Survivorship A-Z" "Our Unique Mission: To provide the practical information you need to thrive in the "new normal" that exists after a life-changing diagnosis."
It was created by a caregiver after his partner was dx'd with HIV, but it has lots of information for any adult living with a chronic illness.
Probably of most interest to newly dx'd adult CFers.
 

LisaV

New member
Interesting site I just was told about <a target=_blank class=ftalternatingbarlinklarge href="http://www.survivorshipatoz.org/">http://www.survivorshipatoz.org/</a> "Survivorship A-Z" "Our Unique Mission: To provide the practical information you need to thrive in the "new normal" that exists after a life-changing diagnosis."
It was created by a caregiver after his partner was dx'd with HIV, but it has lots of information for any adult living with a chronic illness.
Probably of most interest to newly dx'd adult CFers.
 

LisaV

New member
Interesting site I just was told about <a target=_blank class=ftalternatingbarlinklarge href="http://www.survivorshipatoz.org/">http://www.survivorshipatoz.org/</a> "Survivorship A-Z" "Our Unique Mission: To provide the practical information you need to thrive in the "new normal" that exists after a life-changing diagnosis."
<br />It was created by a caregiver after his partner was dx'd with HIV, but it has lots of information for any adult living with a chronic illness.
<br />Probably of most interest to newly dx'd adult CFers.
 

Juliet

New member
Thanks for the link LisaV. They have a pretty good description of all the disability / social security / whatever programs. Sort of like a "for Dummies" level of explanation - which I've found quite useful. <img src="i/expressions/face-icon-small-smile.gif" border="0"> ~Juliet
 

Juliet

New member
Thanks for the link LisaV. They have a pretty good description of all the disability / social security / whatever programs. Sort of like a "for Dummies" level of explanation - which I've found quite useful. <img src="i/expressions/face-icon-small-smile.gif" border="0"> ~Juliet
 

Juliet

New member
Thanks for the link LisaV. They have a pretty good description of all the disability / social security / whatever programs. Sort of like a "for Dummies" level of explanation - which I've found quite useful. <img src="i/expressions/face-icon-small-smile.gif" border="0"> ~Juliet
 

Juliet

New member
Thanks for the link LisaV. They have a pretty good description of all the disability / social security / whatever programs. Sort of like a "for Dummies" level of explanation - which I've found quite useful. <img src="i/expressions/face-icon-small-smile.gif" border="0"> ~Juliet
 

Juliet

New member
Thanks for the link LisaV. They have a pretty good description of all the disability / social security / whatever programs. Sort of like a "for Dummies" level of explanation - which I've found quite useful. <img src="i/expressions/face-icon-small-smile.gif" border="0"> ~Juliet
 

LisaV

New member
I like your "for dummies" comment.
That's what I thought too. I know most of this stuff cold now, but I wish I had had access to this information all in one place when we figured out that my late husband was going to have to quit working.

Interestingly I did find some new information.

All of the content as a table of contents is at <a target=_blank class=ftalternatingbarlinklarge href="http://www.survivorshipatoz.org/toc.php">http://www.survivorshipatoz.org/toc.php</a> . I found that a good place to skim what topics they had "101" information about.
 

LisaV

New member
I like your "for dummies" comment.
That's what I thought too. I know most of this stuff cold now, but I wish I had had access to this information all in one place when we figured out that my late husband was going to have to quit working.

Interestingly I did find some new information.

All of the content as a table of contents is at <a target=_blank class=ftalternatingbarlinklarge href="http://www.survivorshipatoz.org/toc.php">http://www.survivorshipatoz.org/toc.php</a> . I found that a good place to skim what topics they had "101" information about.
 

LisaV

New member
I like your "for dummies" comment.
That's what I thought too. I know most of this stuff cold now, but I wish I had had access to this information all in one place when we figured out that my late husband was going to have to quit working.

Interestingly I did find some new information.

All of the content as a table of contents is at <a target=_blank class=ftalternatingbarlinklarge href="http://www.survivorshipatoz.org/toc.php">http://www.survivorshipatoz.org/toc.php</a> . I found that a good place to skim what topics they had "101" information about.
 

LisaV

New member
I like your "for dummies" comment.
That's what I thought too. I know most of this stuff cold now, but I wish I had had access to this information all in one place when we figured out that my late husband was going to have to quit working.

Interestingly I did find some new information.

All of the content as a table of contents is at <a target=_blank class=ftalternatingbarlinklarge href="http://www.survivorshipatoz.org/toc.php">http://www.survivorshipatoz.org/toc.php</a> . I found that a good place to skim what topics they had "101" information about.
 

LisaV

New member
I like your "for dummies" comment.
<br />That's what I thought too. I know most of this stuff cold now, but I wish I had had access to this information all in one place when we figured out that my late husband was going to have to quit working.
<br />
<br />Interestingly I did find some new information.
<br />
<br />All of the content as a table of contents is at <a target=_blank class=ftalternatingbarlinklarge href="http://www.survivorshipatoz.org/toc.php">http://www.survivorshipatoz.org/toc.php</a> . I found that a good place to skim what topics they had "101" information about.
 
Top