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Went to see my cf doctor today and im not happy

Diane

New member
I had my cat scans done today. One of my lungs to see if the fungus ball shrunk and then a cat scan of my head for the dizziness. Then i went and saw my cf Doctor afterwards. She saw both of my cat scans and told me she doesnt know much about cat scans of the head but she didnt see anything that looked abnormal to her. Then she told me the fungus ball got bigger not smaller. I was so <img src="i/expressions/brokenheart.gif" border="0"> . I have been on the Sporanox for 3 months now and we were hoping to see it had shrunk and here it did the opposite. I am very unhappy about that, and worried as well. They are going to start me on another anti-fungal but as of right now, my insurance doesnt want to pay for it. I will need to get a letter of medical necessity. I am so scared that this thing will never shrink and never be gone for good. I Pray it will shrink at least...................
 

Diane

New member
I had my cat scans done today. One of my lungs to see if the fungus ball shrunk and then a cat scan of my head for the dizziness. Then i went and saw my cf Doctor afterwards. She saw both of my cat scans and told me she doesnt know much about cat scans of the head but she didnt see anything that looked abnormal to her. Then she told me the fungus ball got bigger not smaller. I was so <img src="i/expressions/brokenheart.gif" border="0"> . I have been on the Sporanox for 3 months now and we were hoping to see it had shrunk and here it did the opposite. I am very unhappy about that, and worried as well. They are going to start me on another anti-fungal but as of right now, my insurance doesnt want to pay for it. I will need to get a letter of medical necessity. I am so scared that this thing will never shrink and never be gone for good. I Pray it will shrink at least...................
 

Diane

New member
I had my cat scans done today. One of my lungs to see if the fungus ball shrunk and then a cat scan of my head for the dizziness. Then i went and saw my cf Doctor afterwards. She saw both of my cat scans and told me she doesnt know much about cat scans of the head but she didnt see anything that looked abnormal to her. Then she told me the fungus ball got bigger not smaller. I was so <img src="i/expressions/brokenheart.gif" border="0"> . I have been on the Sporanox for 3 months now and we were hoping to see it had shrunk and here it did the opposite. I am very unhappy about that, and worried as well. They are going to start me on another anti-fungal but as of right now, my insurance doesnt want to pay for it. I will need to get a letter of medical necessity. I am so scared that this thing will never shrink and never be gone for good. I Pray it will shrink at least...................
 
J

Jan

Guest
That's crappy news. I will keep everything crossed that it gets smaller and goes away. Take Care
Nene
 
J

Jan

Guest
That's crappy news. I will keep everything crossed that it gets smaller and goes away. Take Care
Nene
 
J

Jan

Guest
That's crappy news. I will keep everything crossed that it gets smaller and goes away. Take Care
Nene
 

Kelli

New member
I said a prayer for you! I hope that the fungus will begin to shrink.
How did you get a fungus in your lung? Is that common? Does it usually form a 'ball'? I've not heard of this before.
I do hope that things will improve for you, Diane. And try to keep your spirit up, that is a big part of fighting CF, for me at least!
Best wishes to you,
Kelli
29 CF
 

Kelli

New member
I said a prayer for you! I hope that the fungus will begin to shrink.
How did you get a fungus in your lung? Is that common? Does it usually form a 'ball'? I've not heard of this before.
I do hope that things will improve for you, Diane. And try to keep your spirit up, that is a big part of fighting CF, for me at least!
Best wishes to you,
Kelli
29 CF
 

Kelli

New member
I said a prayer for you! I hope that the fungus will begin to shrink.
How did you get a fungus in your lung? Is that common? Does it usually form a 'ball'? I've not heard of this before.
I do hope that things will improve for you, Diane. And try to keep your spirit up, that is a big part of fighting CF, for me at least!
Best wishes to you,
Kelli
29 CF
 

Landy

New member
Oh, Diane<img src="i/expressions/face-icon-small-sad.gif" border="0">
That does suck--kind of takes the wind out of your sails.

Are there any strong IV meds they can try to use to combat the fungus ball?
I will definately keep you in my prayers, girl.<img src="i/expressions/heart.gif" border="0">
How has the dizziness been lately?
 

Landy

New member
Oh, Diane<img src="i/expressions/face-icon-small-sad.gif" border="0">
That does suck--kind of takes the wind out of your sails.

Are there any strong IV meds they can try to use to combat the fungus ball?
I will definately keep you in my prayers, girl.<img src="i/expressions/heart.gif" border="0">
How has the dizziness been lately?
 

Landy

New member
Oh, Diane<img src="i/expressions/face-icon-small-sad.gif" border="0">
That does suck--kind of takes the wind out of your sails.

Are there any strong IV meds they can try to use to combat the fungus ball?
I will definately keep you in my prayers, girl.<img src="i/expressions/heart.gif" border="0">
How has the dizziness been lately?
 

sue35

New member
I am so sorry that things didn't go how you wanted them. I hate that feeling. I hope that they can find something to shrink it or at least not let it grow any bigger.
 

sue35

New member
I am so sorry that things didn't go how you wanted them. I hate that feeling. I hope that they can find something to shrink it or at least not let it grow any bigger.
 

sue35

New member
I am so sorry that things didn't go how you wanted them. I hate that feeling. I hope that they can find something to shrink it or at least not let it grow any bigger.
 

kayleesgrandma

New member
Diane, I am sorry for the bad news. I don't know what a fungus ball is, but I am praying that it will disappear. How are you feeling otherwise? I hope everything can get straightened out soon, and the new meds work, and shring it up. When do you have to go back again?
 

kayleesgrandma

New member
Diane, I am sorry for the bad news. I don't know what a fungus ball is, but I am praying that it will disappear. How are you feeling otherwise? I hope everything can get straightened out soon, and the new meds work, and shring it up. When do you have to go back again?
 
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