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WHAT AN OPPORTUNITY!!! ***UPDATED***

Scarlett81

New member
WHAT AN OPPORTUNITY!!!

thats wonderful! you sound so excited, albeit nervous...thats ok though. get your thoughts collected and go rock the house! you'll be great. go treat yourself to a nice dress, u deserve it.
i'm sure it will go wonderfully!
 

beleache

New member
WHAT AN OPPORTUNITY!!!

Wow Jennifer. What a great opportunity, I would get as much help as i could from other people here that have had this kind of opportunity... i myself would need to write everything down, so as not to leave out any important issues and i think it would also help to keep me calmer... This is the perfect reason to buy something new to wear.... Enjoy it and Go Jen Go !!!!!!! Joni .... 55 y/o f w c/f
 

beleache

New member
WHAT AN OPPORTUNITY!!!

Wow Jennifer. What a great opportunity, I would get as much help as i could from other people here that have had this kind of opportunity... i myself would need to write everything down, so as not to leave out any important issues and i think it would also help to keep me calmer... This is the perfect reason to buy something new to wear.... Enjoy it and Go Jen Go !!!!!!! Joni .... 55 y/o f w c/f
 

beleache

New member
WHAT AN OPPORTUNITY!!!

Wow Jennifer. What a great opportunity, I would get as much help as i could from other people here that have had this kind of opportunity... i myself would need to write everything down, so as not to leave out any important issues and i think it would also help to keep me calmer... This is the perfect reason to buy something new to wear.... Enjoy it and Go Jen Go !!!!!!! Joni .... 55 y/o f w c/f
 

kayleesgrandma

New member
WHAT AN OPPORTUNITY!!!

Just wanted to say that I'm proud of you! I know you will say the right thing, from your heart, and this is a great oppurtunity to let people know how important it is to give to CF. Through you, all of us are speaking.
 

kayleesgrandma

New member
WHAT AN OPPORTUNITY!!!

Just wanted to say that I'm proud of you! I know you will say the right thing, from your heart, and this is a great oppurtunity to let people know how important it is to give to CF. Through you, all of us are speaking.
 

kayleesgrandma

New member
WHAT AN OPPORTUNITY!!!

Just wanted to say that I'm proud of you! I know you will say the right thing, from your heart, and this is a great oppurtunity to let people know how important it is to give to CF. Through you, all of us are speaking.
 

Jennifer1981

New member
WHAT AN OPPORTUNITY!!!

THANK YOU, EVERYONE!!! <img src="i/expressions/face-icon-small-wink.gif" border="0">

I am very excited! I have spoken in front of crowds before, but I was in high school. I usually spoke in front of 30-40 classmates at a time, but that was fellow classmates. However, I did learn that when I plan a speech in advance I mess it up everytime. It's like how much I feel welcomed depends on what and to what extent I open up about CF. I had prepared many speeches for groups of classmates, but you know how they can be...(laughing, snearing, just jerks in general).

Now, this is a much different atmosphere. Of course, I want to be much more prepared, but still I want to be "me". Yes, I nearly pee myself with my nerves or throw up, but the minute I take the center stage, I enter like a "zone". My nerves just drop off, and I can talk and speak about anything with some humor. It's really only a "thank you" speech. So not too much needs to be said.

I have now learned more about the event. Jake brought home the tickets and there is dancing, raffles, international food stations, and so much more. I'll be looking for a dress tomorrow since I'll have the car. I have my 4-month CF checkup tomorrow.

It should be interesting. My whole life everyone said that they had no idea that I had CF. I'm chubby and hardly ever cough. The only people that know I'll be there are the CF Chapter and Jake's job. Many won't even know that I have CF until I take the stage!!! That should be cool to see the looks on everyone's faces.

I really can't wait to get on the dance floor. Jake and I haven't danced since our wedding nearly 3 years ago. He's a great dancer thanks to his Latin-roots. Heck, I went from being an ironing board to one "sexy, hot mama on the dance floor". LOL! Really though, I am a very good dancer now. Moreso with stuff from Shakira, Jennifer Lopez, or just plain salsa and tango's. I can't ballroom, though! LOL! I'm sure that will surprise the heck out of people that I have the air to dance. Let me tell you, they will have to carry me off the dance floor.

As far as the speech content goes...I want to first introduce myself and ask everyone if they are enjoying themselves. Then, I want to thank Bob Fisher Chevrolet, Jake's workplace, for the opportunity to be present and to speak this evening. Next, I want to briefly discuss what CF is and how it impacts CF patients everyday. Offer some statistics. Then, point out how b/c of their donations over the past years how it impacted the modern medicine that is helping me today live to 25 and beyond. Point out directly the TOBI and Pulmozyme for example. Express my many thanks and gratefulness for their donations and how their donations impacted me from maybe making it too my teens to now 25, happy-married, own my own home, and still ranked with mild/moderate CF. I HAVE DECIDED TO OPPT-UT OF PREGNANCY TOPICS. I don't know these people and this is my first speech ever to people of such ranking. Plus, with my trouble of trying to concieve, I'm too sure to crack. BUT IN THE END, WANT TO DRAW AND REALLY PUT FOCUS ON HOW CF PATIENTS ARE MAKING IT INTO THEIR 30'S AND 40'S WITH THEIR OWN FAMILIES, JOBS, AND HOMES. I WANT TO BUT EMPHASIS ON HOW "CF IS NO LONGER A CHILDHOOD DISEASE". HOW THEY ARE PRODUCTIVE MEMBERS OF SOCIETY WITH MANY THANKS TO THEIR DONATIONS AND TO THEIR LEVEL OF SELF-CARE. Then in finale, thank everyone again for their donations and thank Bob Fisher. And offer support to any CF parents that will be there - by conversation that night or email.

WHAT DO YOU THINK???

If they want me to speak longer, I will just talk more about my life and how it is directly affected by CF. Also, I was thinking to discuss the impact CF has on unexpecting parents and siblings. Both which are present in my family. I would be able to relate to everyone on many different levels. But it depends on how much time they want me to speak.

Well, let me know what ya think! I won't be around too much for the next two days after today. THANK YOU!

Jenny<img src="i/expressions/heart.gif" border="0">
 

Jennifer1981

New member
WHAT AN OPPORTUNITY!!!

THANK YOU, EVERYONE!!! <img src="i/expressions/face-icon-small-wink.gif" border="0">

I am very excited! I have spoken in front of crowds before, but I was in high school. I usually spoke in front of 30-40 classmates at a time, but that was fellow classmates. However, I did learn that when I plan a speech in advance I mess it up everytime. It's like how much I feel welcomed depends on what and to what extent I open up about CF. I had prepared many speeches for groups of classmates, but you know how they can be...(laughing, snearing, just jerks in general).

Now, this is a much different atmosphere. Of course, I want to be much more prepared, but still I want to be "me". Yes, I nearly pee myself with my nerves or throw up, but the minute I take the center stage, I enter like a "zone". My nerves just drop off, and I can talk and speak about anything with some humor. It's really only a "thank you" speech. So not too much needs to be said.

I have now learned more about the event. Jake brought home the tickets and there is dancing, raffles, international food stations, and so much more. I'll be looking for a dress tomorrow since I'll have the car. I have my 4-month CF checkup tomorrow.

It should be interesting. My whole life everyone said that they had no idea that I had CF. I'm chubby and hardly ever cough. The only people that know I'll be there are the CF Chapter and Jake's job. Many won't even know that I have CF until I take the stage!!! That should be cool to see the looks on everyone's faces.

I really can't wait to get on the dance floor. Jake and I haven't danced since our wedding nearly 3 years ago. He's a great dancer thanks to his Latin-roots. Heck, I went from being an ironing board to one "sexy, hot mama on the dance floor". LOL! Really though, I am a very good dancer now. Moreso with stuff from Shakira, Jennifer Lopez, or just plain salsa and tango's. I can't ballroom, though! LOL! I'm sure that will surprise the heck out of people that I have the air to dance. Let me tell you, they will have to carry me off the dance floor.

As far as the speech content goes...I want to first introduce myself and ask everyone if they are enjoying themselves. Then, I want to thank Bob Fisher Chevrolet, Jake's workplace, for the opportunity to be present and to speak this evening. Next, I want to briefly discuss what CF is and how it impacts CF patients everyday. Offer some statistics. Then, point out how b/c of their donations over the past years how it impacted the modern medicine that is helping me today live to 25 and beyond. Point out directly the TOBI and Pulmozyme for example. Express my many thanks and gratefulness for their donations and how their donations impacted me from maybe making it too my teens to now 25, happy-married, own my own home, and still ranked with mild/moderate CF. I HAVE DECIDED TO OPPT-UT OF PREGNANCY TOPICS. I don't know these people and this is my first speech ever to people of such ranking. Plus, with my trouble of trying to concieve, I'm too sure to crack. BUT IN THE END, WANT TO DRAW AND REALLY PUT FOCUS ON HOW CF PATIENTS ARE MAKING IT INTO THEIR 30'S AND 40'S WITH THEIR OWN FAMILIES, JOBS, AND HOMES. I WANT TO BUT EMPHASIS ON HOW "CF IS NO LONGER A CHILDHOOD DISEASE". HOW THEY ARE PRODUCTIVE MEMBERS OF SOCIETY WITH MANY THANKS TO THEIR DONATIONS AND TO THEIR LEVEL OF SELF-CARE. Then in finale, thank everyone again for their donations and thank Bob Fisher. And offer support to any CF parents that will be there - by conversation that night or email.

WHAT DO YOU THINK???

If they want me to speak longer, I will just talk more about my life and how it is directly affected by CF. Also, I was thinking to discuss the impact CF has on unexpecting parents and siblings. Both which are present in my family. I would be able to relate to everyone on many different levels. But it depends on how much time they want me to speak.

Well, let me know what ya think! I won't be around too much for the next two days after today. THANK YOU!

Jenny<img src="i/expressions/heart.gif" border="0">
 

Jennifer1981

New member
WHAT AN OPPORTUNITY!!!

THANK YOU, EVERYONE!!! <img src="i/expressions/face-icon-small-wink.gif" border="0">

I am very excited! I have spoken in front of crowds before, but I was in high school. I usually spoke in front of 30-40 classmates at a time, but that was fellow classmates. However, I did learn that when I plan a speech in advance I mess it up everytime. It's like how much I feel welcomed depends on what and to what extent I open up about CF. I had prepared many speeches for groups of classmates, but you know how they can be...(laughing, snearing, just jerks in general).

Now, this is a much different atmosphere. Of course, I want to be much more prepared, but still I want to be "me". Yes, I nearly pee myself with my nerves or throw up, but the minute I take the center stage, I enter like a "zone". My nerves just drop off, and I can talk and speak about anything with some humor. It's really only a "thank you" speech. So not too much needs to be said.

I have now learned more about the event. Jake brought home the tickets and there is dancing, raffles, international food stations, and so much more. I'll be looking for a dress tomorrow since I'll have the car. I have my 4-month CF checkup tomorrow.

It should be interesting. My whole life everyone said that they had no idea that I had CF. I'm chubby and hardly ever cough. The only people that know I'll be there are the CF Chapter and Jake's job. Many won't even know that I have CF until I take the stage!!! That should be cool to see the looks on everyone's faces.

I really can't wait to get on the dance floor. Jake and I haven't danced since our wedding nearly 3 years ago. He's a great dancer thanks to his Latin-roots. Heck, I went from being an ironing board to one "sexy, hot mama on the dance floor". LOL! Really though, I am a very good dancer now. Moreso with stuff from Shakira, Jennifer Lopez, or just plain salsa and tango's. I can't ballroom, though! LOL! I'm sure that will surprise the heck out of people that I have the air to dance. Let me tell you, they will have to carry me off the dance floor.

As far as the speech content goes...I want to first introduce myself and ask everyone if they are enjoying themselves. Then, I want to thank Bob Fisher Chevrolet, Jake's workplace, for the opportunity to be present and to speak this evening. Next, I want to briefly discuss what CF is and how it impacts CF patients everyday. Offer some statistics. Then, point out how b/c of their donations over the past years how it impacted the modern medicine that is helping me today live to 25 and beyond. Point out directly the TOBI and Pulmozyme for example. Express my many thanks and gratefulness for their donations and how their donations impacted me from maybe making it too my teens to now 25, happy-married, own my own home, and still ranked with mild/moderate CF. I HAVE DECIDED TO OPPT-UT OF PREGNANCY TOPICS. I don't know these people and this is my first speech ever to people of such ranking. Plus, with my trouble of trying to concieve, I'm too sure to crack. BUT IN THE END, WANT TO DRAW AND REALLY PUT FOCUS ON HOW CF PATIENTS ARE MAKING IT INTO THEIR 30'S AND 40'S WITH THEIR OWN FAMILIES, JOBS, AND HOMES. I WANT TO BUT EMPHASIS ON HOW "CF IS NO LONGER A CHILDHOOD DISEASE". HOW THEY ARE PRODUCTIVE MEMBERS OF SOCIETY WITH MANY THANKS TO THEIR DONATIONS AND TO THEIR LEVEL OF SELF-CARE. Then in finale, thank everyone again for their donations and thank Bob Fisher. And offer support to any CF parents that will be there - by conversation that night or email.

WHAT DO YOU THINK???

If they want me to speak longer, I will just talk more about my life and how it is directly affected by CF. Also, I was thinking to discuss the impact CF has on unexpecting parents and siblings. Both which are present in my family. I would be able to relate to everyone on many different levels. But it depends on how much time they want me to speak.

Well, let me know what ya think! I won't be around too much for the next two days after today. THANK YOU!

Jenny<img src="i/expressions/heart.gif" border="0">
 

Jennifer1981

New member
Hi Everyone!!!

Okay, I have lots to share with all of you and some pics (which aren't the best quality thanks to my hubby, Jake). LOL! I should demote him from picture duty!

Well, Saturday I started getting ready around 12:30 even though it didn't start until 6:00. I was sooooooooo nervous! My mom showed up around 1:00 to bring some of the special makeup I had ordered from Avon and to offer help getting ready or whatever I needed. Of course, I took full advantage of that. It's great to have Moms!!!

So by 2:30, I was completely ready to go. I showed up at Jake's workplace and showed him my "look". He had no idea what I was going to wear. His face immediately turned red (in a good way) and said I should put my black leather jacket back on. He was embrassed and didn't want the other guys to be staring at me. He finished around 3:00, and we went to the local mall to kill some time.

At 5:45, we arrived at the Berkshire Country Club. OMG!!!! This place is a 5-star kind of place. There I finally met Sandy, the lady that Jake works with that asked me in the first place if I wanted to attend this event. She was really nice, and we clicked immediately. She walked us over to the main check-in table where we were handed an envelope filled with a program, raffle tickets, and our seating table. Jake went to sit down, but she and I checked out the raffle and auction items. The items that were to be auctioned were signed paintings, tickets to Phillies games, 1 week long resorts to Myrtle Beach, S.C. and so much more. There were 46 items in all to be auctioned off. The raffle prizes were things like $20.00 gift certificates to get yoga or hair care, purses, hand cream kits, cooking stuff and on and on. I'm sure you get the idea. There were around 100 of those raffles prizes. We each placed our raffle number tickets into some of the raffle item drawings that we wanted to win.

Next she showed me the food and bar area. OMG!!! They had unlimited free drinks and food. There were 5 international food stations, each with 4-5 different entrees For example, one was Italian. That station had eggplant parm, stuffed shells, creamy alfredo, and two others. Three of the five stations were Italian, Greek, and Spanish. I guess you know which ones I ate from since those are the only ones I remember...

Then, we searched endlessly for Cindy, the woman who set all of this up. We couldn't find her out of the 213 people that attended. I was to speak with her about my speech beforehand. Like I said, Sandy (Jake's co-worker) was the middle-man. It was discussed that I would speak, but we wanted to meet first. Well, I couldn't find her.

So we finally sat down with request from one of the sponsers. At our table was 4 other people from Bob Fisher Chevrolet. They were the big shots. I thanked them up and down for the opportunity. The wife of the highest big shot loved me so that was a really good thing. The others liked me too, but she was the most noticeable.

Anyways, the one sponser spoke. Then another. Then there was this slideshow about Cindy's 3-year-old daughter, Amelia, who has CF. That's was when I found/met Cindy...but it was too late. I DIDN'T get the opportunity to speak! I was disappointed but knew I'd catch her later.

After that, there was the auction, which took nearly 2 hours. THEY RAISED $11,400.00 FOR CF RESEARCH IN THAT 2 HOURS!!! Some of the paintings went for $400 each!!! Other items, like 2 100% real cheetah fur pillows went for $700.00!!! I know! Crazy money!!!

Then, there was the raffle prizes. I WON A GOLD PURSE/BACKPACK! I thought it was so cool since I never even was able to win an Easter egg hunt or anything!!! LOL! Also, I happened to be sitting at the marked chair at my table and won the centerpiece!!! I know, cool!

FINALLY, I had a chance to approach Cindy, which I embraced. I said, "Hi, I'm Jennifer Cuello, the 25-year-old with CF that Sandy told you about." Her eyes nearly popped out of her head. She couldn't get over the fact that I looked so healthy and had CF. Then we talked and talked and talked... Before I knew it, I did have about 15 people surrounding me. Some were CF parents. We exchanged phone numbers, emails, and addresses. I offered to speak at any other CF event so long as I wouldn't really be exposed to other CFers and to her later if she wanted to. She was thrilled! This event was the first one hosted at Reading ever! She said she will surely use me in the future, not just for this event but others as well.

All in all, I had a great time. I really enjoyed myself. A few times they pointed out the life expectency and tears kind of started to fill my eyes. I tried to focus on something else for just a few seconds. They also had said a prayer in the beginning that also made me slightly emotional, but I concealed it well. No one knew, other than Bob Fisher, that I had CF.

I never really got to dance, though. DARN! Jake was thrilled about that! It was already 10:00 after the raffle drawing so it was time to leave.

Still, I really enjoyed everything! I would do it again. You know, my whole life I never really felt like anyone cared...ANYONE. Except for my family, husband, and well you know...It was nice to see that there really are some people from the most unlikely sources that do care...It was nice to for once feel like I did kind of matter outside of my direct family...I NEVER really noticed how much I felt this way until I went to that event...

Well anyway, I am going to post some pics. Enjoy!!! Sorry, if I mess this up!!!!!!
 

Jennifer1981

New member
Hi Everyone!!!

Okay, I have lots to share with all of you and some pics (which aren't the best quality thanks to my hubby, Jake). LOL! I should demote him from picture duty!

Well, Saturday I started getting ready around 12:30 even though it didn't start until 6:00. I was sooooooooo nervous! My mom showed up around 1:00 to bring some of the special makeup I had ordered from Avon and to offer help getting ready or whatever I needed. Of course, I took full advantage of that. It's great to have Moms!!!

So by 2:30, I was completely ready to go. I showed up at Jake's workplace and showed him my "look". He had no idea what I was going to wear. His face immediately turned red (in a good way) and said I should put my black leather jacket back on. He was embrassed and didn't want the other guys to be staring at me. He finished around 3:00, and we went to the local mall to kill some time.

At 5:45, we arrived at the Berkshire Country Club. OMG!!!! This place is a 5-star kind of place. There I finally met Sandy, the lady that Jake works with that asked me in the first place if I wanted to attend this event. She was really nice, and we clicked immediately. She walked us over to the main check-in table where we were handed an envelope filled with a program, raffle tickets, and our seating table. Jake went to sit down, but she and I checked out the raffle and auction items. The items that were to be auctioned were signed paintings, tickets to Phillies games, 1 week long resorts to Myrtle Beach, S.C. and so much more. There were 46 items in all to be auctioned off. The raffle prizes were things like $20.00 gift certificates to get yoga or hair care, purses, hand cream kits, cooking stuff and on and on. I'm sure you get the idea. There were around 100 of those raffles prizes. We each placed our raffle number tickets into some of the raffle item drawings that we wanted to win.

Next she showed me the food and bar area. OMG!!! They had unlimited free drinks and food. There were 5 international food stations, each with 4-5 different entrees For example, one was Italian. That station had eggplant parm, stuffed shells, creamy alfredo, and two others. Three of the five stations were Italian, Greek, and Spanish. I guess you know which ones I ate from since those are the only ones I remember...

Then, we searched endlessly for Cindy, the woman who set all of this up. We couldn't find her out of the 213 people that attended. I was to speak with her about my speech beforehand. Like I said, Sandy (Jake's co-worker) was the middle-man. It was discussed that I would speak, but we wanted to meet first. Well, I couldn't find her.

So we finally sat down with request from one of the sponsers. At our table was 4 other people from Bob Fisher Chevrolet. They were the big shots. I thanked them up and down for the opportunity. The wife of the highest big shot loved me so that was a really good thing. The others liked me too, but she was the most noticeable.

Anyways, the one sponser spoke. Then another. Then there was this slideshow about Cindy's 3-year-old daughter, Amelia, who has CF. That's was when I found/met Cindy...but it was too late. I DIDN'T get the opportunity to speak! I was disappointed but knew I'd catch her later.

After that, there was the auction, which took nearly 2 hours. THEY RAISED $11,400.00 FOR CF RESEARCH IN THAT 2 HOURS!!! Some of the paintings went for $400 each!!! Other items, like 2 100% real cheetah fur pillows went for $700.00!!! I know! Crazy money!!!

Then, there was the raffle prizes. I WON A GOLD PURSE/BACKPACK! I thought it was so cool since I never even was able to win an Easter egg hunt or anything!!! LOL! Also, I happened to be sitting at the marked chair at my table and won the centerpiece!!! I know, cool!

FINALLY, I had a chance to approach Cindy, which I embraced. I said, "Hi, I'm Jennifer Cuello, the 25-year-old with CF that Sandy told you about." Her eyes nearly popped out of her head. She couldn't get over the fact that I looked so healthy and had CF. Then we talked and talked and talked... Before I knew it, I did have about 15 people surrounding me. Some were CF parents. We exchanged phone numbers, emails, and addresses. I offered to speak at any other CF event so long as I wouldn't really be exposed to other CFers and to her later if she wanted to. She was thrilled! This event was the first one hosted at Reading ever! She said she will surely use me in the future, not just for this event but others as well.

All in all, I had a great time. I really enjoyed myself. A few times they pointed out the life expectency and tears kind of started to fill my eyes. I tried to focus on something else for just a few seconds. They also had said a prayer in the beginning that also made me slightly emotional, but I concealed it well. No one knew, other than Bob Fisher, that I had CF.

I never really got to dance, though. DARN! Jake was thrilled about that! It was already 10:00 after the raffle drawing so it was time to leave.

Still, I really enjoyed everything! I would do it again. You know, my whole life I never really felt like anyone cared...ANYONE. Except for my family, husband, and well you know...It was nice to see that there really are some people from the most unlikely sources that do care...It was nice to for once feel like I did kind of matter outside of my direct family...I NEVER really noticed how much I felt this way until I went to that event...

Well anyway, I am going to post some pics. Enjoy!!! Sorry, if I mess this up!!!!!!
 

Jennifer1981

New member
Hi Everyone!!!

Okay, I have lots to share with all of you and some pics (which aren't the best quality thanks to my hubby, Jake). LOL! I should demote him from picture duty!

Well, Saturday I started getting ready around 12:30 even though it didn't start until 6:00. I was sooooooooo nervous! My mom showed up around 1:00 to bring some of the special makeup I had ordered from Avon and to offer help getting ready or whatever I needed. Of course, I took full advantage of that. It's great to have Moms!!!

So by 2:30, I was completely ready to go. I showed up at Jake's workplace and showed him my "look". He had no idea what I was going to wear. His face immediately turned red (in a good way) and said I should put my black leather jacket back on. He was embrassed and didn't want the other guys to be staring at me. He finished around 3:00, and we went to the local mall to kill some time.

At 5:45, we arrived at the Berkshire Country Club. OMG!!!! This place is a 5-star kind of place. There I finally met Sandy, the lady that Jake works with that asked me in the first place if I wanted to attend this event. She was really nice, and we clicked immediately. She walked us over to the main check-in table where we were handed an envelope filled with a program, raffle tickets, and our seating table. Jake went to sit down, but she and I checked out the raffle and auction items. The items that were to be auctioned were signed paintings, tickets to Phillies games, 1 week long resorts to Myrtle Beach, S.C. and so much more. There were 46 items in all to be auctioned off. The raffle prizes were things like $20.00 gift certificates to get yoga or hair care, purses, hand cream kits, cooking stuff and on and on. I'm sure you get the idea. There were around 100 of those raffles prizes. We each placed our raffle number tickets into some of the raffle item drawings that we wanted to win.

Next she showed me the food and bar area. OMG!!! They had unlimited free drinks and food. There were 5 international food stations, each with 4-5 different entrees For example, one was Italian. That station had eggplant parm, stuffed shells, creamy alfredo, and two others. Three of the five stations were Italian, Greek, and Spanish. I guess you know which ones I ate from since those are the only ones I remember...

Then, we searched endlessly for Cindy, the woman who set all of this up. We couldn't find her out of the 213 people that attended. I was to speak with her about my speech beforehand. Like I said, Sandy (Jake's co-worker) was the middle-man. It was discussed that I would speak, but we wanted to meet first. Well, I couldn't find her.

So we finally sat down with request from one of the sponsers. At our table was 4 other people from Bob Fisher Chevrolet. They were the big shots. I thanked them up and down for the opportunity. The wife of the highest big shot loved me so that was a really good thing. The others liked me too, but she was the most noticeable.

Anyways, the one sponser spoke. Then another. Then there was this slideshow about Cindy's 3-year-old daughter, Amelia, who has CF. That's was when I found/met Cindy...but it was too late. I DIDN'T get the opportunity to speak! I was disappointed but knew I'd catch her later.

After that, there was the auction, which took nearly 2 hours. THEY RAISED $11,400.00 FOR CF RESEARCH IN THAT 2 HOURS!!! Some of the paintings went for $400 each!!! Other items, like 2 100% real cheetah fur pillows went for $700.00!!! I know! Crazy money!!!

Then, there was the raffle prizes. I WON A GOLD PURSE/BACKPACK! I thought it was so cool since I never even was able to win an Easter egg hunt or anything!!! LOL! Also, I happened to be sitting at the marked chair at my table and won the centerpiece!!! I know, cool!

FINALLY, I had a chance to approach Cindy, which I embraced. I said, "Hi, I'm Jennifer Cuello, the 25-year-old with CF that Sandy told you about." Her eyes nearly popped out of her head. She couldn't get over the fact that I looked so healthy and had CF. Then we talked and talked and talked... Before I knew it, I did have about 15 people surrounding me. Some were CF parents. We exchanged phone numbers, emails, and addresses. I offered to speak at any other CF event so long as I wouldn't really be exposed to other CFers and to her later if she wanted to. She was thrilled! This event was the first one hosted at Reading ever! She said she will surely use me in the future, not just for this event but others as well.

All in all, I had a great time. I really enjoyed myself. A few times they pointed out the life expectency and tears kind of started to fill my eyes. I tried to focus on something else for just a few seconds. They also had said a prayer in the beginning that also made me slightly emotional, but I concealed it well. No one knew, other than Bob Fisher, that I had CF.

I never really got to dance, though. DARN! Jake was thrilled about that! It was already 10:00 after the raffle drawing so it was time to leave.

Still, I really enjoyed everything! I would do it again. You know, my whole life I never really felt like anyone cared...ANYONE. Except for my family, husband, and well you know...It was nice to see that there really are some people from the most unlikely sources that do care...It was nice to for once feel like I did kind of matter outside of my direct family...I NEVER really noticed how much I felt this way until I went to that event...

Well anyway, I am going to post some pics. Enjoy!!! Sorry, if I mess this up!!!!!!
 

JazzysMom

New member
OH Jennifer! I cried and smiled thru your whole post. I felt the nervousness and the excitement all at the same time. It sounds like you had a great time and that it was very beneficial for everyone that you went!
 

JazzysMom

New member
OH Jennifer! I cried and smiled thru your whole post. I felt the nervousness and the excitement all at the same time. It sounds like you had a great time and that it was very beneficial for everyone that you went!
 

JazzysMom

New member
OH Jennifer! I cried and smiled thru your whole post. I felt the nervousness and the excitement all at the same time. It sounds like you had a great time and that it was very beneficial for everyone that you went!
 

Jennifer1981

New member
Okay, I had around 13 pics, but this was all I was allowed to do. If you know how to help me get them all, let me know!!!<img src="i/expressions/heart.gif" border="0">
 

Jennifer1981

New member
Okay, I had around 13 pics, but this was all I was allowed to do. If you know how to help me get them all, let me know!!!<img src="i/expressions/heart.gif" border="0">
 

Jennifer1981

New member
Okay, I had around 13 pics, but this was all I was allowed to do. If you know how to help me get them all, let me know!!!<img src="i/expressions/heart.gif" border="0">
 

Samsmom

New member
Wow Jennifer!!! What an opportunity you had. You look great and I'm so happy for you. It sounds like you had a wonderful night and a wild ride getting there. Savor the moment!!!<img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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