What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

What is the most painful part of the transplant

Trizzanne74

New member
pain, mine was painless.

hahaha JK.

I agree with the chest tubes, they were uncomfortable and my biggest complaint was having a hard time sleeping because I couldn't move to my sides. I had 7-8 tubes, more than the usual. I had some incisional pain, mainly when I had to cough (ugggh) and some shoulder pain. But nothing I couldn't or the medicine couldn't handle : ) I wasn't a big fan of the epidural though.

PS
 

Trizzanne74

New member
pain, mine was painless.

hahaha JK.

I agree with the chest tubes, they were uncomfortable and my biggest complaint was having a hard time sleeping because I couldn't move to my sides. I had 7-8 tubes, more than the usual. I had some incisional pain, mainly when I had to cough (ugggh) and some shoulder pain. But nothing I couldn't or the medicine couldn't handle : ) I wasn't a big fan of the epidural though.

PS
 

Trizzanne74

New member
pain, mine was painless.

hahaha JK.

I agree with the chest tubes, they were uncomfortable and my biggest complaint was having a hard time sleeping because I couldn't move to my sides. I had 7-8 tubes, more than the usual. I had some incisional pain, mainly when I had to cough (ugggh) and some shoulder pain. But nothing I couldn't or the medicine couldn't handle : ) I wasn't a big fan of the epidural though.

PS
 

Trizzanne74

New member
pain, mine was painless.

hahaha JK.

I agree with the chest tubes, they were uncomfortable and my biggest complaint was having a hard time sleeping because I couldn't move to my sides. I had 7-8 tubes, more than the usual. I had some incisional pain, mainly when I had to cough (ugggh) and some shoulder pain. But nothing I couldn't or the medicine couldn't handle : ) I wasn't a big fan of the epidural though.

PS
 

Trizzanne74

New member
pain, mine was painless.
<br />
<br /> hahaha JK.
<br />
<br />I agree with the chest tubes, they were uncomfortable and my biggest complaint was having a hard time sleeping because I couldn't move to my sides. I had 7-8 tubes, more than the usual. I had some incisional pain, mainly when I had to cough (ugggh) and some shoulder pain. But nothing I couldn't or the medicine couldn't handle : ) I wasn't a big fan of the epidural though.
<br />
<br />PS
 

Scars

New member
chesttubes, I couldnt sleep for 2 weeks. I was in the hospital for 34 days after the surgery. Long time I know. My incision didnt hurt at all, itchy but no pain. Not be able to go to the bathroom for a week hurt like hell when it finally happened too.....lol.....ouch!!!
 

Scars

New member
chesttubes, I couldnt sleep for 2 weeks. I was in the hospital for 34 days after the surgery. Long time I know. My incision didnt hurt at all, itchy but no pain. Not be able to go to the bathroom for a week hurt like hell when it finally happened too.....lol.....ouch!!!
 

Scars

New member
chesttubes, I couldnt sleep for 2 weeks. I was in the hospital for 34 days after the surgery. Long time I know. My incision didnt hurt at all, itchy but no pain. Not be able to go to the bathroom for a week hurt like hell when it finally happened too.....lol.....ouch!!!
 

Scars

New member
chesttubes, I couldnt sleep for 2 weeks. I was in the hospital for 34 days after the surgery. Long time I know. My incision didnt hurt at all, itchy but no pain. Not be able to go to the bathroom for a week hurt like hell when it finally happened too.....lol.....ouch!!!
 

Scars

New member
chesttubes, I couldnt sleep for 2 weeks. I was in the hospital for 34 days after the surgery. Long time I know. My incision didnt hurt at all, itchy but no pain. Not be able to go to the bathroom for a week hurt like hell when it finally happened too.....lol.....ouch!!!
 

jamiebug

New member
nicolaj-
Ok- remember a lot of people posting seem to have been or are Cepacia free......I saw you are cepacia. I was Cepacia transplant and there can be many complications due to that. For instance I got cepacia pnumonia with in a week of my transplant, that set me back to the ICU for weeks- I was off the the ventilator and everything before I got sick- It took me a long time to get off it the second time. I was in the hospital for 51 days.....if there is complications your health will be affected and recovery time will be longer- You may do super, I hope you do! But I know first hand what Cepacia can do post transplant.

GOOD LUCK!
 

jamiebug

New member
nicolaj-
Ok- remember a lot of people posting seem to have been or are Cepacia free......I saw you are cepacia. I was Cepacia transplant and there can be many complications due to that. For instance I got cepacia pnumonia with in a week of my transplant, that set me back to the ICU for weeks- I was off the the ventilator and everything before I got sick- It took me a long time to get off it the second time. I was in the hospital for 51 days.....if there is complications your health will be affected and recovery time will be longer- You may do super, I hope you do! But I know first hand what Cepacia can do post transplant.

GOOD LUCK!
 

jamiebug

New member
nicolaj-
Ok- remember a lot of people posting seem to have been or are Cepacia free......I saw you are cepacia. I was Cepacia transplant and there can be many complications due to that. For instance I got cepacia pnumonia with in a week of my transplant, that set me back to the ICU for weeks- I was off the the ventilator and everything before I got sick- It took me a long time to get off it the second time. I was in the hospital for 51 days.....if there is complications your health will be affected and recovery time will be longer- You may do super, I hope you do! But I know first hand what Cepacia can do post transplant.

GOOD LUCK!
 

jamiebug

New member
nicolaj-
Ok- remember a lot of people posting seem to have been or are Cepacia free......I saw you are cepacia. I was Cepacia transplant and there can be many complications due to that. For instance I got cepacia pnumonia with in a week of my transplant, that set me back to the ICU for weeks- I was off the the ventilator and everything before I got sick- It took me a long time to get off it the second time. I was in the hospital for 51 days.....if there is complications your health will be affected and recovery time will be longer- You may do super, I hope you do! But I know first hand what Cepacia can do post transplant.

GOOD LUCK!
 

jamiebug

New member
nicolaj-
<br />Ok- remember a lot of people posting seem to have been or are Cepacia free......I saw you are cepacia. I was Cepacia transplant and there can be many complications due to that. For instance I got cepacia pnumonia with in a week of my transplant, that set me back to the ICU for weeks- I was off the the ventilator and everything before I got sick- It took me a long time to get off it the second time. I was in the hospital for 51 days.....if there is complications your health will be affected and recovery time will be longer- You may do super, I hope you do! But I know first hand what Cepacia can do post transplant.
<br />
<br />GOOD LUCK!
 
Top