What makes you feel better when you're a bit down?

[iwantmypup]

Especially when I'm sick, I start to get really depressed about CF. The same question goes on in my head, "Why me?!".
I'm usually really positive, but when I really start to think about it, CF really sucks.
I know how many advances there have been in the last 10-20 years, I know there are people living beyond the "37.4 life expectancy." But it doesn't make it any easier.
I'm worried I'll miss out on so many things...I'm worried I won't accomplish anything, or I'll have spent my whole life in school. I know you're not supposed to let CF run your life, but it's hard when you can't do certain things because you have to do treatments or when you miss weeks of school for being sick.
I've been sorta fortunate with my CF so far, every time my lung function numbers go down, I can always get them up. I can always gain the weight back. I just keep thinking about the future and when the numbers won't go back up, and it scares me.

Sorry, I didn't mean to write so much as it was just a simple question, lol. I just know that if anyone understands, more than doctors or nurses, it's you guys.

 

[iwantmypup]

Especially when I'm sick, I start to get really depressed about CF. The same question goes on in my head, "Why me?!".
I'm usually really positive, but when I really start to think about it, CF really sucks.
I know how many advances there have been in the last 10-20 years, I know there are people living beyond the "37.4 life expectancy." But it doesn't make it any easier.
I'm worried I'll miss out on so many things...I'm worried I won't accomplish anything, or I'll have spent my whole life in school. I know you're not supposed to let CF run your life, but it's hard when you can't do certain things because you have to do treatments or when you miss weeks of school for being sick.
I've been sorta fortunate with my CF so far, every time my lung function numbers go down, I can always get them up. I can always gain the weight back. I just keep thinking about the future and when the numbers won't go back up, and it scares me.

Sorry, I didn't mean to write so much as it was just a simple question, lol. I just know that if anyone understands, more than doctors or nurses, it's you guys.

 

[iwantmypup]

Especially when I'm sick, I start to get really depressed about CF. The same question goes on in my head, "Why me?!".
<br />I'm usually really positive, but when I really start to think about it, CF really sucks.
<br />I know how many advances there have been in the last 10-20 years, I know there are people living beyond the "37.4 life expectancy." But it doesn't make it any easier.
<br />I'm worried I'll miss out on so many things...I'm worried I won't accomplish anything, or I'll have spent my whole life in school. I know you're not supposed to let CF run your life, but it's hard when you can't do certain things because you have to do treatments or when you miss weeks of school for being sick.
<br />I've been sorta fortunate with my CF so far, every time my lung function numbers go down, I can always get them up. I can always gain the weight back. I just keep thinking about the future and when the numbers won't go back up, and it scares me.
<br />
<br />Sorry, I didn't mean to write so much as it was just a simple question, lol. I just know that if anyone understands, more than doctors or nurses, it's you guys.

 

[Twistofchaos]

I see you are 14. Well, CF is a life long lesson, as life itself i guess but for some it's easier than others.
What helps for me is to not focus so much on those around me and their acceptance, accomplishments and trying to keep up with them. Chances are you won't be able to now or later. But rather focus on who you are, get to know yourself and recognise your own worth and seek comfort in your own interests, knowledge (as a CF'er you're likely forced to grow smart pretty fast) and so on.
That doesn't mean you have to reject everyone around you but you can be a little picky and precise with who you invest your limited energy. Eventually or looking back you might even realise that's a good thing..
Well, when I'm down I listen to music, i read books, i go out into nature and seek things or likeminded souls (that's where the internet can come in, even though it's not entirely the same it can sometimes be impossible to find likeminded people around you, and then it's better than nothing) that comfort me.

 

[Twistofchaos]

I see you are 14. Well, CF is a life long lesson, as life itself i guess but for some it's easier than others.
What helps for me is to not focus so much on those around me and their acceptance, accomplishments and trying to keep up with them. Chances are you won't be able to now or later. But rather focus on who you are, get to know yourself and recognise your own worth and seek comfort in your own interests, knowledge (as a CF'er you're likely forced to grow smart pretty fast) and so on.
That doesn't mean you have to reject everyone around you but you can be a little picky and precise with who you invest your limited energy. Eventually or looking back you might even realise that's a good thing..
Well, when I'm down I listen to music, i read books, i go out into nature and seek things or likeminded souls (that's where the internet can come in, even though it's not entirely the same it can sometimes be impossible to find likeminded people around you, and then it's better than nothing) that comfort me.

 

[Twistofchaos]

I see you are 14. Well, CF is a life long lesson, as life itself i guess but for some it's easier than others.
<br />What helps for me is to not focus so much on those around me and their acceptance, accomplishments and trying to keep up with them. Chances are you won't be able to now or later. But rather focus on who you are, get to know yourself and recognise your own worth and seek comfort in your own interests, knowledge (as a CF'er you're likely forced to grow smart pretty fast) and so on.
<br />That doesn't mean you have to reject everyone around you but you can be a little picky and precise with who you invest your limited energy. Eventually or looking back you might even realise that's a good thing..
<br />Well, when I'm down I listen to music, i read books, i go out into nature and seek things or likeminded souls (that's where the internet can come in, even though it's not entirely the same it can sometimes be impossible to find likeminded people around you, and then it's better than nothing) that comfort me.

 

[mamaScarlett]

First off, at 14 you seem so much more aware, smarter and a thinking person than I ever was at 14! That can be a really good thing that you can use to your advantage. You're probably more mature in some ways than others your age. You can learn at a much younger age to relate to others, to have empathy for others, and to work hard for what you want.
You are right-Cf sucks. And whether you are 5, 14, or almost 30 (like me!) it always sucks! <img src="i/expressions/face-icon-small-smile.gif" border="0">
BUT-I always tried at your age to use the time I had either stuck in the hospital or stuck at home in a good way. Find something you love and work on it. I was really into art, and that was something I could do wherever I was. Yes it sucked being stuck in the hospital, but on the plus side I had so much more time to develop my art skills and was able to pursue that for a career later in life. I was also really into language, and studied it alot as a teen. I had alot more time to master 2 languages as a teen than my friends ever had!
There's nothing great about Cf, but you can find good things that come either despite it, or good things that come out of it.
As an adult I have a huge love of old movies, and musicals. My mom and I would sit and watch them for hours when I was sick and she'd tell me about the old movie stars lives. Things like that cheered me up, and gave me happy memories despite being sick at the time.
And one thing I never paid attention to was 37.5!!! Listen-I was born in 1982. At that time, my estimated life span was about 8. Then when I was 8, it was about 13, then it was 18. There was a time my mom thought I'll never be able to have a career, get married, have kids. Well I've done all those things. Not everyone is so fortunate, but the point is that things change, and you can accomplish amazing things. Do not pay attention to a number.
Find what you love in life. Work your butt off to be healthy, so you can achieve your dreams, whatever they are.

 

[mamaScarlett]

First off, at 14 you seem so much more aware, smarter and a thinking person than I ever was at 14! That can be a really good thing that you can use to your advantage. You're probably more mature in some ways than others your age. You can learn at a much younger age to relate to others, to have empathy for others, and to work hard for what you want.
You are right-Cf sucks. And whether you are 5, 14, or almost 30 (like me!) it always sucks! <img src="i/expressions/face-icon-small-smile.gif" border="0">
BUT-I always tried at your age to use the time I had either stuck in the hospital or stuck at home in a good way. Find something you love and work on it. I was really into art, and that was something I could do wherever I was. Yes it sucked being stuck in the hospital, but on the plus side I had so much more time to develop my art skills and was able to pursue that for a career later in life. I was also really into language, and studied it alot as a teen. I had alot more time to master 2 languages as a teen than my friends ever had!
There's nothing great about Cf, but you can find good things that come either despite it, or good things that come out of it.
As an adult I have a huge love of old movies, and musicals. My mom and I would sit and watch them for hours when I was sick and she'd tell me about the old movie stars lives. Things like that cheered me up, and gave me happy memories despite being sick at the time.
And one thing I never paid attention to was 37.5!!! Listen-I was born in 1982. At that time, my estimated life span was about 8. Then when I was 8, it was about 13, then it was 18. There was a time my mom thought I'll never be able to have a career, get married, have kids. Well I've done all those things. Not everyone is so fortunate, but the point is that things change, and you can accomplish amazing things. Do not pay attention to a number.
Find what you love in life. Work your butt off to be healthy, so you can achieve your dreams, whatever they are.

 

[mamaScarlett]

First off, at 14 you seem so much more aware, smarter and a thinking person than I ever was at 14! That can be a really good thing that you can use to your advantage. You're probably more mature in some ways than others your age. You can learn at a much younger age to relate to others, to have empathy for others, and to work hard for what you want.
<br />You are right-Cf sucks. And whether you are 5, 14, or almost 30 (like me!) it always sucks! <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />BUT-I always tried at your age to use the time I had either stuck in the hospital or stuck at home in a good way. Find something you love and work on it. I was really into art, and that was something I could do wherever I was. Yes it sucked being stuck in the hospital, but on the plus side I had so much more time to develop my art skills and was able to pursue that for a career later in life. I was also really into language, and studied it alot as a teen. I had alot more time to master 2 languages as a teen than my friends ever had!
<br />There's nothing great about Cf, but you can find good things that come either despite it, or good things that come out of it.
<br />As an adult I have a huge love of old movies, and musicals. My mom and I would sit and watch them for hours when I was sick and she'd tell me about the old movie stars lives. Things like that cheered me up, and gave me happy memories despite being sick at the time.
<br />And one thing I never paid attention to was 37.5!!! Listen-I was born in 1982. At that time, my estimated life span was about 8. Then when I was 8, it was about 13, then it was 18. There was a time my mom thought I'll never be able to have a career, get married, have kids. Well I've done all those things. Not everyone is so fortunate, but the point is that things change, and you can accomplish amazing things. Do not pay attention to a number.
<br />Find what you love in life. Work your butt off to be healthy, so you can achieve your dreams, whatever they are.

 

[Proxy]

When I feel down in the dumps I pet my dogs,hang with friends,call my grandma she always helps me lol,listen to music,read something inspiring or watch something inspiring.
Also this site rly helps to vent on <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Proxy]

When I feel down in the dumps I pet my dogs,hang with friends,call my grandma she always helps me lol,listen to music,read something inspiring or watch something inspiring.
Also this site rly helps to vent on <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Proxy]

When I feel down in the dumps I pet my dogs,hang with friends,call my grandma she always helps me lol,listen to music,read something inspiring or watch something inspiring.
<br />Also this site rly helps to vent on <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[windex125]

MamaScarlett puts it perfectly, first of all get the numbers out of yr. head, stop worrying everytime you get sick you won't bounce back, a postive mind is more special than anything else. You are a bright 14yr. old do not let this disease plan yr. adult yrs. YOU will do the planning, you will be a sucess and go on to live a full life. My Mom was also told I wld not live past 8 I will be 56 in a few weeks. Sure the ride has been like a roller coaster, but so what I did my best. I never let CF think it had the upper hand. Last week I was just diagnosed with a serious stomach disorder. AT 55 I love to eat good food and drink fine wine, will I let this get me down, no way. Holdiay time is coming I have planning to do and I will get a plan of action in place, and hopefully make it over this hill as well. I wish you only the best Pat-55/CF

 

[windex125]

MamaScarlett puts it perfectly, first of all get the numbers out of yr. head, stop worrying everytime you get sick you won't bounce back, a postive mind is more special than anything else. You are a bright 14yr. old do not let this disease plan yr. adult yrs. YOU will do the planning, you will be a sucess and go on to live a full life. My Mom was also told I wld not live past 8 I will be 56 in a few weeks. Sure the ride has been like a roller coaster, but so what I did my best. I never let CF think it had the upper hand. Last week I was just diagnosed with a serious stomach disorder. AT 55 I love to eat good food and drink fine wine, will I let this get me down, no way. Holdiay time is coming I have planning to do and I will get a plan of action in place, and hopefully make it over this hill as well. I wish you only the best Pat-55/CF

 

[windex125]

MamaScarlett puts it perfectly, first of all get the numbers out of yr. head, stop worrying everytime you get sick you won't bounce back, a postive mind is more special than anything else. You are a bright 14yr. old do not let this disease plan yr. adult yrs. YOU will do the planning, you will be a sucess and go on to live a full life. My Mom was also told I wld not live past 8 I will be 56 in a few weeks. Sure the ride has been like a roller coaster, but so what I did my best. I never let CF think it had the upper hand. Last week I was just diagnosed with a serious stomach disorder. AT 55 I love to eat good food and drink fine wine, will I let this get me down, no way. Holdiay time is coming I have planning to do and I will get a plan of action in place, and hopefully make it over this hill as well. I wish you only the best Pat-55/CF