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What Medications/Supplements are you all taking?

M

mltoliver

New member
I have been doing more and more research and am wondering what medications you are all on. I haven't even heard of some medications until this weekend - like mucomyst.

I thought it would be helpful if you could post your/your child's age and what meds your taking?

My daughter is 5, DDF508 and takes the following:

Albuterol - 2 puffs 1 x per day with spacer
Pulmozyme - 2.5 ml nebulized
TOBI - every other month, nebulized 2 x per day. - we are on our second acquisition of pseudamonas and are trying to "eradicate" it. We were given a dose of Cipro - 14 days - in the beginning and then tobramyacin every other month. We are switching to TOBI next month. Any comments about the differnce between TOBI/tobramyacin?
We had used the e-flow, but had a hard time with sterilization and are switching to TOBI with the devilbiss air compressor.
Creon 10 - 3 pills with meals, 1-2 with snacks
Prevacid - once a day for gagging/reflux
Vitamax - 2 ml once a day
 
M

mltoliver

New member
I have been doing more and more research and am wondering what medications you are all on. I haven't even heard of some medications until this weekend - like mucomyst.

I thought it would be helpful if you could post your/your child's age and what meds your taking?

My daughter is 5, DDF508 and takes the following:

Albuterol - 2 puffs 1 x per day with spacer
Pulmozyme - 2.5 ml nebulized
TOBI - every other month, nebulized 2 x per day. - we are on our second acquisition of pseudamonas and are trying to "eradicate" it. We were given a dose of Cipro - 14 days - in the beginning and then tobramyacin every other month. We are switching to TOBI next month. Any comments about the differnce between TOBI/tobramyacin?
We had used the e-flow, but had a hard time with sterilization and are switching to TOBI with the devilbiss air compressor.
Creon 10 - 3 pills with meals, 1-2 with snacks
Prevacid - once a day for gagging/reflux
Vitamax - 2 ml once a day
 
M

mltoliver

New member
I have been doing more and more research and am wondering what medications you are all on. I haven't even heard of some medications until this weekend - like mucomyst.

I thought it would be helpful if you could post your/your child's age and what meds your taking?

My daughter is 5, DDF508 and takes the following:

Albuterol - 2 puffs 1 x per day with spacer
Pulmozyme - 2.5 ml nebulized
TOBI - every other month, nebulized 2 x per day. - we are on our second acquisition of pseudamonas and are trying to "eradicate" it. We were given a dose of Cipro - 14 days - in the beginning and then tobramyacin every other month. We are switching to TOBI next month. Any comments about the differnce between TOBI/tobramyacin?
We had used the e-flow, but had a hard time with sterilization and are switching to TOBI with the devilbiss air compressor.
Creon 10 - 3 pills with meals, 1-2 with snacks
Prevacid - once a day for gagging/reflux
Vitamax - 2 ml once a day
 
M

mltoliver

New member
I have been doing more and more research and am wondering what medications you are all on. I haven't even heard of some medications until this weekend - like mucomyst.

I thought it would be helpful if you could post your/your child's age and what meds your taking?

My daughter is 5, DDF508 and takes the following:

Albuterol - 2 puffs 1 x per day with spacer
Pulmozyme - 2.5 ml nebulized
TOBI - every other month, nebulized 2 x per day. - we are on our second acquisition of pseudamonas and are trying to "eradicate" it. We were given a dose of Cipro - 14 days - in the beginning and then tobramyacin every other month. We are switching to TOBI next month. Any comments about the differnce between TOBI/tobramyacin?
We had used the e-flow, but had a hard time with sterilization and are switching to TOBI with the devilbiss air compressor.
Creon 10 - 3 pills with meals, 1-2 with snacks
Prevacid - once a day for gagging/reflux
Vitamax - 2 ml once a day
 
M

mltoliver

New member
I have been doing more and more research and am wondering what medications you are all on. I haven't even heard of some medications until this weekend - like mucomyst.
<br />
<br />I thought it would be helpful if you could post your/your child's age and what meds your taking?
<br />
<br />My daughter is 5, DDF508 and takes the following:
<br />
<br />Albuterol - 2 puffs 1 x per day with spacer
<br />Pulmozyme - 2.5 ml nebulized
<br />TOBI - every other month, nebulized 2 x per day. - we are on our second acquisition of pseudamonas and are trying to "eradicate" it. We were given a dose of Cipro - 14 days - in the beginning and then tobramyacin every other month. We are switching to TOBI next month. Any comments about the differnce between TOBI/tobramyacin?
<br />We had used the e-flow, but had a hard time with sterilization and are switching to TOBI with the devilbiss air compressor.
<br />Creon 10 - 3 pills with meals, 1-2 with snacks
<br />Prevacid - once a day for gagging/reflux
<br />Vitamax - 2 ml once a day
 
T

Tcole

New member
My daughter is 10 months and takes

Albuterol 3ml 2x a day with neb
Flovent 2 puffs 2x a day with spacer
Dornase 2.5ml 1x a day with neb
Vitamax .5ml 2x a day
Prevacid 3ml 2x day
Zinc 5ml 1x day
Vitamin D .25ml 2x a day
Creon 5 she gets 4 with meals and 2-3 with snacks and needs 3 bolus a day and we try to do them with meals or snacks. At night she gets 5 creon before bed eats overnite feeds and 5 creon when she gets up.
 
T

Tcole

New member
My daughter is 10 months and takes

Albuterol 3ml 2x a day with neb
Flovent 2 puffs 2x a day with spacer
Dornase 2.5ml 1x a day with neb
Vitamax .5ml 2x a day
Prevacid 3ml 2x day
Zinc 5ml 1x day
Vitamin D .25ml 2x a day
Creon 5 she gets 4 with meals and 2-3 with snacks and needs 3 bolus a day and we try to do them with meals or snacks. At night she gets 5 creon before bed eats overnite feeds and 5 creon when she gets up.
 
T

Tcole

New member
My daughter is 10 months and takes

Albuterol 3ml 2x a day with neb
Flovent 2 puffs 2x a day with spacer
Dornase 2.5ml 1x a day with neb
Vitamax .5ml 2x a day
Prevacid 3ml 2x day
Zinc 5ml 1x day
Vitamin D .25ml 2x a day
Creon 5 she gets 4 with meals and 2-3 with snacks and needs 3 bolus a day and we try to do them with meals or snacks. At night she gets 5 creon before bed eats overnite feeds and 5 creon when she gets up.
 
T

Tcole

New member
My daughter is 10 months and takes

Albuterol 3ml 2x a day with neb
Flovent 2 puffs 2x a day with spacer
Dornase 2.5ml 1x a day with neb
Vitamax .5ml 2x a day
Prevacid 3ml 2x day
Zinc 5ml 1x day
Vitamin D .25ml 2x a day
Creon 5 she gets 4 with meals and 2-3 with snacks and needs 3 bolus a day and we try to do them with meals or snacks. At night she gets 5 creon before bed eats overnite feeds and 5 creon when she gets up.
 
T

Tcole

New member
My daughter is 10 months and takes
<br />
<br />Albuterol 3ml 2x a day with neb
<br />Flovent 2 puffs 2x a day with spacer
<br />Dornase 2.5ml 1x a day with neb
<br />Vitamax .5ml 2x a day
<br />Prevacid 3ml 2x day
<br />Zinc 5ml 1x day
<br />Vitamin D .25ml 2x a day
<br />Creon 5 she gets 4 with meals and 2-3 with snacks and needs 3 bolus a day and we try to do them with meals or snacks. At night she gets 5 creon before bed eats overnite feeds and 5 creon when she gets up.
 
J

Jeana

New member
You are probably looking for what kids take, but thought I'd reply anyway. I am 32 and take:
Pulmozyme 1x daily
Xopenex 2x daily
Albuterol as needed (about every 4 hours during the day)
Hypertonic 3% 2x daily
Vest 1x daily
Aquadex 2 daily
Pancrease MT20 3 with meals, 2 with snack
Vit K 2.5g twice weekly
Folic Acid 400mg for nursing
Tums as needed for acid/calcium
Benadryl as needed for allergies
 
J

Jeana

New member
You are probably looking for what kids take, but thought I'd reply anyway. I am 32 and take:
Pulmozyme 1x daily
Xopenex 2x daily
Albuterol as needed (about every 4 hours during the day)
Hypertonic 3% 2x daily
Vest 1x daily
Aquadex 2 daily
Pancrease MT20 3 with meals, 2 with snack
Vit K 2.5g twice weekly
Folic Acid 400mg for nursing
Tums as needed for acid/calcium
Benadryl as needed for allergies
 
J

Jeana

New member
You are probably looking for what kids take, but thought I'd reply anyway. I am 32 and take:
Pulmozyme 1x daily
Xopenex 2x daily
Albuterol as needed (about every 4 hours during the day)
Hypertonic 3% 2x daily
Vest 1x daily
Aquadex 2 daily
Pancrease MT20 3 with meals, 2 with snack
Vit K 2.5g twice weekly
Folic Acid 400mg for nursing
Tums as needed for acid/calcium
Benadryl as needed for allergies
 
J

Jeana

New member
You are probably looking for what kids take, but thought I'd reply anyway. I am 32 and take:
Pulmozyme 1x daily
Xopenex 2x daily
Albuterol as needed (about every 4 hours during the day)
Hypertonic 3% 2x daily
Vest 1x daily
Aquadex 2 daily
Pancrease MT20 3 with meals, 2 with snack
Vit K 2.5g twice weekly
Folic Acid 400mg for nursing
Tums as needed for acid/calcium
Benadryl as needed for allergies
 
J

Jeana

New member
You are probably looking for what kids take, but thought I'd reply anyway. I am 32 and take:
<br />Pulmozyme 1x daily
<br />Xopenex 2x daily
<br />Albuterol as needed (about every 4 hours during the day)
<br />Hypertonic 3% 2x daily
<br />Vest 1x daily
<br />Aquadex 2 daily
<br />Pancrease MT20 3 with meals, 2 with snack
<br />Vit K 2.5g twice weekly
<br />Folic Acid 400mg for nursing
<br />Tums as needed for acid/calcium
<br />Benadryl as needed for allergies
 
R

Ratatosk

Administrator
Staff member
DS is 5 1/2, DDF508 and takes the following:

<UL>Albuterol & Atrovent nebulized 3 times a day with 30 minutes of vest or cpt.
Pulmozyme - 2.5 ml nebulized once a day.
TOBI - every other month, nebulized 2 x per day every other month.
Pancrease MT 10s - 5 pills with meals, 2-3 with snacks
Source CF Chewable Vitamins - 2 per day.
400 IU Vitamin E & 8000-10000 IU Vitamin A once a day
Vitamin K - 1 5 mg tablet once a week
Keflex capsule(abx) 4 times a day
Septra tablet twice a day
Zithromax 250 mg tablet once every other day
Actigal (bile salts) 7.5 ml 3 times per day</UL>
 
R

Ratatosk

Administrator
Staff member
DS is 5 1/2, DDF508 and takes the following:

<UL>Albuterol & Atrovent nebulized 3 times a day with 30 minutes of vest or cpt.
Pulmozyme - 2.5 ml nebulized once a day.
TOBI - every other month, nebulized 2 x per day every other month.
Pancrease MT 10s - 5 pills with meals, 2-3 with snacks
Source CF Chewable Vitamins - 2 per day.
400 IU Vitamin E & 8000-10000 IU Vitamin A once a day
Vitamin K - 1 5 mg tablet once a week
Keflex capsule(abx) 4 times a day
Septra tablet twice a day
Zithromax 250 mg tablet once every other day
Actigal (bile salts) 7.5 ml 3 times per day</UL>
 
R

Ratatosk

Administrator
Staff member
DS is 5 1/2, DDF508 and takes the following:

<UL>Albuterol & Atrovent nebulized 3 times a day with 30 minutes of vest or cpt.
Pulmozyme - 2.5 ml nebulized once a day.
TOBI - every other month, nebulized 2 x per day every other month.
Pancrease MT 10s - 5 pills with meals, 2-3 with snacks
Source CF Chewable Vitamins - 2 per day.
400 IU Vitamin E & 8000-10000 IU Vitamin A once a day
Vitamin K - 1 5 mg tablet once a week
Keflex capsule(abx) 4 times a day
Septra tablet twice a day
Zithromax 250 mg tablet once every other day
Actigal (bile salts) 7.5 ml 3 times per day</UL>
 
R

Ratatosk

Administrator
Staff member
DS is 5 1/2, DDF508 and takes the following:

<UL>Albuterol & Atrovent nebulized 3 times a day with 30 minutes of vest or cpt.
Pulmozyme - 2.5 ml nebulized once a day.
TOBI - every other month, nebulized 2 x per day every other month.
Pancrease MT 10s - 5 pills with meals, 2-3 with snacks
Source CF Chewable Vitamins - 2 per day.
400 IU Vitamin E & 8000-10000 IU Vitamin A once a day
Vitamin K - 1 5 mg tablet once a week
Keflex capsule(abx) 4 times a day
Septra tablet twice a day
Zithromax 250 mg tablet once every other day
Actigal (bile salts) 7.5 ml 3 times per day</UL>
 
R

Ratatosk

Administrator
Staff member
DS is 5 1/2, DDF508 and takes the following:
<br />
<br /><UL>Albuterol & Atrovent nebulized 3 times a day with 30 minutes of vest or cpt.
<br />Pulmozyme - 2.5 ml nebulized once a day.
<br />TOBI - every other month, nebulized 2 x per day every other month.
<br />Pancrease MT 10s - 5 pills with meals, 2-3 with snacks
<br />Source CF Chewable Vitamins - 2 per day.
<br />400 IU Vitamin E & 8000-10000 IU Vitamin A once a day
<br />Vitamin K - 1 5 mg tablet once a week
<br />Keflex capsule(abx) 4 times a day
<br />Septra tablet twice a day
<br />Zithromax 250 mg tablet once every other day
<br />Actigal (bile salts) 7.5 ml 3 times per day</UL>
 
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