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What Medications/Supplements are you all taking?

Rebjane

Super Moderator
My daughter takes:

Culturelle one capsule once a day
Zantac 5 ml twice a day
Fish oil capsule once a day.
Bactrim 1 1/2 tablets once a day
Singulair 5mg chewable at night
Pancreacarb MS 16 4 cap with meals 3 with snacks
Pancreacarb MS 8 one cap with meals
Aqua ADEKs once a day

Nebs:

Albuterol with Pulmicort twice a day
Albuterol Neb in afternoon once a day
Pulmozyme once a day
Hypersal twice a day

VEST 20 min 3 times a day


I think that's it
 

Rebjane

Super Moderator
My daughter takes:

Culturelle one capsule once a day
Zantac 5 ml twice a day
Fish oil capsule once a day.
Bactrim 1 1/2 tablets once a day
Singulair 5mg chewable at night
Pancreacarb MS 16 4 cap with meals 3 with snacks
Pancreacarb MS 8 one cap with meals
Aqua ADEKs once a day

Nebs:

Albuterol with Pulmicort twice a day
Albuterol Neb in afternoon once a day
Pulmozyme once a day
Hypersal twice a day

VEST 20 min 3 times a day


I think that's it
 

Rebjane

Super Moderator
My daughter takes:

Culturelle one capsule once a day
Zantac 5 ml twice a day
Fish oil capsule once a day.
Bactrim 1 1/2 tablets once a day
Singulair 5mg chewable at night
Pancreacarb MS 16 4 cap with meals 3 with snacks
Pancreacarb MS 8 one cap with meals
Aqua ADEKs once a day

Nebs:

Albuterol with Pulmicort twice a day
Albuterol Neb in afternoon once a day
Pulmozyme once a day
Hypersal twice a day

VEST 20 min 3 times a day


I think that's it
 

Rebjane

Super Moderator
My daughter takes:

Culturelle one capsule once a day
Zantac 5 ml twice a day
Fish oil capsule once a day.
Bactrim 1 1/2 tablets once a day
Singulair 5mg chewable at night
Pancreacarb MS 16 4 cap with meals 3 with snacks
Pancreacarb MS 8 one cap with meals
Aqua ADEKs once a day

Nebs:

Albuterol with Pulmicort twice a day
Albuterol Neb in afternoon once a day
Pulmozyme once a day
Hypersal twice a day

VEST 20 min 3 times a day


I think that's it
 

Rebjane

Super Moderator
My daughter takes:

Culturelle one capsule once a day
Zantac 5 ml twice a day
Fish oil capsule once a day.
Bactrim 1 1/2 tablets once a day
Singulair 5mg chewable at night
Pancreacarb MS 16 4 cap with meals 3 with snacks
Pancreacarb MS 8 one cap with meals
Aqua ADEKs once a day

Nebs:

Albuterol with Pulmicort twice a day
Albuterol Neb in afternoon once a day
Pulmozyme once a day
Hypersal twice a day

VEST 20 min 3 times a day


I think that's it
 

ashmomo

New member
Wow! These poor kids have to deal with so much. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Just when I thought my daughter was on a lot of meds...
She is 4 and does
Pulmozyme once per day neb
Pancreacarb 3 with meals/2 with snacks
Aquadek vitamins 1ml per day
Zantac 2ml twice per day
Boost for Kids 4 per day
 

ashmomo

New member
Wow! These poor kids have to deal with so much. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Just when I thought my daughter was on a lot of meds...
She is 4 and does
Pulmozyme once per day neb
Pancreacarb 3 with meals/2 with snacks
Aquadek vitamins 1ml per day
Zantac 2ml twice per day
Boost for Kids 4 per day
 

ashmomo

New member
Wow! These poor kids have to deal with so much. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Just when I thought my daughter was on a lot of meds...
She is 4 and does
Pulmozyme once per day neb
Pancreacarb 3 with meals/2 with snacks
Aquadek vitamins 1ml per day
Zantac 2ml twice per day
Boost for Kids 4 per day
 

ashmomo

New member
Wow! These poor kids have to deal with so much. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Just when I thought my daughter was on a lot of meds...
She is 4 and does
Pulmozyme once per day neb
Pancreacarb 3 with meals/2 with snacks
Aquadek vitamins 1ml per day
Zantac 2ml twice per day
Boost for Kids 4 per day
 

ashmomo

New member
Wow! These poor kids have to deal with so much. <img src="i/expressions/face-icon-small-sad.gif" border="0"> Just when I thought my daughter was on a lot of meds...
<br />She is 4 and does
<br />Pulmozyme once per day neb
<br />Pancreacarb 3 with meals/2 with snacks
<br />Aquadek vitamins 1ml per day
<br />Zantac 2ml twice per day
<br />Boost for Kids 4 per day
 

fourkidsmom

New member
I keep this list on my computer for Doctors, etc., so I am going to copy and paste it for you.

My son just turned 8 yrs old. He was diagnosed when I was 7 months pregnant.

DAILY MEDICATION LIST:
Cyproheptadine (substituted for Periatin) 10ml's (4 times daily)
2 tsp of lactulose ( 2 times daily)
1 tablet of ADEKS vitamin
1 400 I.U. of Vitamin E
2 Creon 20 enzymes & 1 creon 10 enzyme with each meal
(2 Creon 20 enzymes with any snack throughout the day)
(2 Creon 20 enzymes with pediasure drink only)
Prevacid --15 mgs - 2 times daily
Zithromax- 1 tsp. every Monday, Wednesday and Friday
Omnaris Nasal Spray - 2 squirts in each nostril once daily
Dexamethasone Nasal Spray- 2 squirts each side 2 times daily
Vitamin C- 500 mgs
Miralax- 17 grams daily

Nasal wash with distilled water in the shower
Ocean spray- squirt in each nostril 2-3 times daily

Breathing med's- 4 breathing treatments a day which include these meds.

Pulmozyme - once daily- 2.5 mgs
Albuterol- .5cc's ---4 times daily
Broncho Saline - .9%--2 times daily
Pulmicort -- .5 mg's - twice daily
HTS- 4ml's of 7 %-- twice daily

9 hours of pediasure nightly thru feeding tube--- 100 ml's times 9 hours (4 cans)

2-3 cans of pediasure orally daily

WE DO MONTHLY PORT FLUSHES FOR HIS MED PORT AT HOME WITH .22 GAUGE ¾ IN NEEDLE, 5 ML OF HEPERIN AND 10 ML'S OF SODIUM CHLORIDE.
 

fourkidsmom

New member
I keep this list on my computer for Doctors, etc., so I am going to copy and paste it for you.

My son just turned 8 yrs old. He was diagnosed when I was 7 months pregnant.

DAILY MEDICATION LIST:
Cyproheptadine (substituted for Periatin) 10ml's (4 times daily)
2 tsp of lactulose ( 2 times daily)
1 tablet of ADEKS vitamin
1 400 I.U. of Vitamin E
2 Creon 20 enzymes & 1 creon 10 enzyme with each meal
(2 Creon 20 enzymes with any snack throughout the day)
(2 Creon 20 enzymes with pediasure drink only)
Prevacid --15 mgs - 2 times daily
Zithromax- 1 tsp. every Monday, Wednesday and Friday
Omnaris Nasal Spray - 2 squirts in each nostril once daily
Dexamethasone Nasal Spray- 2 squirts each side 2 times daily
Vitamin C- 500 mgs
Miralax- 17 grams daily

Nasal wash with distilled water in the shower
Ocean spray- squirt in each nostril 2-3 times daily

Breathing med's- 4 breathing treatments a day which include these meds.

Pulmozyme - once daily- 2.5 mgs
Albuterol- .5cc's ---4 times daily
Broncho Saline - .9%--2 times daily
Pulmicort -- .5 mg's - twice daily
HTS- 4ml's of 7 %-- twice daily

9 hours of pediasure nightly thru feeding tube--- 100 ml's times 9 hours (4 cans)

2-3 cans of pediasure orally daily

WE DO MONTHLY PORT FLUSHES FOR HIS MED PORT AT HOME WITH .22 GAUGE ¾ IN NEEDLE, 5 ML OF HEPERIN AND 10 ML'S OF SODIUM CHLORIDE.
 

fourkidsmom

New member
I keep this list on my computer for Doctors, etc., so I am going to copy and paste it for you.

My son just turned 8 yrs old. He was diagnosed when I was 7 months pregnant.

DAILY MEDICATION LIST:
Cyproheptadine (substituted for Periatin) 10ml's (4 times daily)
2 tsp of lactulose ( 2 times daily)
1 tablet of ADEKS vitamin
1 400 I.U. of Vitamin E
2 Creon 20 enzymes & 1 creon 10 enzyme with each meal
(2 Creon 20 enzymes with any snack throughout the day)
(2 Creon 20 enzymes with pediasure drink only)
Prevacid --15 mgs - 2 times daily
Zithromax- 1 tsp. every Monday, Wednesday and Friday
Omnaris Nasal Spray - 2 squirts in each nostril once daily
Dexamethasone Nasal Spray- 2 squirts each side 2 times daily
Vitamin C- 500 mgs
Miralax- 17 grams daily

Nasal wash with distilled water in the shower
Ocean spray- squirt in each nostril 2-3 times daily

Breathing med's- 4 breathing treatments a day which include these meds.

Pulmozyme - once daily- 2.5 mgs
Albuterol- .5cc's ---4 times daily
Broncho Saline - .9%--2 times daily
Pulmicort -- .5 mg's - twice daily
HTS- 4ml's of 7 %-- twice daily

9 hours of pediasure nightly thru feeding tube--- 100 ml's times 9 hours (4 cans)

2-3 cans of pediasure orally daily

WE DO MONTHLY PORT FLUSHES FOR HIS MED PORT AT HOME WITH .22 GAUGE ¾ IN NEEDLE, 5 ML OF HEPERIN AND 10 ML'S OF SODIUM CHLORIDE.
 

fourkidsmom

New member
I keep this list on my computer for Doctors, etc., so I am going to copy and paste it for you.

My son just turned 8 yrs old. He was diagnosed when I was 7 months pregnant.

DAILY MEDICATION LIST:
Cyproheptadine (substituted for Periatin) 10ml's (4 times daily)
2 tsp of lactulose ( 2 times daily)
1 tablet of ADEKS vitamin
1 400 I.U. of Vitamin E
2 Creon 20 enzymes & 1 creon 10 enzyme with each meal
(2 Creon 20 enzymes with any snack throughout the day)
(2 Creon 20 enzymes with pediasure drink only)
Prevacid --15 mgs - 2 times daily
Zithromax- 1 tsp. every Monday, Wednesday and Friday
Omnaris Nasal Spray - 2 squirts in each nostril once daily
Dexamethasone Nasal Spray- 2 squirts each side 2 times daily
Vitamin C- 500 mgs
Miralax- 17 grams daily

Nasal wash with distilled water in the shower
Ocean spray- squirt in each nostril 2-3 times daily

Breathing med's- 4 breathing treatments a day which include these meds.

Pulmozyme - once daily- 2.5 mgs
Albuterol- .5cc's ---4 times daily
Broncho Saline - .9%--2 times daily
Pulmicort -- .5 mg's - twice daily
HTS- 4ml's of 7 %-- twice daily

9 hours of pediasure nightly thru feeding tube--- 100 ml's times 9 hours (4 cans)

2-3 cans of pediasure orally daily

WE DO MONTHLY PORT FLUSHES FOR HIS MED PORT AT HOME WITH .22 GAUGE ¾ IN NEEDLE, 5 ML OF HEPERIN AND 10 ML'S OF SODIUM CHLORIDE.
 

fourkidsmom

New member
I keep this list on my computer for Doctors, etc., so I am going to copy and paste it for you.
<br />
<br />My son just turned 8 yrs old. He was diagnosed when I was 7 months pregnant.
<br />
<br />DAILY MEDICATION LIST:
<br />Cyproheptadine (substituted for Periatin) 10ml's (4 times daily)
<br />2 tsp of lactulose ( 2 times daily)
<br />1 tablet of ADEKS vitamin
<br />1 400 I.U. of Vitamin E
<br />2 Creon 20 enzymes & 1 creon 10 enzyme with each meal
<br />(2 Creon 20 enzymes with any snack throughout the day)
<br />(2 Creon 20 enzymes with pediasure drink only)
<br />Prevacid --15 mgs - 2 times daily
<br />Zithromax- 1 tsp. every Monday, Wednesday and Friday
<br />Omnaris Nasal Spray - 2 squirts in each nostril once daily
<br />Dexamethasone Nasal Spray- 2 squirts each side 2 times daily
<br />Vitamin C- 500 mgs
<br />Miralax- 17 grams daily
<br />
<br />Nasal wash with distilled water in the shower
<br />Ocean spray- squirt in each nostril 2-3 times daily
<br />
<br />Breathing med's- 4 breathing treatments a day which include these meds.
<br />
<br />Pulmozyme - once daily- 2.5 mgs
<br />Albuterol- .5cc's ---4 times daily
<br />Broncho Saline - .9%--2 times daily
<br />Pulmicort -- .5 mg's - twice daily
<br />HTS- 4ml's of 7 %-- twice daily
<br />
<br />9 hours of pediasure nightly thru feeding tube--- 100 ml's times 9 hours (4 cans)
<br />
<br />2-3 cans of pediasure orally daily
<br />
<br />WE DO MONTHLY PORT FLUSHES FOR HIS MED PORT AT HOME WITH .22 GAUGE ¾ IN NEEDLE, 5 ML OF HEPERIN AND 10 ML'S OF SODIUM CHLORIDE.
<br />
<br />
 

reagansmom

New member
In the a.m Reagan takes:

Xopenex 2 puffs
Hyper-Sal 7% neb.
30 min. CPT
Pulmozyme
Flovent 2 puffs
Vitamax 1ml
Azithromycin 3ml MWF

2-3 Creon 5 w/ meals 1-2 w/ snacks

Evenings:

Xopenex 2 puffs
Hyper-Sal 7% neb.
30 min. CPT
Flovent 2 puffs
 

reagansmom

New member
In the a.m Reagan takes:

Xopenex 2 puffs
Hyper-Sal 7% neb.
30 min. CPT
Pulmozyme
Flovent 2 puffs
Vitamax 1ml
Azithromycin 3ml MWF

2-3 Creon 5 w/ meals 1-2 w/ snacks

Evenings:

Xopenex 2 puffs
Hyper-Sal 7% neb.
30 min. CPT
Flovent 2 puffs
 

reagansmom

New member
In the a.m Reagan takes:

Xopenex 2 puffs
Hyper-Sal 7% neb.
30 min. CPT
Pulmozyme
Flovent 2 puffs
Vitamax 1ml
Azithromycin 3ml MWF

2-3 Creon 5 w/ meals 1-2 w/ snacks

Evenings:

Xopenex 2 puffs
Hyper-Sal 7% neb.
30 min. CPT
Flovent 2 puffs
 

reagansmom

New member
In the a.m Reagan takes:

Xopenex 2 puffs
Hyper-Sal 7% neb.
30 min. CPT
Pulmozyme
Flovent 2 puffs
Vitamax 1ml
Azithromycin 3ml MWF

2-3 Creon 5 w/ meals 1-2 w/ snacks

Evenings:

Xopenex 2 puffs
Hyper-Sal 7% neb.
30 min. CPT
Flovent 2 puffs
 

reagansmom

New member
In the a.m Reagan takes:
<br />
<br />Xopenex 2 puffs
<br />Hyper-Sal 7% neb.
<br />30 min. CPT
<br />Pulmozyme
<br />Flovent 2 puffs
<br />Vitamax 1ml
<br />Azithromycin 3ml MWF
<br />
<br />2-3 Creon 5 w/ meals 1-2 w/ snacks
<br />
<br />Evenings:
<br />
<br />Xopenex 2 puffs
<br />Hyper-Sal 7% neb.
<br />30 min. CPT
<br />Flovent 2 puffs
 
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