What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

What was your Most beneficial change

bittyhorse23

New member
Hmmm I'd have to say the things that I did that had the greatest impact on me were exercising and to stop drinking soda.

I had a cyst on my upper shoulder and my regular dr told me to STOP all my antibotics and start this one that would get it to go away. I thought no way if I am taking 3 a day now and this thing grew what is one less strong one going to do. So I stopped drinking soda and started drinking 4-5 glasses of water a day (I hate water so this was huge for me!) and within 4 days the cyst was gone. I even went to get xrays to make sure and it was completely gone!!! So no more soda for me!!!!

And of course exercising just makes you feel good about yourself <img src="i/expressions/face-icon-small-smile.gif" border="0">

CF related I would have to say taking the saline...I love that stuff!!!!! Never felt better!!!
 

bittyhorse23

New member
Hmmm I'd have to say the things that I did that had the greatest impact on me were exercising and to stop drinking soda.

I had a cyst on my upper shoulder and my regular dr told me to STOP all my antibotics and start this one that would get it to go away. I thought no way if I am taking 3 a day now and this thing grew what is one less strong one going to do. So I stopped drinking soda and started drinking 4-5 glasses of water a day (I hate water so this was huge for me!) and within 4 days the cyst was gone. I even went to get xrays to make sure and it was completely gone!!! So no more soda for me!!!!

And of course exercising just makes you feel good about yourself <img src="i/expressions/face-icon-small-smile.gif" border="0">

CF related I would have to say taking the saline...I love that stuff!!!!! Never felt better!!!
 

bittyhorse23

New member
Hmmm I'd have to say the things that I did that had the greatest impact on me were exercising and to stop drinking soda.

I had a cyst on my upper shoulder and my regular dr told me to STOP all my antibotics and start this one that would get it to go away. I thought no way if I am taking 3 a day now and this thing grew what is one less strong one going to do. So I stopped drinking soda and started drinking 4-5 glasses of water a day (I hate water so this was huge for me!) and within 4 days the cyst was gone. I even went to get xrays to make sure and it was completely gone!!! So no more soda for me!!!!

And of course exercising just makes you feel good about yourself <img src="i/expressions/face-icon-small-smile.gif" border="0">

CF related I would have to say taking the saline...I love that stuff!!!!! Never felt better!!!
 

bittyhorse23

New member
Hmmm I'd have to say the things that I did that had the greatest impact on me were exercising and to stop drinking soda.

I had a cyst on my upper shoulder and my regular dr told me to STOP all my antibotics and start this one that would get it to go away. I thought no way if I am taking 3 a day now and this thing grew what is one less strong one going to do. So I stopped drinking soda and started drinking 4-5 glasses of water a day (I hate water so this was huge for me!) and within 4 days the cyst was gone. I even went to get xrays to make sure and it was completely gone!!! So no more soda for me!!!!

And of course exercising just makes you feel good about yourself <img src="i/expressions/face-icon-small-smile.gif" border="0">

CF related I would have to say taking the saline...I love that stuff!!!!! Never felt better!!!
 

bittyhorse23

New member
Hmmm I'd have to say the things that I did that had the greatest impact on me were exercising and to stop drinking soda.

I had a cyst on my upper shoulder and my regular dr told me to STOP all my antibotics and start this one that would get it to go away. I thought no way if I am taking 3 a day now and this thing grew what is one less strong one going to do. So I stopped drinking soda and started drinking 4-5 glasses of water a day (I hate water so this was huge for me!) and within 4 days the cyst was gone. I even went to get xrays to make sure and it was completely gone!!! So no more soda for me!!!!

And of course exercising just makes you feel good about yourself <img src="i/expressions/face-icon-small-smile.gif" border="0">

CF related I would have to say taking the saline...I love that stuff!!!!! Never felt better!!!
 

kswitch

New member
medication wise, hypertonic has been my miracle. i could say doing cpt regularly has helped a ton, too, but prior to the hs, cpt was only effective when highly congested.

as far as lifestyle changes, my life was saved when i learned the value of moderation. i learned to pace myself in all of my pursuits. no more excessive substance abuse, no more all night, balls-to-the-wall video game sessions, no more thinking that i had to do everything all at once. i've been much happier with the results, and i live life much less stressed.

now, if i could only tackle procrastination.....
 

kswitch

New member
medication wise, hypertonic has been my miracle. i could say doing cpt regularly has helped a ton, too, but prior to the hs, cpt was only effective when highly congested.

as far as lifestyle changes, my life was saved when i learned the value of moderation. i learned to pace myself in all of my pursuits. no more excessive substance abuse, no more all night, balls-to-the-wall video game sessions, no more thinking that i had to do everything all at once. i've been much happier with the results, and i live life much less stressed.

now, if i could only tackle procrastination.....
 

kswitch

New member
medication wise, hypertonic has been my miracle. i could say doing cpt regularly has helped a ton, too, but prior to the hs, cpt was only effective when highly congested.

as far as lifestyle changes, my life was saved when i learned the value of moderation. i learned to pace myself in all of my pursuits. no more excessive substance abuse, no more all night, balls-to-the-wall video game sessions, no more thinking that i had to do everything all at once. i've been much happier with the results, and i live life much less stressed.

now, if i could only tackle procrastination.....
 

kswitch

New member
medication wise, hypertonic has been my miracle. i could say doing cpt regularly has helped a ton, too, but prior to the hs, cpt was only effective when highly congested.

as far as lifestyle changes, my life was saved when i learned the value of moderation. i learned to pace myself in all of my pursuits. no more excessive substance abuse, no more all night, balls-to-the-wall video game sessions, no more thinking that i had to do everything all at once. i've been much happier with the results, and i live life much less stressed.

now, if i could only tackle procrastination.....
 

kswitch

New member
medication wise, hypertonic has been my miracle. i could say doing cpt regularly has helped a ton, too, but prior to the hs, cpt was only effective when highly congested.

as far as lifestyle changes, my life was saved when i learned the value of moderation. i learned to pace myself in all of my pursuits. no more excessive substance abuse, no more all night, balls-to-the-wall video game sessions, no more thinking that i had to do everything all at once. i've been much happier with the results, and i live life much less stressed.

now, if i could only tackle procrastination.....
 

lmattaway

New member
Meds wise: Miralax. It's like manna from heaven. My new after dinner drink. I had such bad stomachaches growing up and even had docs thinking I had Crohn's. Just a few months ago I heard about Miralax (don't ask me why no one ever told me about it earlier) and ever since taking a dose after dinner every day, I have been without all that pain and it keeps things moving along!

Lifestyle: running. and more running. Sometimes I struggle to have the motivation, but once I'm out there and doing it, I know it's the best thing for me.
 

lmattaway

New member
Meds wise: Miralax. It's like manna from heaven. My new after dinner drink. I had such bad stomachaches growing up and even had docs thinking I had Crohn's. Just a few months ago I heard about Miralax (don't ask me why no one ever told me about it earlier) and ever since taking a dose after dinner every day, I have been without all that pain and it keeps things moving along!

Lifestyle: running. and more running. Sometimes I struggle to have the motivation, but once I'm out there and doing it, I know it's the best thing for me.
 

lmattaway

New member
Meds wise: Miralax. It's like manna from heaven. My new after dinner drink. I had such bad stomachaches growing up and even had docs thinking I had Crohn's. Just a few months ago I heard about Miralax (don't ask me why no one ever told me about it earlier) and ever since taking a dose after dinner every day, I have been without all that pain and it keeps things moving along!

Lifestyle: running. and more running. Sometimes I struggle to have the motivation, but once I'm out there and doing it, I know it's the best thing for me.
 

lmattaway

New member
Meds wise: Miralax. It's like manna from heaven. My new after dinner drink. I had such bad stomachaches growing up and even had docs thinking I had Crohn's. Just a few months ago I heard about Miralax (don't ask me why no one ever told me about it earlier) and ever since taking a dose after dinner every day, I have been without all that pain and it keeps things moving along!

Lifestyle: running. and more running. Sometimes I struggle to have the motivation, but once I'm out there and doing it, I know it's the best thing for me.
 

lmattaway

New member
Meds wise: Miralax. It's like manna from heaven. My new after dinner drink. I had such bad stomachaches growing up and even had docs thinking I had Crohn's. Just a few months ago I heard about Miralax (don't ask me why no one ever told me about it earlier) and ever since taking a dose after dinner every day, I have been without all that pain and it keeps things moving along!

Lifestyle: running. and more running. Sometimes I struggle to have the motivation, but once I'm out there and doing it, I know it's the best thing for me.
 

Bumblebee

New member
Easy one for me:
<br><br>
Acquiring myself an eflow so i actually did my nebulisers. Made nebs so much less of a chore. I got my eflow in 2005 just as i started my PhD, i think if i hadn't had one and carried on not doing my nebs, combined with the stress and demand of a phd - i would not be as healthy as i am now. It stopped the decline.
<br><br>
However, the major improvement has been ng feeding. I don't have low lung function (~65% when i started), and i was hesitant to start because i thought it was for people with low lung function, but i was developing a serious problem with food. I hated food never wanted to eat, the pressure was too much. ng feeding took that pressure off and i no longer have a "problem" with food. I even like it now ;-)
<br><br>
I've increased my weight from about 97pounds to 120pounds in 4-5months. It's amazing. I believe this is why my lung function is now consistently higher than it was (70-75%). The weight has helped sooo much! From sept 2005 to sept 2006 i had iv's 4 times. Now my last was in january. Another addition is Dnase and i felt this has really helped with my clearing. But i believe the weight is the major contributor to me fighting off infection and staying off iv's.
<br><br>
<img src=""> <img src=""> <img src="">
<br><br>
xxxx
 

Bumblebee

New member
Easy one for me:
<br><br>
Acquiring myself an eflow so i actually did my nebulisers. Made nebs so much less of a chore. I got my eflow in 2005 just as i started my PhD, i think if i hadn't had one and carried on not doing my nebs, combined with the stress and demand of a phd - i would not be as healthy as i am now. It stopped the decline.
<br><br>
However, the major improvement has been ng feeding. I don't have low lung function (~65% when i started), and i was hesitant to start because i thought it was for people with low lung function, but i was developing a serious problem with food. I hated food never wanted to eat, the pressure was too much. ng feeding took that pressure off and i no longer have a "problem" with food. I even like it now ;-)
<br><br>
I've increased my weight from about 97pounds to 120pounds in 4-5months. It's amazing. I believe this is why my lung function is now consistently higher than it was (70-75%). The weight has helped sooo much! From sept 2005 to sept 2006 i had iv's 4 times. Now my last was in january. Another addition is Dnase and i felt this has really helped with my clearing. But i believe the weight is the major contributor to me fighting off infection and staying off iv's.
<br><br>
<img src=""> <img src=""> <img src="">
<br><br>
xxxx
 

Bumblebee

New member
Easy one for me:
<br><br>
Acquiring myself an eflow so i actually did my nebulisers. Made nebs so much less of a chore. I got my eflow in 2005 just as i started my PhD, i think if i hadn't had one and carried on not doing my nebs, combined with the stress and demand of a phd - i would not be as healthy as i am now. It stopped the decline.
<br><br>
However, the major improvement has been ng feeding. I don't have low lung function (~65% when i started), and i was hesitant to start because i thought it was for people with low lung function, but i was developing a serious problem with food. I hated food never wanted to eat, the pressure was too much. ng feeding took that pressure off and i no longer have a "problem" with food. I even like it now ;-)
<br><br>
I've increased my weight from about 97pounds to 120pounds in 4-5months. It's amazing. I believe this is why my lung function is now consistently higher than it was (70-75%). The weight has helped sooo much! From sept 2005 to sept 2006 i had iv's 4 times. Now my last was in january. Another addition is Dnase and i felt this has really helped with my clearing. But i believe the weight is the major contributor to me fighting off infection and staying off iv's.
<br><br>
<img src=""> <img src=""> <img src="">
<br><br>
xxxx
 

Bumblebee

New member
Easy one for me:
<br><br>
Acquiring myself an eflow so i actually did my nebulisers. Made nebs so much less of a chore. I got my eflow in 2005 just as i started my PhD, i think if i hadn't had one and carried on not doing my nebs, combined with the stress and demand of a phd - i would not be as healthy as i am now. It stopped the decline.
<br><br>
However, the major improvement has been ng feeding. I don't have low lung function (~65% when i started), and i was hesitant to start because i thought it was for people with low lung function, but i was developing a serious problem with food. I hated food never wanted to eat, the pressure was too much. ng feeding took that pressure off and i no longer have a "problem" with food. I even like it now ;-)
<br><br>
I've increased my weight from about 97pounds to 120pounds in 4-5months. It's amazing. I believe this is why my lung function is now consistently higher than it was (70-75%). The weight has helped sooo much! From sept 2005 to sept 2006 i had iv's 4 times. Now my last was in january. Another addition is Dnase and i felt this has really helped with my clearing. But i believe the weight is the major contributor to me fighting off infection and staying off iv's.
<br><br>
<img src=""> <img src=""> <img src="">
<br><br>
xxxx
 

Bumblebee

New member
Easy one for me:
<br><br>
Acquiring myself an eflow so i actually did my nebulisers. Made nebs so much less of a chore. I got my eflow in 2005 just as i started my PhD, i think if i hadn't had one and carried on not doing my nebs, combined with the stress and demand of a phd - i would not be as healthy as i am now. It stopped the decline.
<br><br>
However, the major improvement has been ng feeding. I don't have low lung function (~65% when i started), and i was hesitant to start because i thought it was for people with low lung function, but i was developing a serious problem with food. I hated food never wanted to eat, the pressure was too much. ng feeding took that pressure off and i no longer have a "problem" with food. I even like it now ;-)
<br><br>
I've increased my weight from about 97pounds to 120pounds in 4-5months. It's amazing. I believe this is why my lung function is now consistently higher than it was (70-75%). The weight has helped sooo much! From sept 2005 to sept 2006 i had iv's 4 times. Now my last was in january. Another addition is Dnase and i felt this has really helped with my clearing. But i believe the weight is the major contributor to me fighting off infection and staying off iv's.
<br><br>
<img src=""> <img src=""> <img src="">
<br><br>
xxxx
 
Top