When to worry about things

[JazzysMom]

I see all these posts lately about different things. Pancreatitis, Bacterial Ulcers among others. I start to question if the pains, burning etc that I have throughout my life are true symptoms of something new.

OR

are they results of current problems. I tend to put up with a lot of pain for some reason. Much more then I think most people would. Pain I dont have a problem with. Its the gasping for air that will bring me to the doctor first.

So for those who have diagnoses of things outside of CF......at what point did you decide, hey I should have this checked on. I dont have anything that last for weeks or months on end, but I have had things that can go for days.

I just do what I normally do to get through it. Maybe its a mental block about having to deal with another issue that prevents me from acknowleding it might be something. Maybe its the hassle of being so far from my clinic & knowing they will want me to trod all over NYC to the doctors they refer to.

Maybe its just normal. What is normal for me might be just that....NORMAL FOR ME.

This especially makes me wonder when people have all the usual testing done & nothing is found to clarify why/where the pain is coming from.

I dont think it will change the way I handle things. Unless it directly affects my CF or is more then the usual amount of pain I withstand......

Just curious is all!

 

[JazzysMom]

I see all these posts lately about different things. Pancreatitis, Bacterial Ulcers among others. I start to question if the pains, burning etc that I have throughout my life are true symptoms of something new.

OR

are they results of current problems. I tend to put up with a lot of pain for some reason. Much more then I think most people would. Pain I dont have a problem with. Its the gasping for air that will bring me to the doctor first.

So for those who have diagnoses of things outside of CF......at what point did you decide, hey I should have this checked on. I dont have anything that last for weeks or months on end, but I have had things that can go for days.

I just do what I normally do to get through it. Maybe its a mental block about having to deal with another issue that prevents me from acknowleding it might be something. Maybe its the hassle of being so far from my clinic & knowing they will want me to trod all over NYC to the doctors they refer to.

Maybe its just normal. What is normal for me might be just that....NORMAL FOR ME.

This especially makes me wonder when people have all the usual testing done & nothing is found to clarify why/where the pain is coming from.

I dont think it will change the way I handle things. Unless it directly affects my CF or is more then the usual amount of pain I withstand......

Just curious is all!

 

[JazzysMom]

I see all these posts lately about different things. Pancreatitis, Bacterial Ulcers among others. I start to question if the pains, burning etc that I have throughout my life are true symptoms of something new.

OR

are they results of current problems. I tend to put up with a lot of pain for some reason. Much more then I think most people would. Pain I dont have a problem with. Its the gasping for air that will bring me to the doctor first.

So for those who have diagnoses of things outside of CF......at what point did you decide, hey I should have this checked on. I dont have anything that last for weeks or months on end, but I have had things that can go for days.

I just do what I normally do to get through it. Maybe its a mental block about having to deal with another issue that prevents me from acknowleding it might be something. Maybe its the hassle of being so far from my clinic & knowing they will want me to trod all over NYC to the doctors they refer to.

Maybe its just normal. What is normal for me might be just that....NORMAL FOR ME.

This especially makes me wonder when people have all the usual testing done & nothing is found to clarify why/where the pain is coming from.

I dont think it will change the way I handle things. Unless it directly affects my CF or is more then the usual amount of pain I withstand......

Just curious is all!

 

[JazzysMom]

I see all these posts lately about different things. Pancreatitis, Bacterial Ulcers among others. I start to question if the pains, burning etc that I have throughout my life are true symptoms of something new.

OR

are they results of current problems. I tend to put up with a lot of pain for some reason. Much more then I think most people would. Pain I dont have a problem with. Its the gasping for air that will bring me to the doctor first.

So for those who have diagnoses of things outside of CF......at what point did you decide, hey I should have this checked on. I dont have anything that last for weeks or months on end, but I have had things that can go for days.

I just do what I normally do to get through it. Maybe its a mental block about having to deal with another issue that prevents me from acknowleding it might be something. Maybe its the hassle of being so far from my clinic & knowing they will want me to trod all over NYC to the doctors they refer to.

Maybe its just normal. What is normal for me might be just that....NORMAL FOR ME.

This especially makes me wonder when people have all the usual testing done & nothing is found to clarify why/where the pain is coming from.

I dont think it will change the way I handle things. Unless it directly affects my CF or is more then the usual amount of pain I withstand......

Just curious is all!

 

[JazzysMom]

I see all these posts lately about different things. Pancreatitis, Bacterial Ulcers among others. I start to question if the pains, burning etc that I have throughout my life are true symptoms of something new.

OR

are they results of current problems. I tend to put up with a lot of pain for some reason. Much more then I think most people would. Pain I dont have a problem with. Its the gasping for air that will bring me to the doctor first.

So for those who have diagnoses of things outside of CF......at what point did you decide, hey I should have this checked on. I dont have anything that last for weeks or months on end, but I have had things that can go for days.

I just do what I normally do to get through it. Maybe its a mental block about having to deal with another issue that prevents me from acknowleding it might be something. Maybe its the hassle of being so far from my clinic & knowing they will want me to trod all over NYC to the doctors they refer to.

Maybe its just normal. What is normal for me might be just that....NORMAL FOR ME.

This especially makes me wonder when people have all the usual testing done & nothing is found to clarify why/where the pain is coming from.

I dont think it will change the way I handle things. Unless it directly affects my CF or is more then the usual amount of pain I withstand......

Just curious is all!

 

[ladybug]

Hey, Melissa...

Not sure about the pain issues, as I've not had this happen, but I do have extenuating health issues that have needed attention. Perhaps I'm kind of an exception cause whenever anything small comes up, I want all the possible tests run and want it looked at right away. Sometimes, I think I obsess over things that are not CF-related maybe to avoid thinking about CF problems all the time.

For example, heart palpitations and anxiety have plagued me for some time. I get a little worried about these things mostly cause I worry they are either effecting my CF or COULD effect my CF if left untreated. Maybe I'm kinda a hypochondriac, cause I seem to run in or call the doc for any little thing. But, personally, if something not CF-related were causing me any anxiety or pain I would want it checked out.

Either way, know you've got a ton of support here and we're all hoping nothing new comes to light when/if you do get tested. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[ladybug]

Hey, Melissa...

Not sure about the pain issues, as I've not had this happen, but I do have extenuating health issues that have needed attention. Perhaps I'm kind of an exception cause whenever anything small comes up, I want all the possible tests run and want it looked at right away. Sometimes, I think I obsess over things that are not CF-related maybe to avoid thinking about CF problems all the time.

For example, heart palpitations and anxiety have plagued me for some time. I get a little worried about these things mostly cause I worry they are either effecting my CF or COULD effect my CF if left untreated. Maybe I'm kinda a hypochondriac, cause I seem to run in or call the doc for any little thing. But, personally, if something not CF-related were causing me any anxiety or pain I would want it checked out.

Either way, know you've got a ton of support here and we're all hoping nothing new comes to light when/if you do get tested. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[ladybug]

Hey, Melissa...

Not sure about the pain issues, as I've not had this happen, but I do have extenuating health issues that have needed attention. Perhaps I'm kind of an exception cause whenever anything small comes up, I want all the possible tests run and want it looked at right away. Sometimes, I think I obsess over things that are not CF-related maybe to avoid thinking about CF problems all the time.

For example, heart palpitations and anxiety have plagued me for some time. I get a little worried about these things mostly cause I worry they are either effecting my CF or COULD effect my CF if left untreated. Maybe I'm kinda a hypochondriac, cause I seem to run in or call the doc for any little thing. But, personally, if something not CF-related were causing me any anxiety or pain I would want it checked out.

Either way, know you've got a ton of support here and we're all hoping nothing new comes to light when/if you do get tested. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[ladybug]

Hey, Melissa...

Not sure about the pain issues, as I've not had this happen, but I do have extenuating health issues that have needed attention. Perhaps I'm kind of an exception cause whenever anything small comes up, I want all the possible tests run and want it looked at right away. Sometimes, I think I obsess over things that are not CF-related maybe to avoid thinking about CF problems all the time.

For example, heart palpitations and anxiety have plagued me for some time. I get a little worried about these things mostly cause I worry they are either effecting my CF or COULD effect my CF if left untreated. Maybe I'm kinda a hypochondriac, cause I seem to run in or call the doc for any little thing. But, personally, if something not CF-related were causing me any anxiety or pain I would want it checked out.

Either way, know you've got a ton of support here and we're all hoping nothing new comes to light when/if you do get tested. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[ladybug]

Hey, Melissa...

Not sure about the pain issues, as I've not had this happen, but I do have extenuating health issues that have needed attention. Perhaps I'm kind of an exception cause whenever anything small comes up, I want all the possible tests run and want it looked at right away. Sometimes, I think I obsess over things that are not CF-related maybe to avoid thinking about CF problems all the time.

For example, heart palpitations and anxiety have plagued me for some time. I get a little worried about these things mostly cause I worry they are either effecting my CF or COULD effect my CF if left untreated. Maybe I'm kinda a hypochondriac, cause I seem to run in or call the doc for any little thing. But, personally, if something not CF-related were causing me any anxiety or pain I would want it checked out.

Either way, know you've got a ton of support here and we're all hoping nothing new comes to light when/if you do get tested. <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[LisaV]

Unfortunately having CF doesn't immunize you against other things. I know my late husband really hated having tests run to find out what else other than bronchiectasis was causing him trouble, but (at the same time) he knew that there could be any number of things acting up and he wanted to nip them in the bud if at all possible.

It's a hard call.

Hate to think of you in mega pain tho, Mel. Even if you have learned to live with it pretty well to date, chronic pain is no picnic and can really limit you as much if not more than breathing problems in the long run.

I'm sure you'll figure out whether or not to push to have a more clear diagnosis of what's causing you pain.

 

[LisaV]

Unfortunately having CF doesn't immunize you against other things. I know my late husband really hated having tests run to find out what else other than bronchiectasis was causing him trouble, but (at the same time) he knew that there could be any number of things acting up and he wanted to nip them in the bud if at all possible.

It's a hard call.

Hate to think of you in mega pain tho, Mel. Even if you have learned to live with it pretty well to date, chronic pain is no picnic and can really limit you as much if not more than breathing problems in the long run.

I'm sure you'll figure out whether or not to push to have a more clear diagnosis of what's causing you pain.

 

[LisaV]

Unfortunately having CF doesn't immunize you against other things. I know my late husband really hated having tests run to find out what else other than bronchiectasis was causing him trouble, but (at the same time) he knew that there could be any number of things acting up and he wanted to nip them in the bud if at all possible.

It's a hard call.

Hate to think of you in mega pain tho, Mel. Even if you have learned to live with it pretty well to date, chronic pain is no picnic and can really limit you as much if not more than breathing problems in the long run.

I'm sure you'll figure out whether or not to push to have a more clear diagnosis of what's causing you pain.

 

[LisaV]

Unfortunately having CF doesn't immunize you against other things. I know my late husband really hated having tests run to find out what else other than bronchiectasis was causing him trouble, but (at the same time) he knew that there could be any number of things acting up and he wanted to nip them in the bud if at all possible.

It's a hard call.

Hate to think of you in mega pain tho, Mel. Even if you have learned to live with it pretty well to date, chronic pain is no picnic and can really limit you as much if not more than breathing problems in the long run.

I'm sure you'll figure out whether or not to push to have a more clear diagnosis of what's causing you pain.

 

[LisaV]

Unfortunately having CF doesn't immunize you against other things. I know my late husband really hated having tests run to find out what else other than bronchiectasis was causing him trouble, but (at the same time) he knew that there could be any number of things acting up and he wanted to nip them in the bud if at all possible.

It's a hard call.

Hate to think of you in mega pain tho, Mel. Even if you have learned to live with it pretty well to date, chronic pain is no picnic and can really limit you as much if not more than breathing problems in the long run.

I'm sure you'll figure out whether or not to push to have a more clear diagnosis of what's causing you pain.

 

[LisaV]

Unfortunately having CF doesn't immunize you against other things. I know my late husband really hated having tests run to find out what else other than bronchiectasis was causing him trouble, but (at the same time) he knew that there could be any number of things acting up and he wanted to nip them in the bud if at all possible.

It's a hard call.

Hate to think of you in mega pain tho, Mel. Even if you have learned to live with it pretty well to date, chronic pain is no picnic and can really limit you as much if not more than breathing problems in the long run.

I'm sure you'll figure out whether or not to push to have a more clear diagnosis of what's causing you pain.

 

[LisaV]

Unfortunately having CF doesn't immunize you against other things. I know my late husband really hated having tests run to find out what else other than bronchiectasis was causing him trouble, but (at the same time) he knew that there could be any number of things acting up and he wanted to nip them in the bud if at all possible.

It's a hard call.

Hate to think of you in mega pain tho, Mel. Even if you have learned to live with it pretty well to date, chronic pain is no picnic and can really limit you as much if not more than breathing problems in the long run.

I'm sure you'll figure out whether or not to push to have a more clear diagnosis of what's causing you pain.

 

[LisaV]

Unfortunately having CF doesn't immunize you against other things. I know my late husband really hated having tests run to find out what else other than bronchiectasis was causing him trouble, but (at the same time) he knew that there could be any number of things acting up and he wanted to nip them in the bud if at all possible.

It's a hard call.

Hate to think of you in mega pain tho, Mel. Even if you have learned to live with it pretty well to date, chronic pain is no picnic and can really limit you as much if not more than breathing problems in the long run.

I'm sure you'll figure out whether or not to push to have a more clear diagnosis of what's causing you pain.

 

[LisaV]

Unfortunately having CF doesn't immunize you against other things. I know my late husband really hated having tests run to find out what else other than bronchiectasis was causing him trouble, but (at the same time) he knew that there could be any number of things acting up and he wanted to nip them in the bud if at all possible.

It's a hard call.

Hate to think of you in mega pain tho, Mel. Even if you have learned to live with it pretty well to date, chronic pain is no picnic and can really limit you as much if not more than breathing problems in the long run.

I'm sure you'll figure out whether or not to push to have a more clear diagnosis of what's causing you pain.

 

[LisaV]

Unfortunately having CF doesn't immunize you against other things. I know my late husband really hated having tests run to find out what else other than bronchiectasis was causing him trouble, but (at the same time) he knew that there could be any number of things acting up and he wanted to nip them in the bud if at all possible.

It's a hard call.

Hate to think of you in mega pain tho, Mel. Even if you have learned to live with it pretty well to date, chronic pain is no picnic and can really limit you as much if not more than breathing problems in the long run.

I'm sure you'll figure out whether or not to push to have a more clear diagnosis of what's causing you pain.