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When to worry about things

Landy

New member
How funny that you would mention this...does it happen to have anything to do with the "Chest Pains" post??? If so, I've thought the very same thing...that I just put up with pain at times, assuming that it's just all part of having CF.

One time I'm pretty sure I had an obstruction & my doctor told me to "you don't have to be a hero, if that abdominal pain doesn't go away soon, go to the ER".

But, like you said....if it's lung related, I don't mess around, I call the doctor right away.

Back to the chest/rib cage pain thing....I have had these pains (once in awhile) under my ribs for as long as I can remember and just chalked them up to symptoms of CF...now, after reading that others have "this and that" condition, I'm going to ask my doctor about it at my next appt.<img src="i/expressions/face-icon-small-confused.gif" border="0">
 

Landy

New member
How funny that you would mention this...does it happen to have anything to do with the "Chest Pains" post??? If so, I've thought the very same thing...that I just put up with pain at times, assuming that it's just all part of having CF.

One time I'm pretty sure I had an obstruction & my doctor told me to "you don't have to be a hero, if that abdominal pain doesn't go away soon, go to the ER".

But, like you said....if it's lung related, I don't mess around, I call the doctor right away.

Back to the chest/rib cage pain thing....I have had these pains (once in awhile) under my ribs for as long as I can remember and just chalked them up to symptoms of CF...now, after reading that others have "this and that" condition, I'm going to ask my doctor about it at my next appt.<img src="i/expressions/face-icon-small-confused.gif" border="0">
 

Landy

New member
How funny that you would mention this...does it happen to have anything to do with the "Chest Pains" post??? If so, I've thought the very same thing...that I just put up with pain at times, assuming that it's just all part of having CF.

One time I'm pretty sure I had an obstruction & my doctor told me to "you don't have to be a hero, if that abdominal pain doesn't go away soon, go to the ER".

But, like you said....if it's lung related, I don't mess around, I call the doctor right away.

Back to the chest/rib cage pain thing....I have had these pains (once in awhile) under my ribs for as long as I can remember and just chalked them up to symptoms of CF...now, after reading that others have "this and that" condition, I'm going to ask my doctor about it at my next appt.<img src="i/expressions/face-icon-small-confused.gif" border="0">
 

Landy

New member
How funny that you would mention this...does it happen to have anything to do with the "Chest Pains" post??? If so, I've thought the very same thing...that I just put up with pain at times, assuming that it's just all part of having CF.

One time I'm pretty sure I had an obstruction & my doctor told me to "you don't have to be a hero, if that abdominal pain doesn't go away soon, go to the ER".

But, like you said....if it's lung related, I don't mess around, I call the doctor right away.

Back to the chest/rib cage pain thing....I have had these pains (once in awhile) under my ribs for as long as I can remember and just chalked them up to symptoms of CF...now, after reading that others have "this and that" condition, I'm going to ask my doctor about it at my next appt.<img src="i/expressions/face-icon-small-confused.gif" border="0">
 

Landy

New member
How funny that you would mention this...does it happen to have anything to do with the "Chest Pains" post??? If so, I've thought the very same thing...that I just put up with pain at times, assuming that it's just all part of having CF.

One time I'm pretty sure I had an obstruction & my doctor told me to "you don't have to be a hero, if that abdominal pain doesn't go away soon, go to the ER".

But, like you said....if it's lung related, I don't mess around, I call the doctor right away.

Back to the chest/rib cage pain thing....I have had these pains (once in awhile) under my ribs for as long as I can remember and just chalked them up to symptoms of CF...now, after reading that others have "this and that" condition, I'm going to ask my doctor about it at my next appt.<img src="i/expressions/face-icon-small-confused.gif" border="0">
 

AnD

New member
I know what you mean, Melissa. I was the same way- until I ended up in the er and in ICU. My biggest problem was getting my doctor(s) at Children's to check it out. So I lived with it. And then the adult cf center decided to check with an ultrasound while I was in for a tune up. Stone in my common bile duct, and pancreatitis. Then I had that liver infection, and got sent to a GI who actually checked me for non cf things (like the H-pyloria- wow, do I feel better! <img src=""> ). Now I know better, and will be doing a better job (hopefully).
 

AnD

New member
I know what you mean, Melissa. I was the same way- until I ended up in the er and in ICU. My biggest problem was getting my doctor(s) at Children's to check it out. So I lived with it. And then the adult cf center decided to check with an ultrasound while I was in for a tune up. Stone in my common bile duct, and pancreatitis. Then I had that liver infection, and got sent to a GI who actually checked me for non cf things (like the H-pyloria- wow, do I feel better! <img src=""> ). Now I know better, and will be doing a better job (hopefully).
 

AnD

New member
I know what you mean, Melissa. I was the same way- until I ended up in the er and in ICU. My biggest problem was getting my doctor(s) at Children's to check it out. So I lived with it. And then the adult cf center decided to check with an ultrasound while I was in for a tune up. Stone in my common bile duct, and pancreatitis. Then I had that liver infection, and got sent to a GI who actually checked me for non cf things (like the H-pyloria- wow, do I feel better! <img src=""> ). Now I know better, and will be doing a better job (hopefully).
 

AnD

New member
I know what you mean, Melissa. I was the same way- until I ended up in the er and in ICU. My biggest problem was getting my doctor(s) at Children's to check it out. So I lived with it. And then the adult cf center decided to check with an ultrasound while I was in for a tune up. Stone in my common bile duct, and pancreatitis. Then I had that liver infection, and got sent to a GI who actually checked me for non cf things (like the H-pyloria- wow, do I feel better! <img src=""> ). Now I know better, and will be doing a better job (hopefully).
 

AnD

New member
I know what you mean, Melissa. I was the same way- until I ended up in the er and in ICU. My biggest problem was getting my doctor(s) at Children's to check it out. So I lived with it. And then the adult cf center decided to check with an ultrasound while I was in for a tune up. Stone in my common bile duct, and pancreatitis. Then I had that liver infection, and got sent to a GI who actually checked me for non cf things (like the H-pyloria- wow, do I feel better! <img src=""> ). Now I know better, and will be doing a better job (hopefully).
 

zoe4life

New member
Heh Mel!! I know what you mean about the high pain tolerance thing. I will go forever with pains....but I was talking to a Dr. about it one time. He suggested this: if it lasts for 6 weeks, see a doc. NOw of course this would not be for excruciating pain, just normal everyday pains that seem to last for days or a couple of weeks. I seem to "put up" with pain all the time, ignore it. Until it lasts too long or becomes unbearable.<img src="i/expressions/face-icon-small-disgusted.gif" border="0">

Hope your feeling better though. I think sometimes when you know how bad it feels to not be able to breathe, everything else seems minor. You are one tough lady though, I can tell by our phone conversations!!<img src="i/expressions/heart.gif" border="0">

Love ya,
 

zoe4life

New member
Heh Mel!! I know what you mean about the high pain tolerance thing. I will go forever with pains....but I was talking to a Dr. about it one time. He suggested this: if it lasts for 6 weeks, see a doc. NOw of course this would not be for excruciating pain, just normal everyday pains that seem to last for days or a couple of weeks. I seem to "put up" with pain all the time, ignore it. Until it lasts too long or becomes unbearable.<img src="i/expressions/face-icon-small-disgusted.gif" border="0">

Hope your feeling better though. I think sometimes when you know how bad it feels to not be able to breathe, everything else seems minor. You are one tough lady though, I can tell by our phone conversations!!<img src="i/expressions/heart.gif" border="0">

Love ya,
 

zoe4life

New member
Heh Mel!! I know what you mean about the high pain tolerance thing. I will go forever with pains....but I was talking to a Dr. about it one time. He suggested this: if it lasts for 6 weeks, see a doc. NOw of course this would not be for excruciating pain, just normal everyday pains that seem to last for days or a couple of weeks. I seem to "put up" with pain all the time, ignore it. Until it lasts too long or becomes unbearable.<img src="i/expressions/face-icon-small-disgusted.gif" border="0">

Hope your feeling better though. I think sometimes when you know how bad it feels to not be able to breathe, everything else seems minor. You are one tough lady though, I can tell by our phone conversations!!<img src="i/expressions/heart.gif" border="0">

Love ya,
 

zoe4life

New member
Heh Mel!! I know what you mean about the high pain tolerance thing. I will go forever with pains....but I was talking to a Dr. about it one time. He suggested this: if it lasts for 6 weeks, see a doc. NOw of course this would not be for excruciating pain, just normal everyday pains that seem to last for days or a couple of weeks. I seem to "put up" with pain all the time, ignore it. Until it lasts too long or becomes unbearable.<img src="i/expressions/face-icon-small-disgusted.gif" border="0">

Hope your feeling better though. I think sometimes when you know how bad it feels to not be able to breathe, everything else seems minor. You are one tough lady though, I can tell by our phone conversations!!<img src="i/expressions/heart.gif" border="0">

Love ya,
 

zoe4life

New member
Heh Mel!! I know what you mean about the high pain tolerance thing. I will go forever with pains....but I was talking to a Dr. about it one time. He suggested this: if it lasts for 6 weeks, see a doc. NOw of course this would not be for excruciating pain, just normal everyday pains that seem to last for days or a couple of weeks. I seem to "put up" with pain all the time, ignore it. Until it lasts too long or becomes unbearable.<img src="i/expressions/face-icon-small-disgusted.gif" border="0">

Hope your feeling better though. I think sometimes when you know how bad it feels to not be able to breathe, everything else seems minor. You are one tough lady though, I can tell by our phone conversations!!<img src="i/expressions/heart.gif" border="0">

Love ya,
 

coltsfan715

New member
Hey Mel,

I had this issue when I was having gallbladder attacks. I started having gallbladder issues and attacks around 2001. The attacks were infrequent and tended to occur at times when I was under a lot of stress - so being as that gallbladder attacks can present very similar to anxiety attacks I wrote the attacks I was having off as anxiety.

I went through these attacks for years - literally. I started thinking that there was something else to it when I started having them in the middle of the night and getting other symptoms that there was no explanation for me having. Then in early 2004 I had abnormal results come back on my bloodwork - showing elevated liver enzymes. At that point I started looking further into things. I actually had my own problem diagnosed within 24 hours - it just took me 5 months to convince my docs that was the problem cause all my other test results came back normal - until a HIDDA scan. I just kept pushing the issue.

Otherwise I find that now - post transplant - I just have to trust myself. At first I would panic over ever slight issue. Now I am more able to recognize what is a normal for me pain and what is not. I think it just comes down to what you know is and isn't normal for your body. A pain that I may have regularly "just because" may be an indication of something more serious for you and vice versa.

I typically pursue things when the pain or issue is abnormal for me - and it may be something very small but I have become an expert with my body over the years and know when there is something going on. My family actually used to make fun of me and tell me I was over reacting or wanting something to be wrong. Then after repeated times of my pursuing issues and there actually being an issue they have started to leave me alone lol.

So yeah to answer the question - when I can identify that it is abnormal for me to be experiencing something I pursue an answer.

Take Care,
Lindsey
 

coltsfan715

New member
Hey Mel,

I had this issue when I was having gallbladder attacks. I started having gallbladder issues and attacks around 2001. The attacks were infrequent and tended to occur at times when I was under a lot of stress - so being as that gallbladder attacks can present very similar to anxiety attacks I wrote the attacks I was having off as anxiety.

I went through these attacks for years - literally. I started thinking that there was something else to it when I started having them in the middle of the night and getting other symptoms that there was no explanation for me having. Then in early 2004 I had abnormal results come back on my bloodwork - showing elevated liver enzymes. At that point I started looking further into things. I actually had my own problem diagnosed within 24 hours - it just took me 5 months to convince my docs that was the problem cause all my other test results came back normal - until a HIDDA scan. I just kept pushing the issue.

Otherwise I find that now - post transplant - I just have to trust myself. At first I would panic over ever slight issue. Now I am more able to recognize what is a normal for me pain and what is not. I think it just comes down to what you know is and isn't normal for your body. A pain that I may have regularly "just because" may be an indication of something more serious for you and vice versa.

I typically pursue things when the pain or issue is abnormal for me - and it may be something very small but I have become an expert with my body over the years and know when there is something going on. My family actually used to make fun of me and tell me I was over reacting or wanting something to be wrong. Then after repeated times of my pursuing issues and there actually being an issue they have started to leave me alone lol.

So yeah to answer the question - when I can identify that it is abnormal for me to be experiencing something I pursue an answer.

Take Care,
Lindsey
 

coltsfan715

New member
Hey Mel,

I had this issue when I was having gallbladder attacks. I started having gallbladder issues and attacks around 2001. The attacks were infrequent and tended to occur at times when I was under a lot of stress - so being as that gallbladder attacks can present very similar to anxiety attacks I wrote the attacks I was having off as anxiety.

I went through these attacks for years - literally. I started thinking that there was something else to it when I started having them in the middle of the night and getting other symptoms that there was no explanation for me having. Then in early 2004 I had abnormal results come back on my bloodwork - showing elevated liver enzymes. At that point I started looking further into things. I actually had my own problem diagnosed within 24 hours - it just took me 5 months to convince my docs that was the problem cause all my other test results came back normal - until a HIDDA scan. I just kept pushing the issue.

Otherwise I find that now - post transplant - I just have to trust myself. At first I would panic over ever slight issue. Now I am more able to recognize what is a normal for me pain and what is not. I think it just comes down to what you know is and isn't normal for your body. A pain that I may have regularly "just because" may be an indication of something more serious for you and vice versa.

I typically pursue things when the pain or issue is abnormal for me - and it may be something very small but I have become an expert with my body over the years and know when there is something going on. My family actually used to make fun of me and tell me I was over reacting or wanting something to be wrong. Then after repeated times of my pursuing issues and there actually being an issue they have started to leave me alone lol.

So yeah to answer the question - when I can identify that it is abnormal for me to be experiencing something I pursue an answer.

Take Care,
Lindsey
 

coltsfan715

New member
Hey Mel,

I had this issue when I was having gallbladder attacks. I started having gallbladder issues and attacks around 2001. The attacks were infrequent and tended to occur at times when I was under a lot of stress - so being as that gallbladder attacks can present very similar to anxiety attacks I wrote the attacks I was having off as anxiety.

I went through these attacks for years - literally. I started thinking that there was something else to it when I started having them in the middle of the night and getting other symptoms that there was no explanation for me having. Then in early 2004 I had abnormal results come back on my bloodwork - showing elevated liver enzymes. At that point I started looking further into things. I actually had my own problem diagnosed within 24 hours - it just took me 5 months to convince my docs that was the problem cause all my other test results came back normal - until a HIDDA scan. I just kept pushing the issue.

Otherwise I find that now - post transplant - I just have to trust myself. At first I would panic over ever slight issue. Now I am more able to recognize what is a normal for me pain and what is not. I think it just comes down to what you know is and isn't normal for your body. A pain that I may have regularly "just because" may be an indication of something more serious for you and vice versa.

I typically pursue things when the pain or issue is abnormal for me - and it may be something very small but I have become an expert with my body over the years and know when there is something going on. My family actually used to make fun of me and tell me I was over reacting or wanting something to be wrong. Then after repeated times of my pursuing issues and there actually being an issue they have started to leave me alone lol.

So yeah to answer the question - when I can identify that it is abnormal for me to be experiencing something I pursue an answer.

Take Care,
Lindsey
 

coltsfan715

New member
Hey Mel,

I had this issue when I was having gallbladder attacks. I started having gallbladder issues and attacks around 2001. The attacks were infrequent and tended to occur at times when I was under a lot of stress - so being as that gallbladder attacks can present very similar to anxiety attacks I wrote the attacks I was having off as anxiety.

I went through these attacks for years - literally. I started thinking that there was something else to it when I started having them in the middle of the night and getting other symptoms that there was no explanation for me having. Then in early 2004 I had abnormal results come back on my bloodwork - showing elevated liver enzymes. At that point I started looking further into things. I actually had my own problem diagnosed within 24 hours - it just took me 5 months to convince my docs that was the problem cause all my other test results came back normal - until a HIDDA scan. I just kept pushing the issue.

Otherwise I find that now - post transplant - I just have to trust myself. At first I would panic over ever slight issue. Now I am more able to recognize what is a normal for me pain and what is not. I think it just comes down to what you know is and isn't normal for your body. A pain that I may have regularly "just because" may be an indication of something more serious for you and vice versa.

I typically pursue things when the pain or issue is abnormal for me - and it may be something very small but I have become an expert with my body over the years and know when there is something going on. My family actually used to make fun of me and tell me I was over reacting or wanting something to be wrong. Then after repeated times of my pursuing issues and there actually being an issue they have started to leave me alone lol.

So yeah to answer the question - when I can identify that it is abnormal for me to be experiencing something I pursue an answer.

Take Care,
Lindsey
 
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