What's new
By:
Filters
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Which clinical trial are you in?

S

saveferris2009

New member
<b><u>One of the biggest barriers sitting between CFer's and new meds is clinical trial participation. </b></u>

I know many are doing their part by participating in clinical trials. I've heard amazing stories from those in denufosol, vertex, gilead trials, just to name a few.

I'd love to start a thread where those who have recently participated can talk about their experiences (good and bad).

Raising awareness for all of us about clinical trials is important - plus it's fun to get excited about the great experiences people have had on these new drugs.

(P.S. I realize Vertex is requiring people to sign confidentiality agreements now, so of course please don't violate those
).

And if you WANT to participate in a trial (remember, it doesn't have to be at your CF center), visit:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/research/ClinicalResearch/Find/
">http://www.cff.org/research/ClinicalResearch/Find/
</a>


FIGHT ON
 
S

saveferris2009

New member
<b><u>One of the biggest barriers sitting between CFer's and new meds is clinical trial participation. </b></u>

I know many are doing their part by participating in clinical trials. I've heard amazing stories from those in denufosol, vertex, gilead trials, just to name a few.

I'd love to start a thread where those who have recently participated can talk about their experiences (good and bad).

Raising awareness for all of us about clinical trials is important - plus it's fun to get excited about the great experiences people have had on these new drugs.

(P.S. I realize Vertex is requiring people to sign confidentiality agreements now, so of course please don't violate those
).

And if you WANT to participate in a trial (remember, it doesn't have to be at your CF center), visit:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/research/ClinicalResearch/Find/
">http://www.cff.org/research/ClinicalResearch/Find/
</a>


FIGHT ON
 
S

saveferris2009

New member
<b><u>One of the biggest barriers sitting between CFer's and new meds is clinical trial participation. </b></u>

I know many are doing their part by participating in clinical trials. I've heard amazing stories from those in denufosol, vertex, gilead trials, just to name a few.

I'd love to start a thread where those who have recently participated can talk about their experiences (good and bad).

Raising awareness for all of us about clinical trials is important - plus it's fun to get excited about the great experiences people have had on these new drugs.

(P.S. I realize Vertex is requiring people to sign confidentiality agreements now, so of course please don't violate those
).

And if you WANT to participate in a trial (remember, it doesn't have to be at your CF center), visit:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/research/ClinicalResearch/Find/
">http://www.cff.org/research/ClinicalResearch/Find/
</a>


FIGHT ON
 
S

saveferris2009

New member
<b><u>One of the biggest barriers sitting between CFer's and new meds is clinical trial participation. </b></u>

I know many are doing their part by participating in clinical trials. I've heard amazing stories from those in denufosol, vertex, gilead trials, just to name a few.

I'd love to start a thread where those who have recently participated can talk about their experiences (good and bad).

Raising awareness for all of us about clinical trials is important - plus it's fun to get excited about the great experiences people have had on these new drugs.

(P.S. I realize Vertex is requiring people to sign confidentiality agreements now, so of course please don't violate those
).

And if you WANT to participate in a trial (remember, it doesn't have to be at your CF center), visit:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/research/ClinicalResearch/Find/
">http://www.cff.org/research/ClinicalResearch/Find/
</a>


FIGHT ON
 
S

saveferris2009

New member
<b><u>One of the biggest barriers sitting between CFer's and new meds is clinical trial participation. </b></u>
<br />
<br />I know many are doing their part by participating in clinical trials. I've heard amazing stories from those in denufosol, vertex, gilead trials, just to name a few.
<br />
<br />I'd love to start a thread where those who have recently participated can talk about their experiences (good and bad).
<br />
<br />Raising awareness for all of us about clinical trials is important - plus it's fun to get excited about the great experiences people have had on these new drugs.
<br />
<br />(P.S. I realize Vertex is requiring people to sign confidentiality agreements now, so of course please don't violate those
).
<br />
<br />And if you WANT to participate in a trial (remember, it doesn't have to be at your CF center), visit:
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/research/ClinicalResearch/Find/
">http://www.cff.org/research/ClinicalResearch/Find/
</a><br />
<br />
<br />
<br />FIGHT ON
 
B

Brad

New member
<br /> It worked for me.
<br />
<br /> Does the link to your blog work? if so, this one should also..
 
I

Imogene

Administrator
Our link is a work in progress...

but it includes the travel distance. Thanks CF Health Opinion Leaders for the great suggestion!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/clinicalTrial/">find the nearest clinical trial....</a>

Jeanne
 
I

Imogene

Administrator
Our link is a work in progress...

but it includes the travel distance. Thanks CF Health Opinion Leaders for the great suggestion!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/clinicalTrial/">find the nearest clinical trial....</a>

Jeanne
 
I

Imogene

Administrator
Our link is a work in progress...

but it includes the travel distance. Thanks CF Health Opinion Leaders for the great suggestion!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/clinicalTrial/">find the nearest clinical trial....</a>

Jeanne
 
I

Imogene

Administrator
Our link is a work in progress...

but it includes the travel distance. Thanks CF Health Opinion Leaders for the great suggestion!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/clinicalTrial/">find the nearest clinical trial....</a>

Jeanne
 
I

Imogene

Administrator
Our link is a work in progress...
<br />
<br />but it includes the travel distance. Thanks CF Health Opinion Leaders for the great suggestion!
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosis.com/clinicalTrial/">find the nearest clinical trial....</a>
<br />
<br />Jeanne
 
You must log in or register to reply here.
Top