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Who here is on long term dissability and...

anonymous

New member
ye im on disability ive been gettin it since i was 16.i had no problem gettin it they didnt care wat me fev's were. i from dublin so its 150euro for sittin on me arse ive no complaints
 

anonymous

New member
ye im on disability ive been gettin it since i was 16.i had no problem gettin it they didnt care wat me fev's were. i from dublin so its 150euro for sittin on me arse ive no complaints
 

catboogie

New member
so, it sounds to me like this is just like a whole bunch of backward stuff in our medical system. what i mean is, it seems to "reward" people who try to work full-time and compromise their health as opposed to helping those who realize working full-time would hurt them too much in the first place and so don't try! after all, there is no way to "prove" that my health would be worse working full time. but am i willing to try and find out? i don't think so.

i realize they need some kind of scale to measure us against. no one with any disease is in the exact same situation. i just wish there could be a way to give people a boost who are trying to be preventative about their health.

laura, 27
 

catboogie

New member
so, it sounds to me like this is just like a whole bunch of backward stuff in our medical system. what i mean is, it seems to "reward" people who try to work full-time and compromise their health as opposed to helping those who realize working full-time would hurt them too much in the first place and so don't try! after all, there is no way to "prove" that my health would be worse working full time. but am i willing to try and find out? i don't think so.

i realize they need some kind of scale to measure us against. no one with any disease is in the exact same situation. i just wish there could be a way to give people a boost who are trying to be preventative about their health.

laura, 27
 

anonymous

New member
i am on ssi since i had my son 3 years ago... my pft is great 90-100% when feeeling good... i still have to do /1/2 day of pills vest , nebs, i app, was denied 3 times ... all i can say is keep fih=ghting i did and finally won.... i also get ssi for my son because i cant work...he is healthy... jbucca
 

anonymous

New member
i am on ssi since i had my son 3 years ago... my pft is great 90-100% when feeeling good... i still have to do /1/2 day of pills vest , nebs, i app, was denied 3 times ... all i can say is keep fih=ghting i did and finally won.... i also get ssi for my son because i cant work...he is healthy... jbucca
 

anonymous

New member
ye well unfortunatly i spent some time in prison and this has made it imposible to get work and if i cud id give up my disability money straigt away
 

Ryleigh

New member
I am on disability have been for 4 years now, I think my FEV1 was around the 70's but I couldn't work full-time or I would get sick, so there one big question is can you support yourself? I did get denied twice and got Beth Sufian (I'm sure you've heard of her) and finally I was able to get it, been on it since, I've gotten married and as long as my husband doesn't make too much money we can stay on it, which is our plan until he gets out of school since I can't get insurance while he's in school!!!!! Any questions contact Beth Sufian, she's a lawyer with CF too!!!!!!
 

JustDucky

New member
I have SSDI as well as long term disability insurance from my previous employer, so I lucked out on that one. I got SSDI based on my declining pulmonary function as well as my ability to do things around the house even though the docs really didn't have a definitive diagnosis at the time. They looked at my ABG's, my declining PFT's, my need for O2 as well as BiPAP use. I was found favorable when I was 31 years old, first try without a lawyer. I will offer good advice to those considering applying for SSDI, get copies of all medical records..any tests that are done, get copies. When you fill out the application, they will ask how you are able to do your day to day activities...Make sure you are specific, in my case, I was unable to drive so my family did my driving, showering left my oxygenation in the toilet, housework was difficult...as I said, if your breathing impairs anything, write it down and be very specific.
SSDI does not consider your income or your husbands, SSI on the other hand does consider income levels. When I applied to SSDI, I was never asked what I made prior to my final days of work or asked how much my then husband made. When I won, the amount was calculated based on what I put into the system.
Once you get SSDI, you wait 2 years to get Medicare coverage, unless you have been fighting for years and exceeded the 2 years in which case you would get Medicare right away...unfortunately, I know of some people who have appealed their case for over 5 years. I was lucky to be found favorable within 3 months of applying.
Each case is different, the degree of impairments are different with each person. They do go by the Blue book, but not just that. I fortunately had a great caseworker who was excellent with helping me with the process. It is also good to have excellent doctors who are willing to put their all into your application. Just because they are sent requisitions to be filled out regarding your medical issues, it doesn't mean that they will. I fortunately had good docs who were very meticulous with documentation and I owe alot to them. It is good to check up on the docs that will be responsible for your application.
I hope I have helped and not confused you. Hugs, Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
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