Windy days?

Diane · Oct 11, 2008

I never thought of that, and never even heard it mentioned before, but i can tell you this.........
As a child i played out in the cold without a hat or gloves ( i always took them off as soon as i was out of the house) rolled around in snow, played in sand boxes, dug in the dirt, jumped and layed down in piles of leaves,picked up dried dog poo ( not knowing what it was), chewed already chewed gum, etc and where did i get cepacia? The first time i was admitted to MCP (hospital) in great health for a simple routine sinus surgery at the age of 31.
I dont know if being out on a windy day is actually bad or not but pseudomonas and cepacia are air borne, there are everywhere.... windy day or not. For me, I am glad my parents didnt try to shield me from doing what all kids do, i had a wonderful childhood with unbelievable memories. Now on days when your daughter is sick i could see the concern about windy days , but its something you may want to try to keep in perspective and not go overboard.

Diane · Oct 11, 2008

I never thought of that, and never even heard it mentioned before, but i can tell you this.........
As a child i played out in the cold without a hat or gloves ( i always took them off as soon as i was out of the house) rolled around in snow, played in sand boxes, dug in the dirt, jumped and layed down in piles of leaves,picked up dried dog poo ( not knowing what it was), chewed already chewed gum, etc and where did i get cepacia? The first time i was admitted to MCP (hospital) in great health for a simple routine sinus surgery at the age of 31.
I dont know if being out on a windy day is actually bad or not but pseudomonas and cepacia are air borne, there are everywhere.... windy day or not. For me, I am glad my parents didnt try to shield me from doing what all kids do, i had a wonderful childhood with unbelievable memories. Now on days when your daughter is sick i could see the concern about windy days , but its something you may want to try to keep in perspective and not go overboard.

Diane · Oct 11, 2008

I never thought of that, and never even heard it mentioned before, but i can tell you this.........
As a child i played out in the cold without a hat or gloves ( i always took them off as soon as i was out of the house) rolled around in snow, played in sand boxes, dug in the dirt, jumped and layed down in piles of leaves,picked up dried dog poo ( not knowing what it was), chewed already chewed gum, etc and where did i get cepacia? The first time i was admitted to MCP (hospital) in great health for a simple routine sinus surgery at the age of 31.
I dont know if being out on a windy day is actually bad or not but pseudomonas and cepacia are air borne, there are everywhere.... windy day or not. For me, I am glad my parents didnt try to shield me from doing what all kids do, i had a wonderful childhood with unbelievable memories. Now on days when your daughter is sick i could see the concern about windy days , but its something you may want to try to keep in perspective and not go overboard.

Diane · Oct 11, 2008

I never thought of that, and never even heard it mentioned before, but i can tell you this.........
As a child i played out in the cold without a hat or gloves ( i always took them off as soon as i was out of the house) rolled around in snow, played in sand boxes, dug in the dirt, jumped and layed down in piles of leaves,picked up dried dog poo ( not knowing what it was), chewed already chewed gum, etc and where did i get cepacia? The first time i was admitted to MCP (hospital) in great health for a simple routine sinus surgery at the age of 31.
I dont know if being out on a windy day is actually bad or not but pseudomonas and cepacia are air borne, there are everywhere.... windy day or not. For me, I am glad my parents didnt try to shield me from doing what all kids do, i had a wonderful childhood with unbelievable memories. Now on days when your daughter is sick i could see the concern about windy days , but its something you may want to try to keep in perspective and not go overboard.

Diane · Oct 11, 2008

I never thought of that, and never even heard it mentioned before, but i can tell you this.........
 As a child i played out in the cold without a hat or gloves ( i always took them off as soon as i was out of the house) rolled around in snow, played in sand boxes, dug in the dirt, jumped and layed down in piles of leaves,picked up dried dog poo ( not knowing what it was), chewed already chewed gum, etc and where did i get cepacia? The first time i was admitted to MCP (hospital) in great health for a simple routine sinus surgery at the age of 31.
 I dont know if being out on a windy day is actually bad or not but pseudomonas and cepacia are air borne, there are everywhere.... windy day or not. For me, I am glad my parents didnt try to shield me from doing what all kids do, i had a wonderful childhood with unbelievable memories. Now on days when your daughter is sick i could see the concern about windy days , but its something you may want to try to keep in perspective and not go overboard.

MicheleGazelle · Oct 11, 2008

I have no idea about whether or not you should stay indoors on windy days, but I did have this experience:

When we lived in Richland Washington, several years before my son and I were diagnosed with CF, any time it was windy and I left the windows open at night, my son and I had more respiratory problems. I quickly decided to never leave the windows open. My feeling is the strong winds carried stuff from far away that we were allergic to and which didn't grow locally.

I have also read that storms carry dirt and stuff from Africa and deposit it in the Southeastern United States.

In the book "Sastun", about a woman who apprenticed with a traditional Mayan herbal healer, the elderly herbal healer was very strict about closing up doors and windows at night even when it was sweltering because he claimed the winds were "evil"/carried stuff that made you sick.

Makes me think of the expression "an ill wind". Most such expressions have some kind of roots in a literal meaning and did not start out as just a figure of speech.

MicheleGazelle · Oct 11, 2008

I have no idea about whether or not you should stay indoors on windy days, but I did have this experience:

When we lived in Richland Washington, several years before my son and I were diagnosed with CF, any time it was windy and I left the windows open at night, my son and I had more respiratory problems. I quickly decided to never leave the windows open. My feeling is the strong winds carried stuff from far away that we were allergic to and which didn't grow locally.

I have also read that storms carry dirt and stuff from Africa and deposit it in the Southeastern United States.

In the book "Sastun", about a woman who apprenticed with a traditional Mayan herbal healer, the elderly herbal healer was very strict about closing up doors and windows at night even when it was sweltering because he claimed the winds were "evil"/carried stuff that made you sick.

Makes me think of the expression "an ill wind". Most such expressions have some kind of roots in a literal meaning and did not start out as just a figure of speech.

MicheleGazelle · Oct 11, 2008

I have no idea about whether or not you should stay indoors on windy days, but I did have this experience:

When we lived in Richland Washington, several years before my son and I were diagnosed with CF, any time it was windy and I left the windows open at night, my son and I had more respiratory problems. I quickly decided to never leave the windows open. My feeling is the strong winds carried stuff from far away that we were allergic to and which didn't grow locally.

I have also read that storms carry dirt and stuff from Africa and deposit it in the Southeastern United States.

In the book "Sastun", about a woman who apprenticed with a traditional Mayan herbal healer, the elderly herbal healer was very strict about closing up doors and windows at night even when it was sweltering because he claimed the winds were "evil"/carried stuff that made you sick.

Makes me think of the expression "an ill wind". Most such expressions have some kind of roots in a literal meaning and did not start out as just a figure of speech.

MicheleGazelle · Oct 11, 2008

I have no idea about whether or not you should stay indoors on windy days, but I did have this experience:

When we lived in Richland Washington, several years before my son and I were diagnosed with CF, any time it was windy and I left the windows open at night, my son and I had more respiratory problems. I quickly decided to never leave the windows open. My feeling is the strong winds carried stuff from far away that we were allergic to and which didn't grow locally.

I have also read that storms carry dirt and stuff from Africa and deposit it in the Southeastern United States.

In the book "Sastun", about a woman who apprenticed with a traditional Mayan herbal healer, the elderly herbal healer was very strict about closing up doors and windows at night even when it was sweltering because he claimed the winds were "evil"/carried stuff that made you sick.

Makes me think of the expression "an ill wind". Most such expressions have some kind of roots in a literal meaning and did not start out as just a figure of speech.

MicheleGazelle · Oct 11, 2008

I have no idea about whether or not you should stay indoors on windy days, but I did have this experience:
 
 When we lived in Richland Washington, several years before my son and I were diagnosed with CF, any time it was windy and I left the windows open at night, my son and I had more respiratory problems. I quickly decided to never leave the windows open. My feeling is the strong winds carried stuff from far away that we were allergic to and which didn't grow locally.
 
 I have also read that storms carry dirt and stuff from Africa and deposit it in the Southeastern United States.
 
 In the book "Sastun", about a woman who apprenticed with a traditional Mayan herbal healer, the elderly herbal healer was very strict about closing up doors and windows at night even when it was sweltering because he claimed the winds were "evil"/carried stuff that made you sick.
 
 Makes me think of the expression "an ill wind". Most such expressions have some kind of roots in a literal meaning and did not start out as just a figure of speech.

Nightwriter · Oct 11, 2008

I'd like to add a few comments to what I've said above. I certainly don't know if pseudomonas or cepacia is spread by wind...I don't know if anyone knows exactly how people pick up these bacterias. I do know for instance these bacterias are all around -- pseudomonas is found in bagged salad and produce for instance, it an be found in the skin folds of dogs faces -- these bacterias do live around us. Because CFer's have thick mucus, it traps these bacterias which cause us problems. For two thirds of my life with this illness, I also did anything that I wanted to -- and I paid dearly -- irreversable lung damage. When my base lung function was down to the mid 30%, resistant to all drugs, Tobi all the time and increasing hospitalizations, I sought change. And with these changes, the course of my illness changes dramatically. I saw everything reverse.

The severity of this disease varies greatly. Some people get away with more than others. I was "normal" until I was 21...then adult onset CF. I wish that I had known about triggers earlier. I would have preserved so much lung function.

Primarily, my doctor has me avoid windy days because as I said and MicheleGazelle pointed out, there are other things in the air (mold, smoke, pollution,etc) that trigger exacerbations. On the occasion that I have not worn a mask on a windy day, in the next day or two I get the usual CF exacerbation. The last time this happened to me, I was visiting my parents in N.Y.. I sat outside on a windy day just reading a magazine. Within the next day or two, the exacerabation started. I ended up on Tobi and an oral antibiotic and was sick for weeks unable to even go back home. I didn't believe my doctor about the wind being a trigger. I tested the theory a few times and each time I got sick. Maybe if you live in a place with pristine air, it wouldn't be so bad. And if such a place exists, I'd like to know about it.

The last point I want to make is this. It seems like a lot of CFers on this board are sick at least every 3 or 4 months, with increasing exacerbations and more and more IV meds. I was like this too. And if something really isn't that important, like going out on a windy day, I rather be cautious. There are lots of other, safer things kids can do and still have a wonderful life. Sickness ruins a childhood. I rather do a little less and be healthy.

Okay, one more quick point. Babies with CF are born with normal lungs. It is inflammation and infection that start to change them. So I think these kinds of questions where parents are trying to avoid obvious triggers are so helpful and necessary.

Nightwriter · Oct 11, 2008

I'd like to add a few comments to what I've said above. I certainly don't know if pseudomonas or cepacia is spread by wind...I don't know if anyone knows exactly how people pick up these bacterias. I do know for instance these bacterias are all around -- pseudomonas is found in bagged salad and produce for instance, it an be found in the skin folds of dogs faces -- these bacterias do live around us. Because CFer's have thick mucus, it traps these bacterias which cause us problems. For two thirds of my life with this illness, I also did anything that I wanted to -- and I paid dearly -- irreversable lung damage. When my base lung function was down to the mid 30%, resistant to all drugs, Tobi all the time and increasing hospitalizations, I sought change. And with these changes, the course of my illness changes dramatically. I saw everything reverse.

The severity of this disease varies greatly. Some people get away with more than others. I was "normal" until I was 21...then adult onset CF. I wish that I had known about triggers earlier. I would have preserved so much lung function.

Primarily, my doctor has me avoid windy days because as I said and MicheleGazelle pointed out, there are other things in the air (mold, smoke, pollution,etc) that trigger exacerbations. On the occasion that I have not worn a mask on a windy day, in the next day or two I get the usual CF exacerbation. The last time this happened to me, I was visiting my parents in N.Y.. I sat outside on a windy day just reading a magazine. Within the next day or two, the exacerabation started. I ended up on Tobi and an oral antibiotic and was sick for weeks unable to even go back home. I didn't believe my doctor about the wind being a trigger. I tested the theory a few times and each time I got sick. Maybe if you live in a place with pristine air, it wouldn't be so bad. And if such a place exists, I'd like to know about it.

The last point I want to make is this. It seems like a lot of CFers on this board are sick at least every 3 or 4 months, with increasing exacerbations and more and more IV meds. I was like this too. And if something really isn't that important, like going out on a windy day, I rather be cautious. There are lots of other, safer things kids can do and still have a wonderful life. Sickness ruins a childhood. I rather do a little less and be healthy.

Okay, one more quick point. Babies with CF are born with normal lungs. It is inflammation and infection that start to change them. So I think these kinds of questions where parents are trying to avoid obvious triggers are so helpful and necessary.

Nightwriter · Oct 11, 2008

I'd like to add a few comments to what I've said above. I certainly don't know if pseudomonas or cepacia is spread by wind...I don't know if anyone knows exactly how people pick up these bacterias. I do know for instance these bacterias are all around -- pseudomonas is found in bagged salad and produce for instance, it an be found in the skin folds of dogs faces -- these bacterias do live around us. Because CFer's have thick mucus, it traps these bacterias which cause us problems. For two thirds of my life with this illness, I also did anything that I wanted to -- and I paid dearly -- irreversable lung damage. When my base lung function was down to the mid 30%, resistant to all drugs, Tobi all the time and increasing hospitalizations, I sought change. And with these changes, the course of my illness changes dramatically. I saw everything reverse.

The severity of this disease varies greatly. Some people get away with more than others. I was "normal" until I was 21...then adult onset CF. I wish that I had known about triggers earlier. I would have preserved so much lung function.

Primarily, my doctor has me avoid windy days because as I said and MicheleGazelle pointed out, there are other things in the air (mold, smoke, pollution,etc) that trigger exacerbations. On the occasion that I have not worn a mask on a windy day, in the next day or two I get the usual CF exacerbation. The last time this happened to me, I was visiting my parents in N.Y.. I sat outside on a windy day just reading a magazine. Within the next day or two, the exacerabation started. I ended up on Tobi and an oral antibiotic and was sick for weeks unable to even go back home. I didn't believe my doctor about the wind being a trigger. I tested the theory a few times and each time I got sick. Maybe if you live in a place with pristine air, it wouldn't be so bad. And if such a place exists, I'd like to know about it.

The last point I want to make is this. It seems like a lot of CFers on this board are sick at least every 3 or 4 months, with increasing exacerbations and more and more IV meds. I was like this too. And if something really isn't that important, like going out on a windy day, I rather be cautious. There are lots of other, safer things kids can do and still have a wonderful life. Sickness ruins a childhood. I rather do a little less and be healthy.

Okay, one more quick point. Babies with CF are born with normal lungs. It is inflammation and infection that start to change them. So I think these kinds of questions where parents are trying to avoid obvious triggers are so helpful and necessary.

Nightwriter · Oct 11, 2008

I'd like to add a few comments to what I've said above. I certainly don't know if pseudomonas or cepacia is spread by wind...I don't know if anyone knows exactly how people pick up these bacterias. I do know for instance these bacterias are all around -- pseudomonas is found in bagged salad and produce for instance, it an be found in the skin folds of dogs faces -- these bacterias do live around us. Because CFer's have thick mucus, it traps these bacterias which cause us problems. For two thirds of my life with this illness, I also did anything that I wanted to -- and I paid dearly -- irreversable lung damage. When my base lung function was down to the mid 30%, resistant to all drugs, Tobi all the time and increasing hospitalizations, I sought change. And with these changes, the course of my illness changes dramatically. I saw everything reverse.

The severity of this disease varies greatly. Some people get away with more than others. I was "normal" until I was 21...then adult onset CF. I wish that I had known about triggers earlier. I would have preserved so much lung function.

Primarily, my doctor has me avoid windy days because as I said and MicheleGazelle pointed out, there are other things in the air (mold, smoke, pollution,etc) that trigger exacerbations. On the occasion that I have not worn a mask on a windy day, in the next day or two I get the usual CF exacerbation. The last time this happened to me, I was visiting my parents in N.Y.. I sat outside on a windy day just reading a magazine. Within the next day or two, the exacerabation started. I ended up on Tobi and an oral antibiotic and was sick for weeks unable to even go back home. I didn't believe my doctor about the wind being a trigger. I tested the theory a few times and each time I got sick. Maybe if you live in a place with pristine air, it wouldn't be so bad. And if such a place exists, I'd like to know about it.

The last point I want to make is this. It seems like a lot of CFers on this board are sick at least every 3 or 4 months, with increasing exacerbations and more and more IV meds. I was like this too. And if something really isn't that important, like going out on a windy day, I rather be cautious. There are lots of other, safer things kids can do and still have a wonderful life. Sickness ruins a childhood. I rather do a little less and be healthy.

Okay, one more quick point. Babies with CF are born with normal lungs. It is inflammation and infection that start to change them. So I think these kinds of questions where parents are trying to avoid obvious triggers are so helpful and necessary.

Nightwriter · Oct 11, 2008

I'd like to add a few comments to what I've said above. I certainly don't know if pseudomonas or cepacia is spread by wind...I don't know if anyone knows exactly how people pick up these bacterias. I do know for instance these bacterias are all around -- pseudomonas is found in bagged salad and produce for instance, it an be found in the skin folds of dogs faces -- these bacterias do live around us. Because CFer's have thick mucus, it traps these bacterias which cause us problems. For two thirds of my life with this illness, I also did anything that I wanted to -- and I paid dearly -- irreversable lung damage. When my base lung function was down to the mid 30%, resistant to all drugs, Tobi all the time and increasing hospitalizations, I sought change. And with these changes, the course of my illness changes dramatically. I saw everything reverse.
 
 The severity of this disease varies greatly. Some people get away with more than others. I was "normal" until I was 21...then adult onset CF. I wish that I had known about triggers earlier. I would have preserved so much lung function.
 
 Primarily, my doctor has me avoid windy days because as I said and MicheleGazelle pointed out, there are other things in the air (mold, smoke, pollution,etc) that trigger exacerbations. On the occasion that I have not worn a mask on a windy day, in the next day or two I get the usual CF exacerbation. The last time this happened to me, I was visiting my parents in N.Y.. I sat outside on a windy day just reading a magazine. Within the next day or two, the exacerabation started. I ended up on Tobi and an oral antibiotic and was sick for weeks unable to even go back home. I didn't believe my doctor about the wind being a trigger. I tested the theory a few times and each time I got sick. Maybe if you live in a place with pristine air, it wouldn't be so bad. And if such a place exists, I'd like to know about it.
 
 The last point I want to make is this. It seems like a lot of CFers on this board are sick at least every 3 or 4 months, with increasing exacerbations and more and more IV meds. I was like this too. And if something really isn't that important, like going out on a windy day, I rather be cautious. There are lots of other, safer things kids can do and still have a wonderful life. Sickness ruins a childhood. I rather do a little less and be healthy.
 
 Okay, one more quick point. Babies with CF are born with normal lungs. It is inflammation and infection that start to change them. So I think these kinds of questions where parents are trying to avoid obvious triggers are so helpful and necessary.

MicheleGazelle · Oct 11, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: Nightwriter
Maybe if you live in a place with pristine air, it wouldn't be so bad. And if such a place exists, I'd like to know about it.

</end quote></div>

Air quality makes a difference. But if stuff from Africa can wind up in the Southeastern US carried by strong (storm) winds, then it seems to me you would have to clean up the entire planet ...and then you would still have to worry about allergens.

Peace.

MicheleGazelle · Oct 11, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: Nightwriter
Maybe if you live in a place with pristine air, it wouldn't be so bad. And if such a place exists, I'd like to know about it.

</end quote></div>

Air quality makes a difference. But if stuff from Africa can wind up in the Southeastern US carried by strong (storm) winds, then it seems to me you would have to clean up the entire planet ...and then you would still have to worry about allergens.

Peace.

MicheleGazelle · Oct 11, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: Nightwriter
Maybe if you live in a place with pristine air, it wouldn't be so bad. And if such a place exists, I'd like to know about it.

</end quote></div>

Air quality makes a difference. But if stuff from Africa can wind up in the Southeastern US carried by strong (storm) winds, then it seems to me you would have to clean up the entire planet ...and then you would still have to worry about allergens.

Peace.

MicheleGazelle · Oct 11, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: Nightwriter
Maybe if you live in a place with pristine air, it wouldn't be so bad. And if such a place exists, I'd like to know about it.

</end quote>

Air quality makes a difference. But if stuff from Africa can wind up in the Southeastern US carried by strong (storm) winds, then it seems to me you would have to clean up the entire planet ...and then you would still have to worry about allergens.

Peace.

MicheleGazelle · Oct 11, 2008

<div class="FTQUOTE"><begin quote>Originally posted by: Nightwriter
 Maybe if you live in a place with pristine air, it wouldn't be so bad. And if such a place exists, I'd like to know about it.
 
 </end quote>
 
 Air quality makes a difference. But if stuff from Africa can wind up in the Southeastern US carried by strong (storm) winds, then it seems to me you would have to clean up the entire planet ...and then you would still have to worry about allergens.
 
 Peace.

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