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Wonderful Doc/Nurse Stories!

Emily65Roses

New member
My doc now, I've bragged about a hundred times... Here's one of the reasons why:

He said the coolest thing to me once a year ago. And I don't think I've ever heard it come out of a doctor's mouth before, especially not a CF doc. When discussing what to do about how I'd been feeling (not so good... vomiting several times a week from coughing fits, etc), he said "Well, your PFTs are actually up from last time, so your numbers are pretty good." That I've heard a million times from CF docs. Then he said the magic words that will make me adore him as my CF doc forever, "But numbers aren't as important as how you feel." Then he tapered off into what we should do, what meds to take, etc. I just love that he said that! Most CF docs, if I complain about how I feel, and I have good PFTs, they just pull out the paper and say "But look at your numbers!" like I'm supposed to be impressed. McArdle actually said how I feel is more important than my PFT numbers, and I fell for him that very moment. Haha, not really, of course. But he's great, I really like him.

On top of that, whenever I see him, he brings a student, a resident, and intern. Someone new (Yale = teaching hospital). Every time he brings in one of these new people, he always asks me if I can pull up the back of my shirt (my rose and mutation names) and take my shoe off (the salt). He LOVES showing off my tattoos. It is seriously the funniest thing ever. He's done it at least 3 times in the past year. I love him, he's fantastic.

I wrote this in another thread recently, but I'm going to elaborate now. One time I was inpatient at Yale Children's. Mike stayed with me the whole time. We were 18 and 20 at the time, so we were adults, even if in a children's hospital. We ordered lots of food, pizza, Chinese, etc. One night when we ordered Chinese, it was late. We asked my nurse if she could go down and get it once the time came, because the elevators "lock" (you have to know the combination) after hours. Time came, and she was busy as hell. So instead, she wrote down the elevator combination on a piece of paper and gave it to Mike and he went to get our food. I will ALWAYS remember her, because she could've gotten into big trouble for doing that. On top of that, we asked for a "do not disturb" sign, because though we were in a children's hospital, we were both adults. She laughed her head off. She told us she'd be the only one coming in for the next few hours, so we should close the curtain and shut the door, and she wouldn't come back again until the curtain and door were re-opened. She also told me at that point she had had a brother with CF. And he always used to pull similar sh*t like that in the hospital. She said I reminded her a lot of him, and I will always remember that, because it made me feel very good.

Those are the only ones I can think of worth sharing this instant.
So, as was the case with the other thread, SHARE! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

Emily65Roses

New member
My doc now, I've bragged about a hundred times... Here's one of the reasons why:

He said the coolest thing to me once a year ago. And I don't think I've ever heard it come out of a doctor's mouth before, especially not a CF doc. When discussing what to do about how I'd been feeling (not so good... vomiting several times a week from coughing fits, etc), he said "Well, your PFTs are actually up from last time, so your numbers are pretty good." That I've heard a million times from CF docs. Then he said the magic words that will make me adore him as my CF doc forever, "But numbers aren't as important as how you feel." Then he tapered off into what we should do, what meds to take, etc. I just love that he said that! Most CF docs, if I complain about how I feel, and I have good PFTs, they just pull out the paper and say "But look at your numbers!" like I'm supposed to be impressed. McArdle actually said how I feel is more important than my PFT numbers, and I fell for him that very moment. Haha, not really, of course. But he's great, I really like him.

On top of that, whenever I see him, he brings a student, a resident, and intern. Someone new (Yale = teaching hospital). Every time he brings in one of these new people, he always asks me if I can pull up the back of my shirt (my rose and mutation names) and take my shoe off (the salt). He LOVES showing off my tattoos. It is seriously the funniest thing ever. He's done it at least 3 times in the past year. I love him, he's fantastic.

I wrote this in another thread recently, but I'm going to elaborate now. One time I was inpatient at Yale Children's. Mike stayed with me the whole time. We were 18 and 20 at the time, so we were adults, even if in a children's hospital. We ordered lots of food, pizza, Chinese, etc. One night when we ordered Chinese, it was late. We asked my nurse if she could go down and get it once the time came, because the elevators "lock" (you have to know the combination) after hours. Time came, and she was busy as hell. So instead, she wrote down the elevator combination on a piece of paper and gave it to Mike and he went to get our food. I will ALWAYS remember her, because she could've gotten into big trouble for doing that. On top of that, we asked for a "do not disturb" sign, because though we were in a children's hospital, we were both adults. She laughed her head off. She told us she'd be the only one coming in for the next few hours, so we should close the curtain and shut the door, and she wouldn't come back again until the curtain and door were re-opened. She also told me at that point she had had a brother with CF. And he always used to pull similar sh*t like that in the hospital. She said I reminded her a lot of him, and I will always remember that, because it made me feel very good.

Those are the only ones I can think of worth sharing this instant.
So, as was the case with the other thread, SHARE! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

Emily65Roses

New member
My doc now, I've bragged about a hundred times... Here's one of the reasons why:

He said the coolest thing to me once a year ago. And I don't think I've ever heard it come out of a doctor's mouth before, especially not a CF doc. When discussing what to do about how I'd been feeling (not so good... vomiting several times a week from coughing fits, etc), he said "Well, your PFTs are actually up from last time, so your numbers are pretty good." That I've heard a million times from CF docs. Then he said the magic words that will make me adore him as my CF doc forever, "But numbers aren't as important as how you feel." Then he tapered off into what we should do, what meds to take, etc. I just love that he said that! Most CF docs, if I complain about how I feel, and I have good PFTs, they just pull out the paper and say "But look at your numbers!" like I'm supposed to be impressed. McArdle actually said how I feel is more important than my PFT numbers, and I fell for him that very moment. Haha, not really, of course. But he's great, I really like him.

On top of that, whenever I see him, he brings a student, a resident, and intern. Someone new (Yale = teaching hospital). Every time he brings in one of these new people, he always asks me if I can pull up the back of my shirt (my rose and mutation names) and take my shoe off (the salt). He LOVES showing off my tattoos. It is seriously the funniest thing ever. He's done it at least 3 times in the past year. I love him, he's fantastic.

I wrote this in another thread recently, but I'm going to elaborate now. One time I was inpatient at Yale Children's. Mike stayed with me the whole time. We were 18 and 20 at the time, so we were adults, even if in a children's hospital. We ordered lots of food, pizza, Chinese, etc. One night when we ordered Chinese, it was late. We asked my nurse if she could go down and get it once the time came, because the elevators "lock" (you have to know the combination) after hours. Time came, and she was busy as hell. So instead, she wrote down the elevator combination on a piece of paper and gave it to Mike and he went to get our food. I will ALWAYS remember her, because she could've gotten into big trouble for doing that. On top of that, we asked for a "do not disturb" sign, because though we were in a children's hospital, we were both adults. She laughed her head off. She told us she'd be the only one coming in for the next few hours, so we should close the curtain and shut the door, and she wouldn't come back again until the curtain and door were re-opened. She also told me at that point she had had a brother with CF. And he always used to pull similar sh*t like that in the hospital. She said I reminded her a lot of him, and I will always remember that, because it made me feel very good.

Those are the only ones I can think of worth sharing this instant.
So, as was the case with the other thread, SHARE! <img src="i/expressions/face-icon-small-happy.gif" border="0">
 

littledebbie

New member
I had a nurse when I was 16 and had to have back surgery...she was soo nice. She had the same surgery as a teenager and I was scared to pieces so she came in on her day off (actually came home from a family vacation a day early) to scrub in and go into surgery with me. everyone said she stayed in there and holding my hand when she could the entire time. That's sooo far above the call I don't know what to say.

One night I had to be stuck so many times for an iv that they had gone through multiple nurses trying and all of iv therapy until they called a Dr. and said if this IV has to be done tongiht you better come do it yourself. So he came and it took him a few tries and by the time it was in he was crying too and so were a few nurses. I had actually started trying to make them feel better along the way (while crying...I have always hated iv...the idea if them sends me into mini post traumatic breakdowns)anyhoo I had been making inane comments to try to get my mind of it so I started commenting on his choice of tie so in the end he took it off and tied it on me and gave it to me. He was nice. I know Dr.'s have to do what they have to do and looking back I know he wasn't allowed to say "give her a break it can wait til morning" but it's nice ot feel like they at least saw you as a real litlte person while they were torturing you..not JUST the illness they are treating.

Oh and a student Doc. I made fun of everyday...sort of made friends with me and then brought me this story she had written for a class and it was about me and...well she just "got it" if you know what i mean. The whole...she's worried about her grade in English and what she will chose as her specialty and where she will spend the holiday and then she realized I would be in the hospital and I was sick etc. and that her English grade wasn't all THAT important. Again, I think it is just nice to feel that someone saw YOU...really saw you. Learned more than CF is a hereditary disease affecting one in blah blah blah.... they learned that CF is affecting Debbie's life and she's a cool cat and life is unfair and sucks, but she's funny and happy and pretty normal in spite of it and you can't REALLY treat her CF without treating ALL of her. At least that's how most of these people that I have so loved had made me feel- Like a person in a place that so easily makes you feel like a disease.
 

littledebbie

New member
I had a nurse when I was 16 and had to have back surgery...she was soo nice. She had the same surgery as a teenager and I was scared to pieces so she came in on her day off (actually came home from a family vacation a day early) to scrub in and go into surgery with me. everyone said she stayed in there and holding my hand when she could the entire time. That's sooo far above the call I don't know what to say.

One night I had to be stuck so many times for an iv that they had gone through multiple nurses trying and all of iv therapy until they called a Dr. and said if this IV has to be done tongiht you better come do it yourself. So he came and it took him a few tries and by the time it was in he was crying too and so were a few nurses. I had actually started trying to make them feel better along the way (while crying...I have always hated iv...the idea if them sends me into mini post traumatic breakdowns)anyhoo I had been making inane comments to try to get my mind of it so I started commenting on his choice of tie so in the end he took it off and tied it on me and gave it to me. He was nice. I know Dr.'s have to do what they have to do and looking back I know he wasn't allowed to say "give her a break it can wait til morning" but it's nice ot feel like they at least saw you as a real litlte person while they were torturing you..not JUST the illness they are treating.

Oh and a student Doc. I made fun of everyday...sort of made friends with me and then brought me this story she had written for a class and it was about me and...well she just "got it" if you know what i mean. The whole...she's worried about her grade in English and what she will chose as her specialty and where she will spend the holiday and then she realized I would be in the hospital and I was sick etc. and that her English grade wasn't all THAT important. Again, I think it is just nice to feel that someone saw YOU...really saw you. Learned more than CF is a hereditary disease affecting one in blah blah blah.... they learned that CF is affecting Debbie's life and she's a cool cat and life is unfair and sucks, but she's funny and happy and pretty normal in spite of it and you can't REALLY treat her CF without treating ALL of her. At least that's how most of these people that I have so loved had made me feel- Like a person in a place that so easily makes you feel like a disease.
 

littledebbie

New member
I had a nurse when I was 16 and had to have back surgery...she was soo nice. She had the same surgery as a teenager and I was scared to pieces so she came in on her day off (actually came home from a family vacation a day early) to scrub in and go into surgery with me. everyone said she stayed in there and holding my hand when she could the entire time. That's sooo far above the call I don't know what to say.

One night I had to be stuck so many times for an iv that they had gone through multiple nurses trying and all of iv therapy until they called a Dr. and said if this IV has to be done tongiht you better come do it yourself. So he came and it took him a few tries and by the time it was in he was crying too and so were a few nurses. I had actually started trying to make them feel better along the way (while crying...I have always hated iv...the idea if them sends me into mini post traumatic breakdowns)anyhoo I had been making inane comments to try to get my mind of it so I started commenting on his choice of tie so in the end he took it off and tied it on me and gave it to me. He was nice. I know Dr.'s have to do what they have to do and looking back I know he wasn't allowed to say "give her a break it can wait til morning" but it's nice ot feel like they at least saw you as a real litlte person while they were torturing you..not JUST the illness they are treating.

Oh and a student Doc. I made fun of everyday...sort of made friends with me and then brought me this story she had written for a class and it was about me and...well she just "got it" if you know what i mean. The whole...she's worried about her grade in English and what she will chose as her specialty and where she will spend the holiday and then she realized I would be in the hospital and I was sick etc. and that her English grade wasn't all THAT important. Again, I think it is just nice to feel that someone saw YOU...really saw you. Learned more than CF is a hereditary disease affecting one in blah blah blah.... they learned that CF is affecting Debbie's life and she's a cool cat and life is unfair and sucks, but she's funny and happy and pretty normal in spite of it and you can't REALLY treat her CF without treating ALL of her. At least that's how most of these people that I have so loved had made me feel- Like a person in a place that so easily makes you feel like a disease.
 

thefrogprincess

New member
My CF doc trust me enough to know my own body and how I feel. If I have a sinus infection I just call and I get a scrip. No waisting my time going down there or dealing with students who have no clue about me or my CF (they usually don't believe that I'm as healthy as I am). When I got the flu a couple years ago he said that if I had been any of his other patients he would not have let me go home, but he trusted me enough to come to the ER if I needed to. I thought that was awesome! Any other doc would have had be admitted in 2 seconds, but he knew that I would take good care of myself at home.
 

thefrogprincess

New member
My CF doc trust me enough to know my own body and how I feel. If I have a sinus infection I just call and I get a scrip. No waisting my time going down there or dealing with students who have no clue about me or my CF (they usually don't believe that I'm as healthy as I am). When I got the flu a couple years ago he said that if I had been any of his other patients he would not have let me go home, but he trusted me enough to come to the ER if I needed to. I thought that was awesome! Any other doc would have had be admitted in 2 seconds, but he knew that I would take good care of myself at home.
 

thefrogprincess

New member
My CF doc trust me enough to know my own body and how I feel. If I have a sinus infection I just call and I get a scrip. No waisting my time going down there or dealing with students who have no clue about me or my CF (they usually don't believe that I'm as healthy as I am). When I got the flu a couple years ago he said that if I had been any of his other patients he would not have let me go home, but he trusted me enough to come to the ER if I needed to. I thought that was awesome! Any other doc would have had be admitted in 2 seconds, but he knew that I would take good care of myself at home.
 

princessjdc

New member
I like my cf doc that I have. He always lets me go every two months instead of every one month, and I remember when I got my first picc line that he wanted me in the hospital but I didnt want to be there so instead I got to stay home and he works with me I think. He use to say I was his STAR patient being all healthy and everything then I got sick but now Im back up to where I was but he hasnt said that to me in along time I like him he is really nice. I also like my nurse and my respitory therapist they are all nice too, specially my nurse she is really there for all of her patients.
 

princessjdc

New member
I like my cf doc that I have. He always lets me go every two months instead of every one month, and I remember when I got my first picc line that he wanted me in the hospital but I didnt want to be there so instead I got to stay home and he works with me I think. He use to say I was his STAR patient being all healthy and everything then I got sick but now Im back up to where I was but he hasnt said that to me in along time I like him he is really nice. I also like my nurse and my respitory therapist they are all nice too, specially my nurse she is really there for all of her patients.
 

princessjdc

New member
I like my cf doc that I have. He always lets me go every two months instead of every one month, and I remember when I got my first picc line that he wanted me in the hospital but I didnt want to be there so instead I got to stay home and he works with me I think. He use to say I was his STAR patient being all healthy and everything then I got sick but now Im back up to where I was but he hasnt said that to me in along time I like him he is really nice. I also like my nurse and my respitory therapist they are all nice too, specially my nurse she is really there for all of her patients.
 
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