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Cystic Fibrosis Forum (EXP)

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Would this be helpful for the site?

I

Imogene

Administrator
I will bring your concerns to the the conference in Denver this week. I will be meeting with representatives from the different Pharmas concerning education here at the site. I'll let you know how it goes. Candice, we did install the Wiki programming..how are you suggesting we get people involved with it? I know you have been so helpful.

Thanks,
Jeanne
 
N

NoExcuses

New member
most PI links are the drug's name.

www.tobi.com
www.aciphex.com
www.lantus.com
www.advair.com

pretty obvious i think except for the pulmozyme one
 
N

NoExcuses

New member
most PI links are the drug's name.

www.tobi.com
www.aciphex.com
www.lantus.com
www.advair.com

pretty obvious i think except for the pulmozyme one
 
N

NoExcuses

New member
most PI links are the drug's name.

www.tobi.com
www.aciphex.com
www.lantus.com
www.advair.com

pretty obvious i think except for the pulmozyme one
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Imogene</b></i>

I will bring your concerns to the the conference in Denver this week. I will be meeting with representatives from the different Pharmas concerning education here at the site. I'll let you know how it goes. Candice, we did install the Wiki programming..how are you suggesting we get people involved with it? I know you have been so helpful.



Thanks,

Jeanne</end quote></div>


I think getting PARI & the eFlow people involved in the site as well as Respirtech involved would be great.

I know both companies are having difficulties spreading the word about their devices and I think this site could really help them with education. It could also help CFers on the site who are interested in learning more about the devices and keeping up with what is new....

Thanks for your help, Jeanne!
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Imogene</b></i>

I will bring your concerns to the the conference in Denver this week. I will be meeting with representatives from the different Pharmas concerning education here at the site. I'll let you know how it goes. Candice, we did install the Wiki programming..how are you suggesting we get people involved with it? I know you have been so helpful.



Thanks,

Jeanne</end quote></div>


I think getting PARI & the eFlow people involved in the site as well as Respirtech involved would be great.

I know both companies are having difficulties spreading the word about their devices and I think this site could really help them with education. It could also help CFers on the site who are interested in learning more about the devices and keeping up with what is new....

Thanks for your help, Jeanne!
 
N

NoExcuses

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Imogene</b></i>

I will bring your concerns to the the conference in Denver this week. I will be meeting with representatives from the different Pharmas concerning education here at the site. I'll let you know how it goes. Candice, we did install the Wiki programming..how are you suggesting we get people involved with it? I know you have been so helpful.



Thanks,

Jeanne</end quote></div>


I think getting PARI & the eFlow people involved in the site as well as Respirtech involved would be great.

I know both companies are having difficulties spreading the word about their devices and I think this site could really help them with education. It could also help CFers on the site who are interested in learning more about the devices and keeping up with what is new....

Thanks for your help, Jeanne!
 
L

ladybug

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>amy</b></i>

most PI links are the drug's name.



www.tobi.com

www.aciphex.com

www.lantus.com

www.advair.com



pretty obvious i think except for the pulmozyme one</end quote></div>

Amy, thanks for your input. I actually meant the direct links to the PI on the info. so we DON'T have to type in the website and look around to find it. I realize you can always search for your particular med and get the info. you seek, but a direct link to the patient info. that is found with the med may be a good resource for some. I know if I am curious on specific side effects of something or study literature, I'd like to be able to click somewhere on this site and it would take me directly to the info. I seek without the homepage of the company that makes the drug(s). Just me though, and it was just an idea to see what others think.

As for the wiki... I have never wanted to add much to it just cause I don't have much more to add. I found it very helpful when searching for info. on CF however. I also wasn't sure what could/should be added... most of what I'd have to say is already on it. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

ladybug

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>amy</b></i>

most PI links are the drug's name.



www.tobi.com

www.aciphex.com

www.lantus.com

www.advair.com



pretty obvious i think except for the pulmozyme one</end quote></div>

Amy, thanks for your input. I actually meant the direct links to the PI on the info. so we DON'T have to type in the website and look around to find it. I realize you can always search for your particular med and get the info. you seek, but a direct link to the patient info. that is found with the med may be a good resource for some. I know if I am curious on specific side effects of something or study literature, I'd like to be able to click somewhere on this site and it would take me directly to the info. I seek without the homepage of the company that makes the drug(s). Just me though, and it was just an idea to see what others think.

As for the wiki... I have never wanted to add much to it just cause I don't have much more to add. I found it very helpful when searching for info. on CF however. I also wasn't sure what could/should be added... most of what I'd have to say is already on it. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

ladybug

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>amy</b></i>

most PI links are the drug's name.



www.tobi.com

www.aciphex.com

www.lantus.com

www.advair.com



pretty obvious i think except for the pulmozyme one</end quote></div>

Amy, thanks for your input. I actually meant the direct links to the PI on the info. so we DON'T have to type in the website and look around to find it. I realize you can always search for your particular med and get the info. you seek, but a direct link to the patient info. that is found with the med may be a good resource for some. I know if I am curious on specific side effects of something or study literature, I'd like to be able to click somewhere on this site and it would take me directly to the info. I seek without the homepage of the company that makes the drug(s). Just me though, and it was just an idea to see what others think.

As for the wiki... I have never wanted to add much to it just cause I don't have much more to add. I found it very helpful when searching for info. on CF however. I also wasn't sure what could/should be added... most of what I'd have to say is already on it. <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
L

ladybug

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>amy</b></i>

most PI links are the drug's name.



www.tobi.com

www.aciphex.com

www.lantus.com

www.advair.com



pretty obvious i think except for the pulmozyme one</end quote></div>


www.tobi.com does <u>not</u> take you to the TOBI site. I am still looking for their patient information link as www.abouttobi.com is also no longer working. This is an example of why I believe something central with web links to patient info. would be helpful.
 
L

ladybug

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>amy</b></i>

most PI links are the drug's name.



www.tobi.com

www.aciphex.com

www.lantus.com

www.advair.com



pretty obvious i think except for the pulmozyme one</end quote></div>


www.tobi.com does <u>not</u> take you to the TOBI site. I am still looking for their patient information link as www.abouttobi.com is also no longer working. This is an example of why I believe something central with web links to patient info. would be helpful.
 
L

ladybug

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>amy</b></i>

most PI links are the drug's name.



www.tobi.com

www.aciphex.com

www.lantus.com

www.advair.com



pretty obvious i think except for the pulmozyme one</end quote></div>


www.tobi.com does <u>not</u> take you to the TOBI site. I am still looking for their patient information link as www.abouttobi.com is also no longer working. This is an example of why I believe something central with web links to patient info. would be helpful.
 
I

Imogene

Administrator
I attended the <a target=_blank class=ftalternatingbarlinklarge href="http://www.dtcperspectives.com/">DTCperspectives conference </a>here in NJ last week...a conference for Pharmas and their marketing agencies.

I made contact with extremely creative companies ...working with Pharmas to bring education to the Internet...and here we are waiting for them!
<a target=_blank class=ftalternatingbarlinklarge href="http://www.commonhealth.com/home/Default.aspx">Common Health</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ignitehealth.com/">Ignite Health</a>

Here I go to Denver...bringing your wishes for a fully functional, educational dynamic place of hope!

Send your vibes with me~

Let this space be all it can be!

Jeanne
 
I

Imogene

Administrator
I attended the <a target=_blank class=ftalternatingbarlinklarge href="http://www.dtcperspectives.com/">DTCperspectives conference </a>here in NJ last week...a conference for Pharmas and their marketing agencies.

I made contact with extremely creative companies ...working with Pharmas to bring education to the Internet...and here we are waiting for them!
<a target=_blank class=ftalternatingbarlinklarge href="http://www.commonhealth.com/home/Default.aspx">Common Health</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ignitehealth.com/">Ignite Health</a>

Here I go to Denver...bringing your wishes for a fully functional, educational dynamic place of hope!

Send your vibes with me~

Let this space be all it can be!

Jeanne
 
I

Imogene

Administrator
I attended the <a target=_blank class=ftalternatingbarlinklarge href="http://www.dtcperspectives.com/">DTCperspectives conference </a>here in NJ last week...a conference for Pharmas and their marketing agencies.

I made contact with extremely creative companies ...working with Pharmas to bring education to the Internet...and here we are waiting for them!
<a target=_blank class=ftalternatingbarlinklarge href="http://www.commonhealth.com/home/Default.aspx">Common Health</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://www.ignitehealth.com/">Ignite Health</a>

Here I go to Denver...bringing your wishes for a fully functional, educational dynamic place of hope!

Send your vibes with me~

Let this space be all it can be!

Jeanne
 
L

LouLou

New member
Yeah Jeanne! Have fun at the conference and I hope all your 'meetings' go well. Thanks for all that you guys do.
 
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