went to the oncolgy cancer doctor at the childrens hospital today with my blood work. They did a new CBC and I was so happy to here that it was normal! I cryed! They told me to go down to mayo CF center. and my lungs did't sound that great today. Because I have been doing this teen thing where I don't do my treatments becuase I like (just don't want to?!) lol. Not good for me. They told me that I had an infection and thats why my counts where off. However my kidneys are not doing real well at all. they are down on the low side.
And does anyone know if we can still buy the AquADEK's?
my mom and I had a big talk about not taking care of my body with not doing my treatments and she told me she thinks it's time that I start taking care of my body and do my treatments as told. She sees that I am getting sicker with out them.
Yesterday I went to see a talking doctor she was so unkind about my issues with my health and mind. I am not going back to her. I was mad at her all you CFers would have had a fit at the things she said about as cfers! I was shocked! She's like why don't you just get a nures to give you your treatments and sit up your meds all the time? I am like us CFers don't need a nurse all the time in the house to to that they con't make us do are treatments. Plus doing are meds and treatemnts is our job we are used to it.
Then she said that why don't I just live in the hsopital! becuase I have so many issues with my CF. I yelled at her and told her she was being very unkind.
Thats all thinks guys!
And does anyone know if we can still buy the AquADEK's?
my mom and I had a big talk about not taking care of my body with not doing my treatments and she told me she thinks it's time that I start taking care of my body and do my treatments as told. She sees that I am getting sicker with out them.
Yesterday I went to see a talking doctor she was so unkind about my issues with my health and mind. I am not going back to her. I was mad at her all you CFers would have had a fit at the things she said about as cfers! I was shocked! She's like why don't you just get a nures to give you your treatments and sit up your meds all the time? I am like us CFers don't need a nurse all the time in the house to to that they con't make us do are treatments. Plus doing are meds and treatemnts is our job we are used to it.
Then she said that why don't I just live in the hsopital! becuase I have so many issues with my CF. I yelled at her and told her she was being very unkind.
Thats all thinks guys!