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One basic question. Is he being seen at an APPROVED CF CENTER by an CF SPECIALIST? Bill

One basic question. Is he being seen at an APPROVED CF CENTER by an CF SPECIALIST? Bill

I'm serious, if he DOES NOT have an infection he should NOT be on antibiotics. Bill

I'm serious, if he DOES NOT have an infection he should NOT be on antibiotics. Bill

Welcome to the USA and medicine CONTROLLED BY INSURANCE COMPANIES. Do you know what a LETTER OF MEDICAL NECESSITY is, you will. My meds are always questioned and held up. I'm waiting for an authorization for blood strips as we speak. Bill

YES!! Get another Doctor.

YES!! Get another Doctor.

For your own peace of mind, he should have his sperm tested. You should also be prepared for a report that states that he has ZERO sperm. Bill

At the top right hand side of this forum you will find, FIND A CF CENTER. At least call and get a second opinion. We are not talking about a head cold here so I have no clue what you mean when you say "don't want it to affect him for the worse." If he were my son he would already be in a...

At the top right hand side of this forum you will find, FIND A CF CENTER. At least call and get a second opinion. We are not talking about a head cold here so I have no clue what you mean when you say "don't want it to affect him for the worse." If he were my son he would already be in a...

When I was first tested in 1993 there were 250 KNOWN mutations. Today there are more than 1800 known mutations. You need a FULL CF SEQUENCING. More important, you need to have son seen at a APPROVED CF CENTER by an CF SPECIALIST. You don't need to be seen by someone who does not know how...

When I was first tested in 1993 there were 250 KNOWN mutations. Today there are more than 1800 known mutations. You need a FULL CF SEQUENCING. More important, you need to have son seen at a APPROVED CF CENTER by an CF SPECIALIST. You don't need to be seen by someone who does not know how...

When you say that they found one mutation, how many mutations did they test for? Given that you asked, he should be seen at an APPROVED CF CENTER by an CF SPECIALIST. Bill

When you say that they found one mutation, how many mutations did they test for? Given that you asked, he should be seen at an APPROVED CF CENTER by an CF SPECIALIST. Bill

Colleen: If I were you, I would go ahead with getting the appointments for a 2nd opinion. I would not wait for the test results. Bill

Colleen: If I were you, I would go ahead with getting the appointments for a 2nd opinion. I would not wait for the test results. Bill

8 yo with pancreatic insufficiency, fighting for genetic sequencing Julie7: I am sending a Personal Message to you Bill

8 yo with pancreatic insufficiency, fighting for genetic sequencing Julie: I have an appointment tomorrow (Thursday). Let me ask some questions and I get back to you later Thursday. Bill

I think that the operative phrase here is MAY NOT ALWAYS be indicated. Bill

I think that the operative phrase here is MAY NOT ALWAYS be indicated. Bill