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Roe Roberts, you could not be more correct. The House of Representatives, along with the drug companies wrote this bill. It may not be perfect but it is a big step in that direction.
In Massachusetts, we are represented by US Senator Scott Brown. He HATES OBANACARE so much he campaigned...
I was dx at age 47. Finally he is on the road to good health. He MUST get to an APPROVED CF CLINIC and be cared for by a CF SPECIALIST.
Only go to an ER at a hospital that has a APPROVED CF CLINIC. Tell them that he has CF and is having a CF FLARE.
Bill
I was dx at age 47. Finally he is on the road to good health. He MUST get to an APPROVED CF CLINIC and be cared for by a CF SPECIALIST.
Only go to an ER at a hospital that has a APPROVED CF CLINIC. Tell them that he has CF and is having a CF FLARE.
Bill
WOW!!! She is 10 years old and she is telling you what she will and will not do. What will she decide tomorrow or a year from now. Will she decide that she has had enough of school?
As the branch is bent, so shall thr tree grow.
You need to take charge before it is too late. Give her a...
WOW!!! She is 10 years old and she is telling you what she will and will not do. What will she decide tomorrow or a year from now. Will she decide that she has had enough of school?
As the branch is bent, so shall thr tree grow.
You need to take charge before it is too late. Give her a...
CFF has set up a program for FREE FULL CF SEQUENCING for people with one known mutation. It would be wise to look into this program and have son retested for FREE.
Bill
CFF has set up a program for FREE FULL CF SEQUENCING for people with one known mutation. It would be wise to look into this program and have son retested for FREE.
Bill
Ed:
Read my post on page 1 of this. FYI. in addition to copays between $10and $50, I also have a $2,800.00 DONUT HOLE. Medicare is not free, my wife AND I, each pay just a bit under $300 per month plus copays plus 2 DONUT HOLES.
Bill
Tammy:
That sounds really good. Just one thing though, Being seen at a Hospital with a CF CLINIC is not the same as being seen at a CF CLINIC by a CF SPECIALIST.
Good luck in trying to help son, he is very lucky to have you as his MOM.
Tammy:
That sounds really good. Just one thing though, Being seen at a Hospital with a CF CLINIC is not the same as being seen at a CF CLINIC by a CF SPECIALIST.
Good luck in trying to help son, he is very lucky to have you as his MOM.
There has to be a CYSTIC FIBROSIS FOUNDATION or something like it in the UK.
There are patients on here from the UK.
Post a question: WHERE IS THERE A GOOD CF CLINIC NEAR _________.
Bill
There has to be a CYSTIC FIBROSIS FOUNDATION or something like it in the UK.
There are patients on here from the UK.
Post a question: WHERE IS THERE A GOOD CF CLINIC NEAR _________.
Bill
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