Search results

I was 47 when I was dx, by then I had more than 10 years of and over 70 hospitalizations because of pancreatitis. Now my pancreases is "fried". Im CFRD and take 10 Creon 24 with every meal and snack. Bill

Rheams: When you went to Boston, did you see Dr. Steve Freedman at BIDMC. Bill

LittleLab Your right Steve is amazing. Bill

Call the CF Center at Children's Hospital in Totonto. It is one of the best CF research hospitals in the world. Explain the situation to them. Secondly call CFF in Maryland USA. Bill

Leah: You will love Dr. Alex. If you look at the recent newsletter (the one with the bealtiful kids) there is a half page article on Screening and diagnosis of CFRD. Bill

I am 47 and I have CF. There are many people on here, with CF, that are over 50. Bill

rheamc: Where do you live? If in the US, what state.

LittleLab4CF: I love you. I respect your wisdom and most importantly I am in awe of your patients. Thank you for being here. Bill

Jen: Having lived for 47 years before being dx, I feel your pain. There is no difference in the treatment (CF vs non CF) that she is getting now. The results of this treatment will not be instant, they will take time. As to CFRD, it is simple to test fot it. Discuss it with your new CF...

Unless you are pretty sick yourself, I see no reason that you would not visit your Father in the hospital. If you are uncomfortable going to the hospital, send word that you will visit him when he gets home. Bill

Melissa is right. You and HUBBY need to work together on this. Both of you need to sit with the entire (one by one or as a group) CF TEAM to get the help that you both need. Whatever harm is or is not done is in the past, start fresh and give this child the attention he/she needs. Bill

Katie: Keep up the good work. Bill

Colsophnel: Nobody here hates you. We all, in one way or another have faced CF. You knew that missing treatments was wrong, that is why you lied to the Doctor. You need to understand that you and the Doctor are a team. You need to work together for the wellbeing of your child. The fact...

Incumudrox: Kitomd21 is the first logical voice that I have seen on this posting. Closophnel may be looking for advise but her child is in a dangerous situation. It is time to think more about the infant than about the mom. You are acting as an enabler to the mom. Katie is being an advocate...

Above allis love: If you check above I sent her two private messages and she chose to ignore them. Then I replyed by posting here. Bill

We are discussing IV drugs, tobi in inhailed. Bill

I believe (and CF researchers agree) that my dad had undetected CF. If that is the case, while I got one mutation from each of my parents, my dad had an additional mutation. It is possible that a sibling could have received one, the same, mutation from my mom and a second mutation, different...

One of my Doctors explained that as they treat the problems with drugs there is colateral damage to the lungs, so only treat as necessary. Bill

With the proper amount of enzymes your son will be able to digest his food naturally and will take care of the diarrhea issue. I doubt that you will need to have him on a glten free diet. Good luck, Bill

Aboveallislove: I'm curious as to how you define "support". as in "mom came here for support". Are we to tell her that she is doing a wonderful job, while her child suffers? Should we pick mom up, put her over our shoulder and burp her because she has a situation? Just wondering. Bill