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I put my Pari LC Plus on the top rack of the dishwasher. Bill

Medicare paid for my nebulizers and a replacement compressor. The financial people at your CF Center can help you. Bill

The world is full of Doctors that can't even spell CYSTIC FIBROSIS much less dX or treat it. It is not a suprise that you found one, Bill

jbrandn: Good job, two excellent posts. Bill

Randy: I wish that I had the secret. Im not the oldest with CF, I understand the registry shows someone 83. The clinic that I go to has 3 patients over 70. Mac is microbacturium atriam complex. One more infection. Google it T5 variant makes V562I more potent (as I understand)

Kids cannot be refused, or premiums adjusted upwards, For kids. Under 14 I think. 2014 for the rest of us.

LeeAnn: I'm 72 years of age, I have CF and we will be celebrating our 50th Wedding Anniversary later this year. Bill

Call the Insurance Company and ask them if the policy places any limits on your activity while you are doing home IVs Bill

Ed nailed it. Contact your roommate and give him/her an opportunity to not room with you. You need someone who will understand your medical needs. You don't need someone who will be a pain in the ass. Enjoy your time at College Bill

Whenever someone comes into my room, be it a Doctor or the person who washes the floor, I will, without exception say THANK YOU. I always say PLEASE. I bring my own enzymes, and I explain that I need them at first bite. That I don't expect them to stop what they are doing to give me my...

sanfloraine: I have to alter my intake of enzymes based upon the food I will be digesting. Steak for example. Discuss this with the CF Team, not just the Doctor. Bill

I (we) only add salt during cooking, very seldon at the table. I do, whoever, neb 7% sailine. Bill

Alksandra you have a wonderful ability to observe the obvious. Bill

Shannon: It sounds like you have found a good CF Center and a good team. Things will continue to improve with son. Good luck, Bill

My dog sleeps on our bed. Unless there are allergies, relax. Bill

You are a very wise and kind Mother. Your son is lucky to have you. Bill

CF meds can damage the lungs, so it makes sense to not rx them until needed. The vest loosens mucus without doing damage. Sailine by neb may also be indicated as a preventative measure. Run these thoughts by your Doctor. Bill

This site is populated, in a large part, with adults with CF. I was dx at age 47 (I'm 72 now). By then I had 2/3 of my stomach removed, I had more than 70 hospitalizations as a result of pancreatitis. My gall bladder was removed. It took me 12 years to finish a 4 year college degree. Every...

Did you call Toronto Childrens?

Before Dr. Freedman worked with me to optomize my Creon, I would experience "digestive pain" on occasion. No pancretitis attacks for 10 years. A total burn out. Bill