Cystic Fibrosis Forum (EXP)

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  1. P

    Leaving

    RytheStunner: Ok educate me. Bill
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    What time suits you for chat

    I have really only attended the Wednesday chat onetime. I won't tell you here, the name that I was called. I'm really not planning on returning. Bill
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    Leaving

    RytheStunner: If you would be interested in building a new site, I'm sure Frank & Jonathan will appreciate your time and money. Bill
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    Leaving

    Neither are you. I would, however, disagree. This is a Cystic Fibrosis Information source and as such it is part of the MEDICAL INDUSTRY. I would remind you that nobody is requiring your attendance here. Additionally, should you wish to put your money and time into building a site, as the...
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    Leaving

    The entire medical industry is a business. That includes Cystic Fibrosis. What part of CF is not directed by business/profit? Bill
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    Leaving

    Why does anyone think that they have the right to the financial dealings of this site. Unless you are a stockholder, that information is none of your business. The financial operation is only the business of the ownership and if they chose to co-mingle the funds with and other sites is their...
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    What time suits you for chat

    Why does there need to be only one scheduled chat? Is it possible that some people would like to chat while the kids are in school or for some other time/reason, than Wednesday night? Bill
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    Leaving

    RytheStunner: Would you be kind enough as to define "money-making scheme". I'm just not clear as to your meaning. Bill
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    Crackling When Exhaling

    Kate: I always have a small crackle but what you are presenting sounds like it COULD be serious. Call your CF Clinic ASAP and tell them about it (again). Bill
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    Supreme Court Ruling Obamacare Upheld

    Randy: The thing that causes malpractice court cases and malpractice awards is malpractice. Try to find a PCP who can explain CF. You wont have any problem finding a PCP willing to treat CF. Bill
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    ENZYMES

    Mark: You need to take MiraLax when you have the "agony" problem. As a regular maintainance. Bill
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    ENZYMES

    As you get older, more pancreatitic ducts become blocked. As a result you will eventually have to increase your enzyme intake in order to get the same result.
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    Leaving

    Mark: I wish that yiu would PM me then.
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    Leaving

    Will one of you PM me and tell me what is going on. Bill
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    Supreme Court Ruling Obamacare Upheld

    Everyone needs to remember ELECTIONS MATTER!!!!
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    pharmacy use

    I have found with CF Services, when I have a problem, I ask for a Supervisor. That works. Bill
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    Supreme Court Ruling Obamacare Upheld

    I just can't understand why anyone with CF or anyone with a child with CF could be opposed to the AFFORDABLE HEALTHCARE ACT. Bill
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    Supreme Court Ruling Obamacare Upheld

    Randy: You are covered under your BCBS policy, nothing changes with Obamacare until 2014. Bill
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    Supreme Court Ruling Obamacare Upheld

    Randy: A cap on coverage is when the insurance coverage states that for a disease (like CF) the MAXAMUM CUMMULATIVE DOLLAR AMOUNT WILL BE $X. ie $1,000,000.00. Obamacare removes the ABILITY OF THE INSURANCE COMPANY to have a DOLLAR LIMIT. Nothing to do with taxes. Only people who can afford...
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    Supreme Court Ruling Obamacare Upheld

    musclemania: Let me see if I understand. You don't want the goverment involved in anything because they are incompetent and private insurers are equally incompetent. You however want everyone to keep private insurance. You want people in Congress knowledgable on all things known to man...
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