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musclemania70: Your Medicare Part D insured is a PRIVATE INSURANCE CARRIER. Bill

I love Trisha, she has an sterling record of outstanding posts here. Trisha lives in Spain. Spain's economy includes "free health care". Spain's economy had to be bailed out by Germany. There is no such thing as a FREE LUNCH. I agree Keith, we have a long way to go and ELECTIONS MATTER. Bill

LIL LAB 4 CF has me pegged perfectly when he says, printer does not suffer fools easily. By the way. Romneycare has set up a Commonwealth of Massachusetts office with the sole function of collecting funds from those who have benefited in a Massachusetts Hospital with FREE CARE. They first...

Abnormal: I want to reply to your post and I want to be kind to you. Instead of calling you an idiot, I'm only going to assume that you are ignorant to Health Insurance and to Obamacare. Before Obamacare, in the last ten years insurance costs have gone up 100%. Without Obamacare insurance...

Vampy: What you describe is a very serious problem. Mucus, remaining in the lungs, will cause PERMANATE LUNG DAMAGE. If I were you, I would be doing sailine, with vest, 3 times a day and getting as much physical activity as possible. Also as Ken suggested, increase your hydration as much as...

At age 72 I am REQUIRED to increase dairy to MAINTAIN bone health. Here are two children, 6 & 8, both with CF. By definition, fighting off failer to thrive, fat absorption problems, colon build up problems and the parents, in their wisdom, are restricting their diet at the most in...

Randy: In 2014 under Obamacare there will no longer be caps on coverage. Bill

If you go to an APPROVED CF CENTER AND SEE A CF SPECIALIST, he/she will take care of everything. Bill

You need to see a CF Specialist at an APPROVED CF CENTER. What major city do you live near? Bill

AnnieT: Your brother does not have CF so digestive problems are not the same and he is NOT 6 years of age and is not depending on healthy bone growth (dairy). Bill

OOPS not even 250.

This is a study of the main (250) cf mutations and you tested negative for all of them. There are almost 2000 CF MUTATIONS. That means that there are an additional 1750 that you were NOT TESTED FOR. You need to have a FULL CF SEQUENCING.

I can answer that YES you can get a 2nd opinion in another state. I would recommend Craig Gerard MD at Boston Childrens, Adult CF Clinic. Bill

Uncertainty: Massachusetts General Hospital in Boston is an APPROVED CF CENTER. There are about 2000 Doctors working for MGH. Less than 10 Doctors at MGH are CF SPECIALISTS. The same is true for every CF Center in this country It is not enough to be seen at a CF Center. If you had a brain...

You will need an ADULT CF CENTER. If you tell us where you live, we will help you find one. Bill

Phoenix Children's Center - CF Center Peggy Radford, MD 602-546-1999

Did your CF SPECIALIST tell you to go gluten free, dairy free and sugar free, etc. or are you doing this on your own? This kid is only 6 years old. Bill

He needs to be seen at a APPROVED CF CENTER BY AN CF SPECIALIST. He needs to have a FULL CF SEQUENCING. Genetic testing can run from testing for 250 most common mutations to the full sequencing of almost 2000 known mutations. I will bet that he has only been tested for the most common...

Up until reading your post, I thought that I was the most misdiagnosed person in the world. I may have to take second place to you. The most important thing that you have to realize is the past is water under the bridge and you need to start fresh. When you had the genetic testing 15 years...

Rhonda: I am so sorry for your loss. Everyday when I'm on here, I question why I was/am spared. Why so many wonderful young people, in the prime of their lives, are taken and I am left here. God bless you, Bill