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  1. P

    For Adults dx late in life - how do you feel?

    Bea Be patient, it will get better. Bill
  2. P

    For Adults dx late in life - how do you feel?

    Bea Be patient, it will get better. Bill
  3. P

    For Adults dx late in life - how do you feel?

    Susan: I was dx at age 47. In short, with meds, treatment and a "definition" as to why I am sick I am healther now than I was at age 47. Bill
  4. P

    For Adults dx late in life - how do you feel?

    Susan: I was dx at age 47. In short, with meds, treatment and a "definition" as to why I am sick I am healther now than I was at age 47. Bill
  5. P

    I keep falling - need help

    My Dad, who I believe had CF, had a nuralogical problem called Sharko, Marie, Tooth. The symptoms were extremely similar to what you described.
  6. P

    I keep falling - need help

    My Dad, who I believe had CF, had a nuralogical problem called Sharko, Marie, Tooth. The symptoms were extremely similar to what you described.
  7. P

    Hyper-Sal 7% (Hypertonic saline)

    bjsmon: Did you get any 7%
  8. P

    Hyper-Sal 7% (Hypertonic saline)

    bjsmon: Did you get any 7%
  9. P

    fighting for help

    Maybe you can get the Pulmonologist to order the FULL CF SEQUENCING. Good luck, keep up the good work, Bill
  10. P

    fighting for help

    Maybe you can get the Pulmonologist to order the FULL CF SEQUENCING. Good luck, keep up the good work, Bill
  11. P

    How far do you travel to get to your clinic?

    I recently changed from Mass General to Children's in Boston. Still anywhere from 30 min to 2 hours, depending on time of day and traffic. Bill
  12. P

    How far do you travel to get to your clinic?

    I recently changed from Mass General to Children's in Boston. Still anywhere from 30 min to 2 hours, depending on time of day and traffic. Bill
  13. P

    My daughter Samantha

    OK
  14. P

    My daughter Samantha

    OK
  15. P

    fighting for help

    I really would find a new Pedi, TODAY.
  16. P

    fighting for help

    I really would find a new Pedi, TODAY.
  17. P

    Diagnostic Help

    The two posts above this one gave you the best advice in the world. DO WHAT THEY SAID. Puting this off can allow PERMANENT DAMAGE to occur to tour child. Bill
  18. P

    Diagnostic Help

    The two posts above this one gave you the best advice in the world. DO WHAT THEY SAID. Puting this off can allow PERMANENT DAMAGE to occur to tour child. Bill
  19. P

    fighting for help

    I have two suggestions. First call an APPROVED CF CENTER, tell them your story and let them call your primary for a referral. Second, when your child has a flare up, go to the hospital ER where your nearest APPROVED CF CLINIC is located. The attending will, with your assistance, call the CF...
  20. P

    fighting for help

    I have two suggestions. First call an APPROVED CF CENTER, tell them your story and let them call your primary for a referral. Second, when your child has a flare up, go to the hospital ER where your nearest APPROVED CF CLINIC is located. The attending will, with your assistance, call the CF...
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