Cystic Fibrosis Forum (EXP)

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  1. P

    Junky cough

    Josette: May I suggest that you get the Doctors/or his Nurses, e mail. Send an email and let them decide how important/irgent the question is. They will get back to tou. I have been doing this for several years. Bill
  2. P

    Junky cough

    Josette: May I suggest that you get the Doctors/or his Nurses, e mail. Send an email and let them decide how important/irgent the question is. They will get back to tou. I have been doing this for several years. Bill
  3. P

    good idea

    Now if you could get the Birthday Wishes out of "latest topics".
  4. P

    good idea

    Now if you could get the Birthday Wishes out of "latest topics".
  5. P

    7% saline nebulizer- any help here?

    Canilucas: Have you discussed this question with her CF Doctor? Bill
  6. P

    7% saline nebulizer- any help here?

    Canilucas: Have you discussed this question with her CF Doctor? Bill
  7. P

    My daughter Samantha

    Dragonlady: There is a thread in the TEEN SECTION, and I believe it is called "teasing hurts". Hurts is the 2nd word in the title anyway. I think I understand your being protective of your DD but it might be good for you to take a few minutes to read through this thread. Bill
  8. P

    My daughter Samantha

    Dragonlady: There is a thread in the TEEN SECTION, and I believe it is called "teasing hurts". Hurts is the 2nd word in the title anyway. I think I understand your being protective of your DD but it might be good for you to take a few minutes to read through this thread. Bill
  9. P

    Supporting someone DX later in life

    Gunhild, you stated ir perfectly. Bill
  10. P

    Supporting someone DX later in life

    Gunhild, you stated ir perfectly. Bill
  11. P

    New and Confused about my son

    NPD is a nasal sailine test, I had it done and it is not pleasant. Go with the Full Sequencing if you can. Bill
  12. P

    New and Confused about my son

    NPD is a nasal sailine test, I had it done and it is not pleasant. Go with the Full Sequencing if you can. Bill
  13. P

    Supporting someone DX later in life

    I was dx at age 47. I didn't have to cope with it, my dx was a blessing. See, I was NEVER was "basically healthy". I was always a thin, underweight, sickly kid. In one ten year span (before dx) I was hospitalized over 80 times. My dx saved my life. Bill
  14. P

    Supporting someone DX later in life

    I was dx at age 47. I didn't have to cope with it, my dx was a blessing. See, I was NEVER was "basically healthy". I was always a thin, underweight, sickly kid. In one ten year span (before dx) I was hospitalized over 80 times. My dx saved my life. Bill
  15. P

    Baby is pancreatic insufficient but has negative sweat test: maybe CF or not?

    I have NEVER had a POSITIVE SWEAT TEST. I have tested POSITIVE on the Nasal and on the rectal biopsy. I have two mutations. Bill
  16. P

    Baby is pancreatic insufficient but has negative sweat test: maybe CF or not?

    I have NEVER had a POSITIVE SWEAT TEST. I have tested POSITIVE on the Nasal and on the rectal biopsy. I have two mutations. Bill
  17. P

    New and Confused about my son

    Katie: Your son needs to have a FULL CF SEQUENCING. Now when they drew blood if MAY have been for that test. If it was it will take about 16 weeks for you to get the results. I know it is difficult but you need to be patient. Bill
  18. P

    New and Confused about my son

    Katie: Your son needs to have a FULL CF SEQUENCING. Now when they drew blood if MAY have been for that test. If it was it will take about 16 weeks for you to get the results. I know it is difficult but you need to be patient. Bill
  19. P

    New and Confused about my son

    Katie: Your son needs to have a FULL CF SEQUENCING. Now when they drew blood if MAY have been for that test. If it was it will take about 16 weeks for you to get the results. I know it is difficult but you need to be patient. Bill
  20. P

    New and Confused about my son

    Katie: Your son needs to have a FULL CF SEQUENCING. Now when they drew blood if MAY have been for that test. If it was it will take about 16 weeks for you to get the results. I know it is difficult but you need to be patient. Bill
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