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Before I was dx with CF and I was in the years that I suffered from pancretitis, I was rushed to the ER. The doctor came in and asked what my problem was. I told him i had "sub acute recuring pancretitis". To which he replyed....HAVE YOU EVER HAD IT BEFORE?
Creon does not treat pancretitis. Creon helps with the issue of mal fat absorption. Pancretitis is a much more serious situation than gas and diarrea. Has he had a full cf sequencing done yet?
Creon does not treat pancretitis. Creon helps with the issue of mal fat absorption. Pancretitis is a much more serious situation than gas and diarrea. Has he had a full cf sequencing done yet?
Josette:
Having been hospitalized almost 70 times over a 10 year period, prior to being dx with CF, I understand something about what your son is experiencing.
If he were my son, I would find a Gastrologist who deals with CF patients. Each time son is experiencing pain he is (in my...
Josette:
Having been hospitalized almost 70 times over a 10 year period, prior to being dx with CF, I understand something about what your son is experiencing.
If he were my son, I would find a Gastrologist who deals with CF patients. Each time son is experiencing pain he is (in my...
Kris:
I recently changed CF Centers. There I'm only one of four CF patients in their 70's. There will be a study soon based upon our age and our CF. The theory is that we have a natural amunity, in out lungs, that reduces the effect of asper and ps.
If an amunity exists, the theory is it...
Kris:
I recently changed CF Centers. There I'm only one of four CF patients in their 70's. There will be a study soon based upon our age and our CF. The theory is that we have a natural amunity, in out lungs, that reduces the effect of asper and ps.
If an amunity exists, the theory is it...
Melissa: In 1995 in a search of 250 known mutations they found the Delta F508 only. In a full almost 1900 known mutations done in 2011 they found my second mutation (see below). I would strongly recommend that a FULL SEQUENCING be done. I don't remember my sweat tests from 1987 but they both...
Melissa: In 1995 in a search of 250 known mutations they found the Delta F508 only. In a full almost 1900 known mutations done in 2011 they found my second mutation (see below). I would strongly recommend that a FULL SEQUENCING be done. I don't remember my sweat tests from 1987 but they both...
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