Cystic Fibrosis Forum (EXP)

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  1. P

    who's over 50?

    litsa: Thank you for your kind words. We are all here to help one another. Send a Personal Message to me any time you like. Don't apologize for your English, it is better than my Greek will ever be. Bill
  2. P

    Just for fun but CF related - Real things doctors have said to me in the hospital

    I am continually amazed at how little non-Cf Doctors know about CF. I shouldn't feel this way since it has been an issue with me since i was dx. I had a Doctor tell ne that I should be on a non fat diet. Bill
  3. P

    Just for fun but CF related - Real things doctors have said to me in the hospital

    I am continually amazed at how little non-Cf Doctors know about CF. I shouldn't feel this way since it has been an issue with me since i was dx. I had a Doctor tell ne that I should be on a non fat diet. Bill
  4. P

    Career Path (HELP!!)

    What do your parents, teachers or uncle/aunts say.
  5. P

    Career Path (HELP!!)

    What do your parents, teachers or uncle/aunts say.
  6. P

    Career Path (HELP!!)

    Robin: 80% of College Freshman will change their major at least once before graduation. You could start as a Liberal Arts major, take classes in which you have interest. Talk to the Guidance Counselor at your High School, they will be a big help. Bill
  7. P

    Career Path (HELP!!)

    Robin: 80% of College Freshman will change their major at least once before graduation. You could start as a Liberal Arts major, take classes in which you have interest. Talk to the Guidance Counselor at your High School, they will be a big help. Bill
  8. P

    Symptoms in 2 month old?

    It is very obvious that your son needs to be evaluated at an APPROVED CF CENTER. Primary Care Physicians, in general, do not have a clue about CF. Bill
  9. P

    Symptoms in 2 month old?

    It is very obvious that your son needs to be evaluated at an APPROVED CF CENTER. Primary Care Physicians, in general, do not have a clue about CF. Bill
  10. P

    2942insT

    the cDNA is c.2810_2811insT You can Google it for more information. Bill
  11. P

    2942insT

    the cDNA is c.2810_2811insT You can Google it for more information. Bill
  12. P

    Unknown Variant

    Contact the company that did the FULL CF SEQUENCING and ask for their help in sorting out thes situation. Bill
  13. P

    Unknown Variant

    Contact the company that did the FULL CF SEQUENCING and ask for their help in sorting out thes situation. Bill
  14. P

    who's over 50?

    Basically your Doctors are correct regarding CARRIERS but as I said before CARRIER status can change if a new screening shows 2 mutations. Again, the answer is YES. Some mutations are "late onset" so health issues may not show up umtil later in life. There is a thread here that you should...
  15. P

    who's over 50?

    Basically your Doctors are correct regarding CARRIERS but as I said before CARRIER status can change if a new screening shows 2 mutations. Again, the answer is YES. Some mutations are "late onset" so health issues may not show up umtil later in life. There is a thread here that you should...
  16. P

    Am I overreacting?

    In a prefect world (and this world is not perfect) how much do you honestly believe that you can protect your son? He will fall down. He will be pushed down. He will be hit by others. He will hit others. He will share a cookie with a friend. Yes even share a drink with a friend using one...
  17. P

    Am I overreacting?

    In a prefect world (and this world is not perfect) how much do you honestly believe that you can protect your son? He will fall down. He will be pushed down. He will be hit by others. He will hit others. He will share a cookie with a friend. Yes even share a drink with a friend using one...
  18. P

    Sorry to go missing for so long- update on the kids!

    Harriet: Hang in there, all of us out here love you and are praying for you and your family. Bill
  19. P

    Sorry to go missing for so long- update on the kids!

    Harriet: Hang in there, all of us out here love you and are praying for you and your family. Bill
  20. P

    Can somebody give me some answers, please!

    Keely: I recently had to change CF Clinics because I strongly felt that the CF Doctor I was seeing was not listening to me. Now I'm 72 and much older than that Doctor, and I have two college degrees, so I can only wonder as to how little your Doctor is listening to you. Go to see the adult Cf...
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