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If your DD's Doctor has Rx something for here and you have questions of safety, you should be talking to her Doctor. If you don't trust her Doctor, you need to change Clinics. This is a great support group, with great people and questions like, do you neb at night or during the day, are very...

If your DD's Doctor has Rx something for here and you have questions of safety, you should be talking to her Doctor. If you don't trust her Doctor, you need to change Clinics. This is a great support group, with great people and questions like, do you neb at night or during the day, are very...

Zeeannie: It is extremely important that she sees a CF Gastro, not just a regilar Gastro. Bill

Zeeannie: It is extremely important that she sees a CF Gastro, not just a regilar Gastro. Bill

Tom: To further clarify, If you look at the second post on this thread you will see my comments on reduclng the amount of enzymes taken. Those comments were addressed to Debbie and were in direct response to her question. If you read the literature from Abbott in regard to the dosage of Creon...

Tom: To further clarify, If you look at the second post on this thread you will see my comments on reduclng the amount of enzymes taken. Those comments were addressed to Debbie and were in direct response to her question. If you read the literature from Abbott in regard to the dosage of Creon...

Defensiveness, no. Being told that I should NOT be on a HIGH FAT DIET, by someone who should know better, pisses me off. I'm afraid some people here might think that you sound smart, follow what you say and cause their health to deteriate.

Defensiveness, no. Being told that I should NOT be on a HIGH FAT DIET, by someone who should know better, pisses me off. I'm afraid some people here might think that you sound smart, follow what you say and cause their health to deteriate.

Harriett: I sent you a PM Bill

Harriett: I sent you a PM Bill

Infuriated!..Respiratory nurse takes my neb cups and washes them in sink and goes to put them in the bag hanging for next treatment???? Carly: It continously amazes me, how little so many people in the medical profession know about CF. Make that nurse call your CF Doctor. Bill

Infuriated!..Respiratory nurse takes my neb cups and washes them in sink and goes to put them in the bag hanging for next treatment???? Carly: It continously amazes me, how little so many people in the medical profession know about CF. Make that nurse call your CF Doctor. Bill

I will have my Gastro Doctor contact you for advise. He is busy tho. He is a world renowned Cystic Fibrosis Researcher. He was a PRESENTER at the recent CFF Conference in California. He is also a MEDICAL ADVISOR to the President Obama Administration. That along with being in charge of...

I will have my Gastro Doctor contact you for advise. He is busy tho. He is a world renowned Cystic Fibrosis Researcher. He was a PRESENTER at the recent CFF Conference in California. He is also a MEDICAL ADVISOR to the President Obama Administration. That along with being in charge of...

Betty: I just changed CF Centers because my Doctor wasn't listening to me. It is not easy to make a change but sometimes it is necessary. Bill

Betty: I just changed CF Centers because my Doctor wasn't listening to me. It is not easy to make a change but sometimes it is necessary. Bill

dbtoo I weigh 154 lbs. I take 10 Creon 24 with every meal and snack. (24000 units X 50 = 1,200,000 units/day). How does that work out with your calculations? Bill

dbtoo I weigh 154 lbs. I take 10 Creon 24 with every meal and snack. (24000 units X 50 = 1,200,000 units/day). How does that work out with your calculations? Bill

Or that she simply made a mistake.

Or that she simply made a mistake.