Cystic Fibrosis Forum (EXP)

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  1. P

    Opening a can o' worms

    <P>As late as 2006 my second mutation was only suspected to be a CF gene. It is important to note that, people with CF children today, live in a very different world than those of us over 40 grew up in. </P> <P>Even at age 60 the max number of mutations that could be screened was 250.</P>...
  2. P

    Opening a can o' worms

    <P>As late as 2006 my second mutation was only suspected to be a CF gene. <BR><BR>It is important to note that, people with CF children today, live in a very different world than those of us over 40 grew up in. <BR> </P> <P>Even at age 60 the max number of mutations that could be screened was...
  3. P

    Opening a can o' worms

    I was dx at age 47. If I were 3 today I would be dx today. Those of us who are older, in many cases, were either mis-diagnosed or were treated by Doctors who were "ignorant" of CF at that time. I saw a chart on here and according to that chart my case is in the top 10% for most severe. Bill
  4. P

    Opening a can o' worms

    I was dx at age 47. If I were 3 today I would be dx today. Those of us who are older, in many cases, were either mis-diagnosed or were treated by Doctors who were "ignorant" of CF at that time. I saw a chart on here and according to that chart my case is in the top 10% for most severe. Bill
  5. P

    Opening a can o' worms

    I was dx at age 47. If I were 3 today I would be dx today. Those of us who are older, in many cases, were either mis-diagnosed or were treated by Doctors who were "ignorant" of CF at that time. I saw a chart on here and according to that chart my case is in the top 10% for most severe. <br />...
  6. P

    Recommended Pediatricians North of Boston, MA?

    In that case ask your CF Doctor to give you a name. Bill
  7. P

    Recommended Pediatricians North of Boston, MA?

    In that case ask your CF Doctor to give you a name. Bill
  8. P

    Recommended Pediatricians North of Boston, MA?

    In that case ask your CF Doctor to give you a name. <br /> <br />Bill
  9. P

    Recommended Pediatricians North of Boston, MA?

    Josh: I too am north of Boston. Your son should be seen at an approved CF Center. Mass General Hospital, Childrens Hospital in Boston and U Mass Hospital in Worcester are all approved. Sand me a personal message if you need to talk. Bill
  10. P

    Recommended Pediatricians North of Boston, MA?

    Josh: I too am north of Boston. Your son should be seen at an approved CF Center. Mass General Hospital, Childrens Hospital in Boston and U Mass Hospital in Worcester are all approved. Sand me a personal message if you need to talk. Bill
  11. P

    Recommended Pediatricians North of Boston, MA?

    Josh: <br /> <br />I too am north of Boston. Your son should be seen at an approved CF Center. Mass General Hospital, Childrens Hospital in Boston and U Mass Hospital in Worcester are all approved. Sand me a personal message if you need to talk. <br /> <br />Bill
  12. P

    should i get tested for mild CF

    Jon is right, go to a CF Clinic.
  13. P

    should i get tested for mild CF

    Jon is right, go to a CF Clinic.
  14. P

    should i get tested for mild CF

    Jon is right, go to a CF Clinic.
  15. P

    Weight Gain

    Ice Cream
  16. P

    Stomach problems

    It sounds like a lack of enzymes. Discuss this with your CF Doctor, not your Primary Care Doctor.
  17. P

    Stomach problems

    It sounds like a lack of enzymes. Discuss this with your CF Doctor, not your Primary Care Doctor.
  18. P

    Stomach problems

    It sounds like a lack of enzymes. Discuss this with your CF Doctor, not your Primary Care Doctor.
  19. P

    when your child finds out the median age

    I was dx at age 47 and my life expectancy at that time was 30, I'm 71 now and my life expectancy is 35. Bill
  20. P

    when your child finds out the median age

    I was dx at age 47 and my life expectancy at that time was 30, I'm 71 now and my life expectancy is 35. Bill
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