Cystic Fibrosis Forum (EXP)

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  1. P

    Opening a can o' worms

    Harriett: <br /> <br />It is interesting that you feel "under attack" because that was the way that I felt when I read the opening posts of this thread by you and Katie. What I heard you say was my DD is very sick and those over 40 were never very sick. My DD has REAL CF and those over 40 have...
  2. P

    HTS back ordered?

    McGrad: PM me, i have some 7% that I can give you. Bill
  3. P

    HTS back ordered?

    McGrad: PM me, i have some 7% that I can give you. Bill
  4. P

    HTS back ordered?

    McGrad: <br /> <br />PM me, i have some 7% that I can give you. <br /> <br />Bill
  5. P

    Opening a can o' worms

    Tom: I can look you in the eye and tell you that I have Cystic Fibrosis. By any standard that you wish to use, I have CYSTIC FIBROSIS. Am I facing the same SITUATION as your son, NO. But do you want to compare your son to those who have passed in there first year of life, of course not. Let...
  6. P

    Opening a can o' worms

    Tom: I can look you in the eye and tell you that I have Cystic Fibrosis. By any standard that you wish to use, I have CYSTIC FIBROSIS. Am I facing the same SITUATION as your son, NO. But do you want to compare your son to those who have passed in there first year of life, of course not. Let...
  7. P

    Opening a can o' worms

    Tom: <br /> <br />I can look you in the eye and tell you that I have Cystic Fibrosis. By any standard that you wish to use, I have CYSTIC FIBROSIS. Am I facing the same SITUATION as your son, NO. But do you want to compare your son to those who have passed in there first year of life, of...
  8. P

    Opening a can o' worms

    Yea FARMFAMILY. I must have had a healthy childhood but by what standard. I was alot healther than my peers who died before the age of five. Is that the criteria that you want to measure my life by? Bill
  9. P

    Opening a can o' worms

    Yea FARMFAMILY. I must have had a healthy childhood but by what standard. I was alot healther than my peers who died before the age of five. Is that the criteria that you want to measure my life by? Bill
  10. P

    Opening a can o' worms

    Yea FARMFAMILY. I must have had a healthy childhood but by what standard. I was alot healther than my peers who died before the age of five. <br /> <br />Is that the criteria that you want to measure my life by? <br /> <br />Bill
  11. P

    Opening a can o' worms

    Katie: I really understand your situation. I constantly wonder why I'm still here when so many great kids are taken. I can only live my life as it has been given to me. I understand how difficult it is for youngsters with CF but it doesn't mean that because I'm still alive that it is, or...
  12. P

    Opening a can o' worms

    Katie: I really understand your situation. I constantly wonder why I'm still here when so many great kids are taken. I can only live my life as it has been given to me. I understand how difficult it is for youngsters with CF but it doesn't mean that because I'm still alive that it is, or...
  13. P

    Opening a can o' worms

    Katie: <br /> <br />I really understand your situation. I constantly wonder why I'm still here when so many great kids are taken. I can only live my life as it has been given to me. I understand how difficult it is for youngsters with CF but it doesn't mean that because I'm still alive that...
  14. P

    Opening a can o' worms

    Katie, Harriet: Those are my thoughts. Bill
  15. P

    Opening a can o' worms

    Katie, Harriet: Those are my thoughts. Bill
  16. P

    Opening a can o' worms

    Katie, Harriet: <br /> <br />Those are my thoughts. <br /> <br />Bill
  17. P

    Opening a can o' worms

    If you GOOGLE cysticfibrosishealth.com you will fimd an area called A HISTORY OF CYSTIC FIBROSIS. In the 1930's it was described as "the condition that is caused by a deficiency of Vitamin A. In the 1940's the abnormal secretion of mucus was connected to CF. The 1950's saw the beginnings of...
  18. P

    Opening a can o' worms

    If you GOOGLE cysticfibrosishealth.com you will fimd an area called A HISTORY OF CYSTIC FIBROSIS. In the 1930's it was described as "the condition that is caused by a deficiency of Vitamin A. In the 1940's the abnormal secretion of mucus was connected to CF. The 1950's saw the beginnings of...
  19. P

    Opening a can o' worms

    If you GOOGLE cysticfibrosishealth.com you will fimd an area called A HISTORY OF CYSTIC FIBROSIS. In the 1930's it was described as "the condition that is caused by a deficiency of Vitamin A. <br /> <br />In the 1940's the abnormal secretion of mucus was connected to CF. <br /> <br />The...
  20. P

    Opening a can o' worms

    <P>As late as 2006 my second mutation was only suspected to be a CF gene. It is important to note that, people with CF children today, live in a very different world than those of us over 40 grew up in.   </P> <P>Even at age 60 the max number of mutations that could be screened was 250.</P>...
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