Cystic Fibrosis Forum (EXP)

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  1. P

    Gallbladder Removal

    I had my gall bladder our in my early 30s it went fine. One reason for gall stones is Hypoparathyrodism. This causes your body to over produce calcium. You should have your Doctor check it out, itsa simple blood test. Bill
  2. P

    Gallbladder Removal

    I had my gall bladder our in my early 30s it went fine. One reason for gall stones is Hypoparathyrodism. This causes your body to over produce calcium. You should have your Doctor check it out, itsa simple blood test. <br /> <br />Bill
  3. P

    A WWYD

    Have BOTH you and hubby been tested. You would BOTH have to be carriers in order for kids to have 2 mutations. Bill
  4. P

    A WWYD

    Have BOTH you and hubby been tested. You would BOTH have to be carriers in order for kids to have 2 mutations. Bill
  5. P

    A WWYD

    Have BOTH you and hubby been tested. You would BOTH have to be carriers in order for kids to have 2 mutations. <br /> <br />Bill
  6. P

    A WWYD

    Of course she could have 2 mutations even tho the others have only one. Barbara, what is the CF Doctor recommending? Bill
  7. P

    A WWYD

    Of course she could have 2 mutations even tho the others have only one. Barbara, what is the CF Doctor recommending? Bill
  8. P

    A WWYD

    Of course she could have 2 mutations even tho the others have only one. Barbara, what is the CF Doctor recommending? <br /> <br />Bill
  9. P

    A WWYD

    Yes. There are several levels of gene testing. There are almost 1900 mutations. Only one test scans for all mutations. If the Ambry that was done is NOT a FULL CF GENE SEQUENCING, I would think that is now required. You don't say that your children are being seen at an APPROVED CF CENTER...
  10. P

    A WWYD

    Yes. There are several levels of gene testing. There are almost 1900 mutations. Only one test scans for all mutations. If the Ambry that was done is NOT a FULL CF GENE SEQUENCING, I would think that is now required. You don't say that your children are being seen at an APPROVED CF CENTER...
  11. P

    A WWYD

    Yes. There are several levels of gene testing. There are almost 1900 mutations. Only one test scans for all mutations. If the Ambry that was done is NOT a FULL CF GENE SEQUENCING, I would think that is now required. <br /> <br />You don't say that your children are being seen at an APPROVED...
  12. P

    Underweight?

    By Grace's DS is going to have his FIRST appointment with a CF DOCTOR next week I'm certain that the CF Center in question will run all of the appropiate tests and diet changes. He is currently seeing a NON CF DOCTOR. I would suggest treatment will intensify next week Relax everyone. Bill
  13. P

    Underweight?

    By Grace's DS is going to have his FIRST appointment with a CF DOCTOR next week I'm certain that the CF Center in question will run all of the appropiate tests and diet changes. He is currently seeing a NON CF DOCTOR. I would suggest treatment will intensify next week Relax everyone. Bill
  14. P

    Underweight?

    By Grace's DS is going to have his FIRST appointment with a CF DOCTOR next week I'm certain that the CF Center in question will run all of the appropiate tests and diet changes. He is currently seeing a NON CF DOCTOR. I would suggest treatment will intensify next week <br /> <br />Relax...
  15. P

    HELP please

    Call the LEGAL OFFICE at the CYSTIC FIBROSIS FOUNDATION.
  16. P

    HELP please

    Call the LEGAL OFFICE at the CYSTIC FIBROSIS FOUNDATION.
  17. P

    HELP please

    Call the LEGAL OFFICE at the CYSTIC FIBROSIS FOUNDATION.
  18. P

    Underweight?

    He may be a skinny kid with CF.
  19. P

    Underweight?

    He may be a skinny kid with CF.
  20. P

    Underweight?

    He may be a skinny kid with CF.
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