Cystic Fibrosis Forum (EXP)

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  1. P

    Weight Gain

    Incomudrox: <br /> <br />Feel free to say more. Say as much as you like. I'm assuming that you are an MD or a RD. We need youe instructions. <br /> <br />Bill
  2. P

    Weight Gain

    Incomudrox: OH MY GOD, I DIDN'T KNOW. I'll stop eating ICE CREAM AND POTATO CHIPS now. Well maybe not. Bill
  3. P

    Weight Gain

    Incomudrox: OH MY GOD, I DIDN'T KNOW. I'll stop eating ICE CREAM AND POTATO CHIPS now. Well maybe not. Bill
  4. P

    Weight Gain

    Incomudrox: <br /> <br />OH MY GOD, I DIDN'T KNOW. I'll stop eating ICE CREAM AND POTATO CHIPS now. <br /> <br />Well maybe not. <br /> <br />Bill
  5. P

    Sputum question for everyone

    Jen: That is about what I do. Do you vest and/or sailine? Bill
  6. P

    Sputum question for everyone

    Jen: That is about what I do. Do you vest and/or sailine? Bill
  7. P

    Sputum question for everyone

    Jen: <br /> <br />That is about what I do. Do you vest and/or sailine? <br /> <br />Bill
  8. P

    Pneumonia Shot Pain???

    Be thankful that she gave you the shot. Put ice on it. Bill
  9. P

    Pneumonia Shot Pain???

    Be thankful that she gave you the shot. Put ice on it. Bill
  10. P

    Pneumonia Shot Pain???

    Be thankful that she gave you the shot. Put ice on it. <br /> <br />Bill
  11. P

    Sweat Test

    13 is a very low number for a sweat test. I would want that repeated. Bill
  12. P

    Sweat Test

    13 is a very low number for a sweat test. I would want that repeated. Bill
  13. P

    Sweat Test

    13 is a very low number for a sweat test. I would want that repeated. <br /> <br />Bill
  14. P

    Now worried after reading posts on atypical cf or cf metabolic syndrome

    Mistyjo: Google "Atypical Cystic Fibrosis" then look for a paper published by the JOURNAL OF THE ROYAL SOCIETY OF MEDICINE, titled "Atypical cystic fibrosis-diagnostic and management dilemmas". It is 10 pages but extremely informative. Bill
  15. P

    Now worried after reading posts on atypical cf or cf metabolic syndrome

    Mistyjo: Google "Atypical Cystic Fibrosis" then look for a paper published by the JOURNAL OF THE ROYAL SOCIETY OF MEDICINE, titled "Atypical cystic fibrosis-diagnostic and management dilemmas". It is 10 pages but extremely informative. Bill
  16. P

    Now worried after reading posts on atypical cf or cf metabolic syndrome

    Mistyjo: <br /> <br />Google "Atypical Cystic Fibrosis" then look for a paper published by the JOURNAL OF THE ROYAL SOCIETY OF MEDICINE, titled "Atypical cystic fibrosis-diagnostic and management dilemmas". <br /> <br />It is 10 pages but extremely informative. <br /> <br />Bill
  17. P

    Suspected CF-looking for information

    DD is 16 and doing very well. 2 weeks to go to the CF Clinic won't hurt anyone. Fallen, relax, yiu are doing fine. Bill
  18. P

    Suspected CF-looking for information

    DD is 16 and doing very well. 2 weeks to go to the CF Clinic won't hurt anyone. Fallen, relax, yiu are doing fine. Bill
  19. P

    Suspected CF-looking for information

    DD is 16 and doing very well. 2 weeks to go to the CF Clinic won't hurt anyone. Fallen, relax, yiu are doing fine. <br /> <br />Bill
  20. P

    Seeking Advice/Input

    Chris: There are two new drugs in the pipeline at VERTEX (I think that is right) VX770 and VX866. I think that if you research these (cff,org) you may have an easier decision. Good luck, Bill
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