Cystic Fibrosis Forum (EXP)

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  1. P

    enzyme

    Stefi: <br /> <br />Lets deal wit one situation at a time. Are you clear on the Creon issue? <br /> <br />Bill
  2. P

    How do you handle seeing somebody on supplimental oxygen?

    I would comment on this subject from a different perspective, coughing in public. As a former salesman I was constantly being asked by customers and suppliers, if I was ok. Sometimes at restaurants othere would stare and wonder if I was contaminating them. Those were my good days. If i'm...
  3. P

    How do you handle seeing somebody on supplimental oxygen?

    I would comment on this subject from a different perspective, coughing in public. As a former salesman I was constantly being asked by customers and suppliers, if I was ok. Sometimes at restaurants othere would stare and wonder if I was contaminating them. Those were my good days. If i'm...
  4. P

    How do you handle seeing somebody on supplimental oxygen?

    I would comment on this subject from a different perspective, coughing in public. As a former salesman I was constantly being asked by customers and suppliers, if I was ok. Sometimes at restaurants othere would stare and wonder if I was contaminating them. Those were my good days. <br /> <br...
  5. P

    In the hospital- cough has not gone away since last Nov.

    NO THE BRONCHIECTASE NEVER GOES AWAY. Not as long as she has CF. In short you don't trust the Doctors at your CF Center and that is OK. It is also OK to go to a different CF Center for treatment or for a second opinion. You need to remember that those of us here are either patients or...
  6. P

    In the hospital- cough has not gone away since last Nov.

    NO THE BRONCHIECTASE NEVER GOES AWAY. Not as long as she has CF. In short you don't trust the Doctors at your CF Center and that is OK. It is also OK to go to a different CF Center for treatment or for a second opinion. You need to remember that those of us here are either patients or...
  7. P

    In the hospital- cough has not gone away since last Nov.

    NO THE BRONCHIECTASE NEVER GOES AWAY. Not as long as she has CF. In short you don't trust the Doctors at your CF Center and that is OK. It is also OK to go to a different CF Center for treatment or for a second opinion. You need to remember that those of us here are either patients or...
  8. P

    WHAT WOULD YOU DO~help!

    If I were you, I would take her to a different CF Center. You will never be happy with this Center unless and until you get a confornation of her care from another expert. She may be "only 7" but she has CF and she is plenty old enough for damage this severe. Bill
  9. P

    WHAT WOULD YOU DO~help!

    If I were you, I would take her to a different CF Center. You will never be happy with this Center unless and until you get a confornation of her care from another expert. She may be "only 7" but she has CF and she is plenty old enough for damage this severe. Bill
  10. P

    WHAT WOULD YOU DO~help!

    If I were you, I would take her to a different CF Center. You will never be happy with this Center unless and until you get a confornation of her care from another expert. <br /> <br />She may be "only 7" but she has CF and she is plenty old enough for damage this severe. <br /> <br />Bill
  11. P

    enzyme

    Harriet: I would refer you to an artical in the May 1997 issue of The New England Journal of Medicine. Titled HIGH-DOSE PANCREATIC-ENZYME SUPPLEMENT AND FIBROSING COLONOPATHY IN CHILDREN WITH CYSTIC FIBROSIS. This article expressly excluded CREON from this problem. You will have to read the...
  12. P

    enzyme

    Harriet: I would refer you to an artical in the May 1997 issue of The New England Journal of Medicine. Titled HIGH-DOSE PANCREATIC-ENZYME SUPPLEMENT AND FIBROSING COLONOPATHY IN CHILDREN WITH CYSTIC FIBROSIS. This article expressly excluded CREON from this problem. You will have to read the...
  13. P

    enzyme

    Harriet: <br /> <br />I would refer you to an artical in the May 1997 issue of The New England Journal of Medicine. Titled HIGH-DOSE PANCREATIC-ENZYME SUPPLEMENT AND FIBROSING COLONOPATHY IN CHILDREN WITH CYSTIC FIBROSIS. <br /> <br />This article expressly excluded CREON from this problem...
  14. P

    enzyme

    Harriet, Lisa: I agree and that is why i prefaced my remarks with the expertice that brought me to this dosage. I didn't want antone to think that I did/am doing this on my own. I'm not suggesting this for ANYONE. Just noting that there is more leaway than that has been suggested. If you...
  15. P

    enzyme

    Harriet, Lisa: I agree and that is why i prefaced my remarks with the expertice that brought me to this dosage. I didn't want antone to think that I did/am doing this on my own. I'm not suggesting this for ANYONE. Just noting that there is more leaway than that has been suggested. If you...
  16. P

    enzyme

    Harriet, Lisa: <br /> <br />I agree and that is why i prefaced my remarks with the expertice that brought me to this dosage. I didn't want antone to think that I did/am doing this on my own. I'm not suggesting this for ANYONE. Just noting that there is more leaway than that has been...
  17. P

    Another reason to love Green Day

    OK Julie.
  18. P

    Another reason to love Green Day

    OK Julie.
  19. P

    Another reason to love Green Day

    OK Julie.
  20. P

    Snorkeling

    Sue: You can practice snorkling in a local pool or lake, before you get married. Bill
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