Cystic Fibrosis Forum (EXP)

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  1. P

    Go to the White House Website

    I don't want to get political here but it is the Republican Congress that you need to contact (Tea Party). We are not only talking about a loss of SS and Medicare, we are talking about a SHUTDOWN of the federal goverment. <br /> <br />The problem is that we need a bill (that by law must...
  2. P

    How long do you do IV antibiotics?

    Cindy: I have had great luck using 7% sailine. You may want to try that for improved lung function. Bill
  3. P

    How long do you do IV antibiotics?

    Cindy: I have had great luck using 7% sailine. You may want to try that for improved lung function. Bill
  4. P

    How long do you do IV antibiotics?

    Cindy: <br /> <br />I have had great luck using 7% sailine. You may want to try that for improved lung function. <br /> <br />Bill
  5. P

    tough topic- portrayed life expectancy

    Sara: I'm 71 with CF. Some would say I have a "mild case" because my FEV1 is in the mid 70s. I was 15 before CF had a name and then only infants had CF. I was dx at age 47 but before that time I had half of my stomach removed, I was hospitalized over 60 times for pancreatititis, had common...
  6. P

    tough topic- portrayed life expectancy

    Sara: I'm 71 with CF. Some would say I have a "mild case" because my FEV1 is in the mid 70s. I was 15 before CF had a name and then only infants had CF. I was dx at age 47 but before that time I had half of my stomach removed, I was hospitalized over 60 times for pancreatititis, had common...
  7. P

    tough topic- portrayed life expectancy

    Sara: <br /> <br />I'm 71 with CF. Some would say I have a "mild case" because my FEV1 is in the mid 70s. I was 15 before CF had a name and then only infants had CF. I was dx at age 47 but before that time I had half of my stomach removed, I was hospitalized over 60 times for pancreatititis...
  8. P

    What is your FEV1 Score?

    <P>I hold pretty steady at 75%</P> <P> </P> <P>Bill</P>
  9. P

    What is your FEV1 Score?

    <P>I hold pretty steady at 75%</P> <P></P> <P>Bill</P>
  10. P

    What is your FEV1 Score?

    <P>I hold pretty steady at 75%</P> <P></P> <P>Bill<BR></P>
  11. P

    Military and CF

    Go to cff.org. Click on "care center network" then click on the map for NC. Good luck, Bill
  12. P

    Military and CF

    Go to cff.org. Click on "care center network" then click on the map for NC. Good luck, Bill
  13. P

    Military and CF

    Go to cff.org. Click on "care center network" then click on the map for NC. <br /> <br />Good luck, <br />Bill
  14. P

    If you ever test positive for CF is that a guarantee?

    <P>Hi:</P> <P> </P> <P>About 8 years ago, Massachusetts passed a law requiring all newborns to he tested for CF (and several other diseases.  The CF Doctor that I had at that time (MGH CF Clinic),  said "the problem with the CF screening is that there are too many false posivites".  That is...
  15. P

    If you ever test positive for CF is that a guarantee?

    <P>Hi:</P> <P></P> <P>About 8 years ago, Massachusetts passed a law requiring all newborns to he tested for CF (and several other diseases. The CF Doctor that I had at that time (MGHCF Clinic), said"the problem with the CF screening is that there are too many false posivites". That is pretty...
  16. P

    If you ever test positive for CF is that a guarantee?

    <P><BR>Hi:</P> <P></P> <P>About 8 years ago, Massachusetts passed a law requiring all newborns to he tested for CF (and several other diseases. The CF Doctor that I had at that time (MGHCF Clinic), said"the problem with the CF screening is that there are too many false posivites". That is pretty...
  17. P

    CF services leaves enzymes at door in 100 degree weather

    <P>It seems to me, that a phone call to the CF Pharmacy would be the first step in clearing up your situation.</P> <P> </P> <P>Bill</P>
  18. P

    CF services leaves enzymes at door in 100 degree weather

    <P>It seems to me, that a phone call to the CF Pharmacy would be the first step in clearing up your situation.</P> <P></P> <P>Bill</P>
  19. P

    CF services leaves enzymes at door in 100 degree weather

    <P><BR>It seems to me, that a phone call to the CF Pharmacy would be the first step in clearing up your situation.</P> <P></P> <P>Bill</P>
  20. P

    Diagnosed at age 50

    Delta F508 is the MOST COMMON of the mutations, so your mutations are not rare. I know that you are at YALE but you need to be seen by a CF Specialist. Bill
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