Cystic Fibrosis Forum (EXP)

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  1. P

    Diagnosed at age 50

    Delta F508 is the MOST COMMON of the mutations, so your mutations are not rare. I know that you are at YALE but you need to be seen by a CF Specialist. Bill
  2. P

    Diagnosed at age 50

    Delta F508 is the MOST COMMON of the mutations, so your mutations are not rare. I know that you are at YALE but you need to be seen by a CF Specialist. <br /> <br />Bill
  3. P

    Diagnosed at age 50

    Hi: I am male 71 and was dx at age 47. Now that you have been dx and treated properly, you will be much healthier. Good luck, Bill
  4. P

    Diagnosed at age 50

    Hi: I am male 71 and was dx at age 47. Now that you have been dx and treated properly, you will be much healthier. Good luck, Bill
  5. P

    Diagnosed at age 50

    Hi: <br /> <br />I am male 71 and was dx at age 47. Now that you have been dx and treated properly, you will be much healthier. <br /> <br />Good luck, <br />Bill
  6. P

    What is the end of life for a CFer like?

    Megan: I'm male 71 with CF. I have no idea, Hang in. Bill
  7. P

    What is the end of life for a CFer like?

    Megan: I'm male 71 with CF. I have no idea, Hang in. Bill
  8. P

    What is the end of life for a CFer like?

    Megan: <br /> <br />I'm male 71 with CF. I have no idea, <br /> <br />Hang in. <br /> <br />Bill
  9. P

    looking for friends to talk to with cf (:

    Hi: Im older than your grandfather and I have CF. I'll be ur friend on here. Bill
  10. P

    looking for friends to talk to with cf (:

    Hi: Im older than your grandfather and I have CF. I'll be ur friend on here. Bill
  11. P

    looking for friends to talk to with cf (:

    Hi: Im older than your grandfather and I have CF. I'll be ur friend on here. Bill
  12. P

    50th Birthday for a CFer

    Happy Birthday Debbi. Bill
  13. P

    50th Birthday for a CFer

    Happy Birthday Debbi. Bill
  14. P

    50th Birthday for a CFer

    <p>Happy Birthday Debbi. <p>Bill
  15. P

    Leaking Protein & Low Vitamin D levels

    Hi: I just had PARA thyroid surgery.  Among other things the parathroid ( 4 of them, each about the size of a piece of rice) which is behind the throid, controls Calcium and Vit D.  Checking for it starts with a simple b;ood test and if necessary a scan. Bill
  16. P

    Leaking Protein & Low Vitamin D levels

    Hi: I just had PARA thyroid surgery. Among other things the parathroid ( 4 of them, each about the size of a piece of rice) which is behind the throid, controls Calcium and Vit D. Checking for it starts with a simple b;ood test and if necessary a scan. Bill
  17. P

    Leaking Protein & Low Vitamin D levels

    <p>Hi: <p>I just had PARA thyroid surgery. Among other things the parathroid ( 4 of them, each about the size of a piece of rice) which is behind the throid, controls Calcium and Vit D. Checking for it starts with a simple b;ood test and if necessary a scan. <p>Bill
  18. P

    Considering a second child...What did you do?

    I recently received a newsletter from the CFF.  It addresses the clinical trials of VX-770 & VX-809.  These drugs, in combination, show great promise for anyone with the Delta F508 mutation.  I would strongly suggest that you go to <a href="http://www.cff.org">www.cff.org</a> and read the...
  19. P

    Considering a second child...What did you do?

    I recently received a newsletter from the CFF. It addresses the clinical trials of VX-770 & VX-809. These drugs, in combination, show great promise for anyone with the Delta F508 mutation. I would strongly suggest that you go to <a href="http://www.cff.org">www.cff.org</a> and read the...
  20. P

    Considering a second child...What did you do?

    <p>I recently received a newsletter from the CFF. It addresses the clinical trials of VX-770 & VX-809. These drugs, in combination, show great promise for anyone with the Delta F508 mutation. <p>I would strongly suggest that you go to <a href="http://www.cff.org">www.cff.org</a> and read the...
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