Cystic Fibrosis Forum (EXP)

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  1. P

    Cystic Fibrosis is a Business!!!!!!!!

    Where do I get whatever it is that your smoking?
  2. P

    Cystic Fibrosis is a Business!!!!!!!!

    Where do I get whatever it is that your smoking?
  3. P

    adult diagnosis

    I was dx at age 47. We know for a fact that you are a carrier, the only question would be the second defective gene. Not only is it reasonable for you ask to be tested, it is something that all parents of CF children should do. You should be going to a CF Clinic, have them do a full CF...
  4. P

    adult diagnosis

    I was dx at age 47. We know for a fact that you are a carrier, the only question would be the second defective gene. Not only is it reasonable for you ask to be tested, it is something that all parents of CF children should do. You should be going to a CF Clinic, have them do a full CF...
  5. P

    adult diagnosis

    I was dx at age 47. We know for a fact that you are a carrier, the only question would be the second defective gene. <br /> <br />Not only is it reasonable for you ask to be tested, it is something that all parents of CF children should do. <br /> <br />You should be going to a CF Clinic...
  6. P

    Our Dx changed

    There are 3 CF Clinics in Boston and 1 in Worcester. Childrens Hospial, Massachusetts General Hospital and Tufts Medical Center in Boston. There is University of Massachusetts Hospital in Worcester. I agree with eveone who has replied, run, don't walk, to another CF Center. As you may guess...
  7. P

    Our Dx changed

    There are 3 CF Clinics in Boston and 1 in Worcester. Childrens Hospial, Massachusetts General Hospital and Tufts Medical Center in Boston. There is University of Massachusetts Hospital in Worcester. I agree with eveone who has replied, run, don't walk, to another CF Center. As you may guess...
  8. P

    Our Dx changed

    There are 3 CF Clinics in Boston and 1 in Worcester. Childrens Hospial, Massachusetts General Hospital and Tufts Medical Center in Boston. There is University of Massachusetts Hospital in Worcester. <br /> <br />I agree with eveone who has replied, run, don't walk, to another CF Center. <br />...
  9. P

    Need help - please ... Is genzyme test comprehensive like Ambry?

    Earlier this month, I had blood drawn for the purpose of identifying my second defective gene. The blood was going to Genzyme. On the requisition for blood, there were three boxes, one of which the Doctor could check. The choices were from, a narrow scan, a narrow scan with authorization to...
  10. P

    Need help - please ... Is genzyme test comprehensive like Ambry?

    Earlier this month, I had blood drawn for the purpose of identifying my second defective gene. The blood was going to Genzyme. On the requisition for blood, there were three boxes, one of which the Doctor could check. The choices were from, a narrow scan, a narrow scan with authorization to...
  11. P

    Need help - please ... Is genzyme test comprehensive like Ambry?

    Earlier this month, I had blood drawn for the purpose of identifying my second defective gene. The blood was going to Genzyme. On the requisition for blood, there were three boxes, one of which the Doctor could check. The choices were from, a narrow scan, a narrow scan with authorization to...
  12. P

    Vertex Drugs

    God Bless You.
  13. P

    Vertex Drugs

    God Bless You.
  14. P

    Vertex Drugs

    God Bless You.
  15. P

    Vertex Drugs

    Forgive me but your question makes me curious. Vertex Drugs I'm sorry but your question makes me extremely curious. What difference would it make if they do or if they don't?
  16. P

    Vertex Drugs

    Forgive me but your question makes me curious. Vertex Drugs I'm sorry but your question makes me extremely curious. What difference would it make if they do or if they don't?
  17. P

    Vertex Drugs

    Forgive me but your question makes me curious. Vertex Drugs I'm sorry but your question makes me extremely curious. What difference would it make if they do or if they don't?
  18. P

    wwyd?

    If you don't have confidence in your Doctors' decision making or if you can't ask him/her these questions, I would strongly suggest that you get a new Doctor. It is not fair, to you, that you have all of these unanswered questions. That is the Doctors job and it is what you are paying them for.
  19. P

    wwyd?

    If you don't have confidence in your Doctors' decision making or if you can't ask him/her these questions, I would strongly suggest that you get a new Doctor. It is not fair, to you, that you have all of these unanswered questions. That is the Doctors job and it is what you are paying them for.
  20. P

    wwyd?

    If you don't have confidence in your Doctors' decision making or if you can't ask him/her these questions, I would strongly suggest that you get a new Doctor. <br /> <br />It is not fair, to you, that you have all of these unanswered questions. That is the Doctors job and it is what you are...
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